Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Metagenics Question


mommyoftwinks

Recommended Posts

mommyoftwinks Explorer

I was given Candibactin, Sustain and MetaFiber after seeing a nutritionist/homeopathic doctor.

I am having a hard time with the Sustain and the two powders; they taste gross. Can't add them to water like the container and doc suggest.

I was hoping that maybe someone had a suggestion or maybe has taken these and heard of them.

TY!

UltraClear Sustain

MetaFiber

CandiBactin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

As far as making them palatable you might be able to mix the powder with something like applesauce instead of putting it in liquid. You might want to ask your provider if that is ok.

Are you aware that the Meta Fiber has oats in it? Not all of us tolerate oats. You may want to try them one at a time to make sure you tolerate the ingredients.

Open Original Shared Link

Ingredients:

Rice bran

Beet fiber

Oat fiber

Apple fiber

Cellulose

Olive oil

D-alpha tocopheryl acetate

mommyoftwinks Explorer

TY I did not know it had oats. The nutritionist is aware I am sure so I will *try* it. I am VERY itchy; I have horrid hives/rash on my legs (isolated on legs only) and after 2 weeks, it's just not getting better.

I'm wondering if it takes time?

ravenwoodglass Mentor

TY I did not know it had oats. The nutritionist is aware I am sure so I will *try* it. I am VERY itchy; I have horrid hives/rash on my legs (isolated on legs only) and after 2 weeks, it's just not getting better.

I'm wondering if it takes time?

I saw one of the best naturopaths in my state and was positively shocked how little he knew about what celiacs can and cannot tolerate. He got me with everything he prescribed. Unfortuately we can never take it for granted that even folks that seem knowledgeable really know how little gluten we react to.

Your rash may be DH which can take some time to resolve. I would wait on the stuff with the oats until the rash is resolved. Also with that rash especially do check and make sure all your toiletries, soaps and lotions are free of gluten ingredients. If your concerned about the amount of fiber your getting perhaps getting more fruits and veggies might be the way to go for now. Sweet potatoes are an excellent source of both soluable and nonsoluable fiber as well as loads of vitamins. They are used in oriental medicine to regulate both D and C. It might help to add those to your diet for a bit. If you feel you need more in the way of supplementation there are some good vitamins that are available. County Life and Now are two good brands and likely much less costly than the brand you got through their office.

mommyoftwinks Explorer

i had gone to some 'regular' docs as well who all said i did not have celiac. they did a celiac blood panel and said it was negative and also tested me for a gluten allergy. i am not sure what to do anymore.

i can not get rid of this rash.

ravenwoodglass Mentor

i had gone to some 'regular' docs as well who all said i did not have celiac. they did a celiac blood panel and said it was negative and also tested me for a gluten allergy. i am not sure what to do anymore.

i can not get rid of this rash.

If the rash is DH it can take some time to resolve. You should stop getting lesions or they should go down in intensity after a bit if you are really stict with the diet and what you put on your body. Even the tiniest amount of gluten will keep those antibodies active, that's the reason I advised holding off on the supplement with oats.

I know how frustrating it can be. I have DH also although it has not been active in a long time now. I also am someone who shows negative on blood work which makes it really hard to get a diagnosis. I went undiagnosed for over 40 years. I am glad you finally were able to figure out that gluten was an issue for you but it does take some time to heal. It is hard to be patient but we really have no choice. In the meantime sometimes cool compresses can help with the itch and avoid things like real hot baths and showers as that can make the itch worse. Use warm water to bathe instead of hot. Hopefully the rash will resolve soon for you.

Charlie's Girl Apprentice

I was given Candibactin, Sustain and MetaFiber after seeing a nutritionist/homeopathic doctor.

I am having a hard time with the Sustain and the two powders; they taste gross. Can't add them to water like the container and doc suggest.

I was hoping that maybe someone had a suggestion or maybe has taken these and heard of them.

TY!

UltraClear Sustain

MetaFiber

CandiBactin

My last acupuncturist gave me several Metagenics products and I couldn't handle any of them. I tried Sustain, UltraInflamX and Spectrazyme. Several months before I was diagnosed, she gave me SpectraZyme. I had horrible D for almost 2 months. I mentioned this to her every week. After I was diagnosed, I asked her if any of her supplements were causing the D- she said no. I was in such a fog- but one day went through my supplements and saw in very small writing that SpectraZyme was not suitable for people with wheat allergies. When I pointed this out to her- she said "hmph." She knew I had wheat allergies- so that was a bit frustrating- but I digress. After I quit taking SpectraZyme- I was still having problems- tho' not as bad- with the UltraInflamX- so I switched to Sustain- still D. Quit the Sustain and it went away.

Instead of Sustain- I use Intestinew by Renew Life. I had been using it before- but switched as my acupuncturist swore by the Metagenics products that she carried. I am sure they are good products for people without Celiac or wheat allergies (I have both)- but I prefer Intestinew. You can get it at Whole Foods- I order it online from Swanson's Health Products as I believe it is a bit less expensive. I put it in water and can't taste it. (well maybe a little- but it isn't bad)

Don't know what to say about the fiber products- I don't use them. I swing so easily from C to D that I don't even try them anymore. I do eat 1-2 apples per day (no matter what) and a handful of raisins at night if things are backing up.

I was not given the Candibactin- are you using them for liver detox?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommyoftwinks Explorer

yes that is why i was given the candibactin.

i just re-read the labels and it said both containers said - GLUTEN FREE

Charlie's Girl Apprentice

yes that is why i was given the candibactin.

i just re-read the labels and it said both containers said - GLUTEN FREE

Sorry I can't help you with the liver detox. I am sure someone else will pop up with some great ideas.

I don't know what it was with the UltraInflamX and the Sustain- but they both got me. Cross contamination? Who knows? Sometimes I just throw up my hands and say "next."

Try the Intestinew. There used to be a really nice lady with an oh so pleasant southern accent who answered their 800 number and she was happy to talk about their products.

Looking for answers Contributor

I'm on Sustain and Glutagenics...just started a week ago. Since then, I've been having pain under my ribs on my left side. Ugh!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.