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I'm Miserable. :-(


nikelodeon79

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jerseyangel Proficient

Thanks for checking in! I was induced on 11-26. Sarah Grace is healthy, and I'm MUCH better!

Such great news!!! Congratulations and welcome, Sarah Grace :D


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sweetpea Rookie

I got my Zofran directly from Glaxo-smith Kline, and it wasn't gluten free - at least not when I got it in late 2008 and early 2009. I've heard that it depends on where it was manufactured. Too risky for me b/c I was reacting to it.

This time I took the liquid orally, or I took it through my PICC line.

Laennie Rookie

Yay! Congrats Sweetpea!

GFinDC Veteran

Congrats indeed! A happy Thanksgiving baby for 2010 is born. :)

  • 2 weeks later...
gflooser Contributor

congrasts on a healthy baby AND feeling better!!!!!!!!!!!

sweetpea Rookie

Thank you!

  • 10 months later...
SniggitSnob Newbie

I know how you felt with the loyalty thing with work. I am stressed about the same thing, but SOOOO sick all day every day. Today i finally called out...and the guilt is eating me up on top of throwing up everything i've tried to put down today. Stupid ethical conscience.

While perusing the site, I saw the "I'm Miserable" post under pregnancy and I had a feeling it was regarding morning sickness. I have one child, and she's 7, but I still remember the awful pregnancy I had. I now realize that it's very common for undiagnosed celiac's to be very ill throughout the pregnancy. I was hoping for the other women on this board that following a gluten free diet would ease up the symptoms. I pray that you are like most women and in a couple of weeks the symptoms will go away.

The hardest thing for me about my pregnancy is that I was hanging on the promise of feeling better by the second trimester. Truth is I was nauseated the entire time. It took me awhile but I learned to manage it. I ate CONSTANTLY. I started out underweight so the doctor wasn't concerned with my weight gain, until the end. I think I was still underweight at 20 weeks, and then I went on to gain 40 pounds in the last 20 weeks. But eating eased my symptoms. There was a Thai restaurant by my work that made a great ginger soup. I went there every day for lunch. Finally when my belly started popping out that realized why I was eating the soup every day. They didn't even take my order...just brought me my soup.

I don't know if this is still recommended but I took Unisom and B6 in combination and it really helped with the nausea and helped me sleep. (This was okayed by my gyno). Also for the very worst months when I couldn't keep anything down I took Zofran.

Toward the end of the pregnancy I let myself drink a tea every day (with caffeine) For some reason that always settled my symptoms.

I don't know if you're working or if you have other kids, but my plan was to stay home after we had a baby. I don't know why I continued to work so hard fighting the nausea every day, when I wasn't even going back. I just felt too loyal I guess. Anyhow, finally about 2 months before my daughter was born I quit working and I just felt so much better. I think the stress was really adding to the nausea. If you can at all set up a world where all you have to do is grow that little baby, which is a HUGE job, then do it. Don't feel guilty.

If you need to send my a private message you are welcome. I will try and encourage you in any way I can. My best friend had a baby 9 months before I got pregnant and she was sick the whole time too. I called her every day (didn't even think that she must be exhausted with a new baby) but she talked me through so much. Sometimes just having someone say, "I understand...you can do this" makes a huge difference.

Hang in there. IF you already have kids you know it's so worth it. YOU CAN DO IT! Rest, eat, ask for help, give yourself a break!

Good luck!!!


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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