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Please Help/not Sure What To Do

Sickandtiredandtingling

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Sickandtiredandtingling Newbie
Sickandtiredandtingling
Posted

Hello,

I am so tired... I am at the end of my rope and need some suggestions from anyone with celiac disease problems. I have had abdominal pain for the last year and a half. I had a tissue transglut test 6 months ago that was 8.5 (week positive) and the doctor said labs were fine>I have had a recent tTG with a result of 12.(I feel more sick then ever) The doctor (GI) I went to today wants to do a biopsy 14 days from today. These are my symptoms that I can no longer tolerate: right upper abdominal pain, tingling in my legs 24/7. Bone Pain and weakness, b12 and vit. d def., joint pain, depression and bouts of crying ( I am losing my mind, plus my hair) I have had thyroid tests which are within normal limits but numbers increase and decrease..Low cortisol level and darkening of my armpits. oh I almost forgot my armpits and back of knees are sore and I think my lymph nodes are swollen.

This doctor wants me to increase gluten (which I have not started to restrict) for 2 wks so he could do a biopsy.-Well I say forget it. I want to start the gluten free diet and hope that my symptoms elevate. I though doctors are suppose to help you? If I increase the gluten and have celiac won't I be damaging my intestine even more???? and why isn't anyone concerned about the pain, I push myself out of bed to go to work and school and fight the urge to run off the road.

I hope someone can advise.

Thank you

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ravenwoodglass Mentor
ravenwoodglass
Posted

You have had positive blood work. The choice to endo is up to you not the doctor. If you go gluten free before the endo the results will be a false negative most likley. There are false negatives seen for some even with a full gluten diet. If you can stay compliant with the diet without the endo then go gluten free. If you need an official diagnosis then stay on the gluten and wait till the day of the endo to start the diet.

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