Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Don't Know Whats Happening To Me

jasonD2

By jasonD2
in Coping with Celiac Disease

Recommended Posts

jasonD2 Experienced
jasonD2
Posted

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gofluoridefree Newbie
gofluoridefree
Posted

Were you drinking lots of water on your fast? It could be fluoride overload. I have had tons of problems my whole life (see my profile), and I was allergic to what seemed like all foods. When I went gluten free, I actually got worse. I finally found out that this is because of fluoride in my water. I was cooking lots of veggies and rice on the stove, eating potatoes, eating more seafood, and eating more fruits and vegetables in general. All of these are sources of fluoride that can cause dizziness, anxiety, panic attacks, depression and more. Fluoride causes toxic fumes when it's heated, and can also cause Candida Overgrowth. Cutting fluoride out of your life might be the last thing you need to do to get back to health.

jasonD2 Experienced
jasonD2
Posted
  • Author

hmmm interesting. but i only drink bottled water. i use filtered water to cook at home..never straight from the tap, so not sure if its that

burdee Enthusiast
burdee
Posted

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?

Are you taking HCl supplements with a full cup of water AFTER eating a few bites of food? (I hope you're not taking those at the end of your meal, which would cause burning pain.) I recall that you previously said you were tolerating HCl supplements and thoe improved your digestion. Did you have to take any other supplements for the Pillcam test? You sounded like you were doing okay on Saturday. What changed?

Lizking531 Rookie
Lizking531
Posted

I swear I think its a curse cause the past 2 summers i felt great and as soon as fall sets in i start feeling like crap again.

I had the PillCam capsule endoscopy on Friday and basically had to fast for 24 hrs. I expelled the capsule friday night but since then i feel like my gastritis has returned and am constipated again. i have burning 20-45 min after meals and cant eat large meals w/o discomfort. i thought this hell was in the past and now it looks like its starting up all over again...i cant handle another winter of depression and illness...i cant! My life has been going so well since March...work is great, have a girlfriend and been feeling so much better....as most of you know i barely even posted on the forum for the past few months and when i do its not my usual neurotic tirades.

Im freaking out and have been depressed all day with my eyes filling up constantly...i havent had these emotions literally since January. What do I do?

the timing sounds so very familiar. I was doing great for just about 2 years - no problems, no this fall it seems like I'm sliding uncontrollably back to square 1.

gofluoridefree Newbie
gofluoridefree
Posted

hmmm interesting. but i only drink bottled water. i use filtered water to cook at home..never straight from the tap, so not sure if its that

There's actually still fluoride in bottled water (unless it's distilled). Most water bottles are filled with tap water from the city they are manufactured in; that means they could have up to 4 ppm of fluoride in them (that

mommida Enthusiast
mommida
Posted

Hi Jason,

I did notice you went AWOL for a while! It was after some girlfriend posts so I was thinkin' good for you. WINK

Well this is the third year in a row that my daughter started going down hill quick. She is going to be 8 in about 2 weeks and was diagnosed with Eosinophilic Esophagitus when she was 6. When the air here starts getting dry and the leaves are falling off the trees -she gets really sick. Tired, dark circles under her eyes, GERD like vomitting, her voice is getting kinda hoarse, and a lot of pain especially at night. Poor kid is pretty miserable and I'm probably forgetting some of the complaints.

Well the eosinophilic (name the part of the digestive track they are found for specific disorder) is believed to have a "trigger" food or in the case with the esophagus a possible AIRBORN trigger.

Most cases are diagnosed from AUGUST/ September complaints.

There appears to be a connection to seasonal allergies.

Adults cases are also increasing.

My daughter does not complain of her throat, neck, or chest hurting just her stomach. She will circle bottom ribs to just below her waist.

Have your doctors ever ordered the pathology test for eosinophil detection? What time of the year where your endoscopes with biopsy taken?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jasonD2 Experienced
jasonD2
Posted
  • Author

No i drink spring water and SMART water (vapor distilled) - just use filtered tap for cooking

jasonD2 Experienced
jasonD2
Posted
  • Author

Dunno Sue - actually had to stop the HCL for a bit. I usually take at the beginning of the meal - been doing really well but something flared up on me so i dont want to exacerbate with acid. I will give it a few days and see how i do. no other supplements - i did fast and swallow that huge pill so maybe it threw off the balance in my system somehow. i know changing eating habits can cause constipation and has in the past so maybe the fast caused that. hope this is a temporary thing cause i really wanna start the antibiotic regimen in a few weeks

Marz Enthusiast
Marz
Posted

Sounds like a potential seasonal allergy messing around with you?

Another idea is Vitamin D deficiency? During summer you get more sun and therefore feel better, with fall sunlight exposure goes down and you start feeling crap? Long shot, but worth mentioning.

burdee Enthusiast
burdee
Posted

Dunno Sue - actually had to stop the HCL for a bit. I usually take at the beginning of the meal - been doing really well but something flared up on me so i dont want to exacerbate with acid. I will give it a few days and see how i do. no other supplements - i did fast and swallow that huge pill so maybe it threw off the balance in my system somehow. i know changing eating habits can cause constipation and has in the past so maybe the fast caused that. hope this is a temporary thing cause i really wanna start the antibiotic regimen in a few weeks

If you fasted before doing the test, less food consumption will affect regularity. Also going off the acid supplements for a few days may cause returned indigestion, because your stomach acid is inadequate to digest what you eat without uncomfortable symptoms. I suspect your system will straighten out after you resume taking the HCl and eat normally.

sandsurfgirl Collaborator
sandsurfgirl
Posted

Change of season is hard on the body. I always get sick when seasons change unless I get acupuncture. I get a treatment to balance me out and get me ready for the change and it totally works.

Breathe and relax jason. You've made tons of progress and you will not go back to the way it was before. It's okay to have a bad or two or three.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748
    patanddiane
    Newest Member
    patanddiane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.