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Healthcare Ins. And Celiac

sebbitt01

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sebbitt01 Newbie
sebbitt01
Posted

Sooo, we have been seeing a GI specialist for 8 months. Originally my 1 year old daughter had chronic diarrhea she had undigested sugars in her stools and a very high level of bad bacteria in her gut. So they said probably Celiac. We had some blood work done, and she tested Neg for IgA Atigladin (lovel level of IgA in general) but had an elevated level of IgG (triple the normal). Also High Neutrophil count, Low Lymphocyte level and VERY low Alkaline phosphate levels. We are starting a Gluten Free Diet today because insurance will not approve the biopsy. She is 2 years and 2 month old and weighs 23 pounds. She does not heal well at all (5 week for a mosquito bite) ... Has anybody faced this issue with insurance or anything similar to the blood work? Any ideas on how to deal with our insurance?

Thanks!!

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Dixiebell Contributor
Dixiebell
Posted

Can you post the results of the tests? A lot of people here are quite good at understanding those. There is a newer test DGP, you could see if they would do that one too.

Roda Rising Star
Roda
Posted

If you really want to try and persue the biopsy you could have her doctor write a letter explaining why they feel the need for the exam and petition the insurance company to cover it. IMHO it would cost them a whole lot less in the long run to find out now than many years of doctor visits etc if you were to not choose to go gluten free. My insurance does not pay for any genetic testing, but I had my youngest son's allergist/immunologist and ped write a letter to the insurance company to pay for a test they didn't cover for him. They were testing him for LAD (leukocyte adhesion deficiency and luckily he didn't have it) and they were testing genetic markers. I have never recieved a bill from the lab to this day and that was almost 5 years ago. But in the off chance you don't have luck with the insurance company, it certainly won't hurt anything to try the diet.

Mizzo Enthusiast
Mizzo
Posted

Sooo, we have been seeing a GI specialist for 8 months. Originally my 1 year old daughter had chronic diarrhea she had undigested sugars in her stools and a very high level of bad bacteria in her gut. So they said probably Celiac. We had some blood work done, and she tested Neg for IgA Atigladin (lovel level of IgA in general) but had an elevated level of IgG (triple the normal). Also High Neutrophil count, Low Lymphocyte level and VERY low Alkaline phosphate levels. We are starting a Gluten Free Diet today because insurance will not approve the biopsy. She is 2 years and 2 month old and weighs 23 pounds. She does not heal well at all (5 week for a mosquito bite) ... Has anybody faced this issue with insurance or anything similar to the blood work? Any ideas on how to deal with our insurance?

Thanks!!

No help here, just my story.

We had np problem with the biopsy as our GI ordered it. However when it came to me and my husband getting the bloodwork on ourselves based on the GI recommendation our Primary care would not order the test due to lack of symptoms. So I suddenly ;-) had celiac like symptoms and insisted on the bloodwork (an aunt on my mom's side also has Celiac so it was an easy push). My husband who actually has stomach problems took longer to convince the PC but eventually we both got tested.

good luck.

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