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Both Kids Went To The Gi...

scarlett77

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scarlett77 Apprentice
scarlett77
Posted

Well both kids saw the GI on Friday. She says that Ryan's height is fine, but his weight is a little low (still on the charts though). We are going to check his thyroid and iron, but she doesn't think that anything is wrong with either of these. She wants us to work with a dietician and it sounds like she want me to put him on gluten eventually and test him for Celiac (our household is 100% gluten-free). I think the reason his weight is low has more to do with his low food intake. He still breastfeeds and it is his comfort thing. He has huge separation anxiety so I think he makes up his time by trying to breastfeed as often as he can while I'm home (I work full time). I'm not sure the dietician is really going to tell me something I don't know. Not to mention it is another $30 or so dollars to go. I'm debating canceling the appointment.

James' weight was ok, but his height was not. He hasn't grown in height in almost a year. She told us that his levels back in May were still high. We have to take him in to get his levels checked again so I am hoping that this time they will be down. She wants to do another endoscopy to check healing/damage. She also wants us to go back to the endocrinologist because of the height issue. She thinks that they need to see him again and possible talk about growth hormone therapy. The last time we went to the endocrinologist all he did was say that he trusts our GI to monitor his thyroid levels and that we don't need to come back. Grrr.

I don't want to put him through another endoscopy. I don't understand why I would need to do that. I mean if his test comes back with his antibody levels down then that obviously means the immunoresponse isn't going on. If the levels are still high, then I guess I need to re-think and triple check everything and see where I might be going wrong. I have mixed feelings about growth hormone as well. Anyone know anything about it? I'm still upset. I totally cried when we left.

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glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

i don't have any advice for you, just wanted to give you a ((hug)) and tell you to hang in there.

Emilushka Contributor
Emilushka
Posted

I don't know about your kids' medical histories, but it sounds like it's time for you to voice these frustrations with the doctors who are making the recommendations.

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      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
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