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How Did You Find Out You Were Gluten Intolerant?

tlcmel

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tlcmel Rookie
tlcmel
Posted

hi,

I think gluten my be the reason why i suffer from constipation, bloating, and flatulence. Well, i just took the test for it yesterday and have to wait from 3 days before the results. I was reading on the internet about how most postive results from blood tests are a result of SEVERE damage. Now what if it's negative but my symptoms are STILL related to gluten. I haven't been eating bread, or pasta but did have pizza the other day. BUt gluten is in EVERYTHING and i plan on trying the whole gluten-free diet even if it's negaive

My queston is......

What happened to you, or how did you know that you were a celiac or intolorant to gluten??

Thanks

Mel

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KaitiUSA Enthusiast
KaitiUSA
Posted

Which blood tests did you have done?

I was diagnosed through blood tests. My tTG was more then double what it should be and I also have one of the main genes for celiac(HLA-DQ2)

You should get the celiac panel including the following:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The tTG and the EMA are the best 2 tests for celiac...they are very specific. The IgA and IgG are not as reliable and should not be done by themselves to rely on alone.

If these tests you have done come back negative, gluten could still be your problem. You could just have an intolerance that has not progressed to celiac yet but it very well could. Listen to your body.

Do not go gluten free until after testing because this will interfere with test results.

Carriefaith Enthusiast
Carriefaith
Posted

Many people go about it different ways. Some people get the blood tests, others biopsy, some do the dietary challenge, and many do a combination or all of the different tests. You can also test to see if you have the celiac gene. It's best to decide with your doctor what is the best route for you. I personally, had one positive blood test (tissue transglutamase), a postive biopsy, and felt almoat 100% better after about 1 year on the gluten-free diet.

julie5914 Contributor
julie5914
Posted

I was diagnosed by blood test, primarily the EMA. I was feeling horrible all of the time. It has not been a week yet for me gluten free, but I am feeling a little better already. Hope your results help you out.

jenvan Collaborator
jenvan
Posted

I had positive blood work and a biopsy.

PreOptMegs Explorer
PreOptMegs
Posted

I was finally diagnosed with non-celiac gluten intolerance. My biopsy was negative, but my bloodwork was positive and everything has been positive with my dietary change. I went from having an athletic, lean body, to being absolutely bloated all of the time, fatigue, extremely gassy.... the list goes on. I basically knew after gaining 12 lbs overnight one time that something was wrong. I told my doctor I think it had something to do with all of the wheat I was eating, because that seemed to make it that much worse, so she did the IgG /IgA blood test and it was emphatically positive. I basically just knew from the way gluten made my body morph.

tlcmel Rookie
tlcmel
Posted
  • Author

:o Okay,

My results are postive but not serious the secretary said. The norm (Igg) is 20 she said, and mine was 38. She didn't seem too knowledgeable and I was shopping at the time so their gonna get back to me. She didin't even mention anything about going on a gluten free diet or anything. Is 38 igg high?? thanks

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    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

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      Son's legs shaking

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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      Bob red mill gluten free oats

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