Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Overwhelmed


mommyto2cuties

Recommended Posts

mommyto2cuties Newbie

Hi everyone,

Well my little guy is now 13 months old but since he has been born has been battling problems with vomitting, diahreha (spelling!), slow growth, we even went backwards on the growth chart, eczema, strange rashes on his mouth when introduced solids. He ended up having a life threating reaction to eating food that contained eggs and so we had him tested and he tested positive for:

peanuts, all tree nuts, eggs, peas and wheat. So now I'm on this path of finding which foods he can eat that meet all this criteria. It is very frustrating and right now I feel as if he can't eat anything (which I know is not true but I'm so overwhelmed). I just found this all out last week. It seems as if everything out there has peanuts or wheat or eggs in it!!!

I have no problem with cooking from scratch, but I am concerned about cost. Also, as I've been researching his wheat issues I think I realized that I may have celiac and never have been diagnosed. Nearly everyday of my life whatever I eat comes immediately out (sometimes within 30 minutes of eating) I am bloated and have diahrrea. The gas and pain is is awful. I've been tested in the past and had a sigmoidoscopy but they said I just had irritble bowel syndrom. My mother was diagnosed with the same and my brother has a 'nervous stomach' and throws up alot. I don't think I ever considered celiac, I had never heard of it before. But now that my son has it (and my husband as NO issues at all) I can't help but think I have the gene, given all my family history.

So now I'm looking to follow this for myself and my son, to see how I feel and he is required to. But some of this stuff seems VERY expensive and we are on a budget. Plus some of the things I've tasted are TERRIBLE and expensive!

I was wondering if you all had any resources for sample menu plans, diets etc for little guys, and if you have a list of foods that you know taste good and are cost effective and what is a waste of time to buy and taste, I think that would help!

This is so confusing!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kay DH Apprentice

While it doesn't seem so now, your life is changing for the better. The diets can be daunting. Do you have a Vitamin Cottage or similar grocery in your area that has a nutritionist for advice? Your doctor can refer you to a nutritionist, as well. Since you are on a tight budget, 2nd-hand stores frequently have cookbooks for special dietary requirements. And there are recipes and such on the web. Basically, you can't trust almost all processed foods. These are expensive anyway. Write down a list of what you can eat. Keep it simple while you are adapting to the new diet, you can still eat meat, some grains, most fruit and vegetables, etc. It takes time to go through the grieving process with these changes in your life, but the changes become automatic through time.

missy'smom Collaborator

Start by making a list of what you CAN have. Then ask yourself "what can I make with these?". Cooking from scratch is generally cheaper than buying packaged foods. Keep your menus simple at first, back to the way previous generations ate. Don't try and go out and replace all the usual things. It is expensive and tiring. In time you will find alternatives and ones you like but for now, keep it simple. I replaced, and still do, cookies and the usual snacky foods with things like Jello, fruit etc. In time as you learn more, feel less overwhelmed and more able to take on new things, you will be able to get back some things.

There is a way to replace eggs in baked goods with flax meal, just google flax meal egg replacer and you'll find instructions.

There is sunflower nut butter "sunnutbutter" or pumpkin seed butter as an alternative to P.B.

Rice crispy treats are very do-able with various gluten-free cereals-Rice Chex from General Mills, Envirokids Koala Crisp, Erewhon Rice Twice and a couple other varieteis from the same line

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.