Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Symptoms Gluten Sensitivity?


bellysbetter

Recommended Posts

bellysbetter Newbie

I have had the following symptoms since I was 10 and they got worse over the last 3 years. I am now 39.

Bloating

Gas

Burping

Belly feels inflamed after an attack of the above

Painful constipation (never the runs)

Tiredness, sometimes debilitating

Foggy brain

Memory problems

Concentration problems

Irritability

I have been tested for celiac during tests to eliminate things. It came back clear. They diagnosed me with IBS in the end.

During self-experiments I have found I get the "IBS" on eating gluten, dairy and corn. The doctors and specialists were not very helpful so I have self-diagnosed myself as Non-celiac gluten sensitive. By cutting out all these things the IBS symptoms have gone. Can someone who has gluten sensitivity please tell me if that is what they had, these kind of symptoms and if they are also sensitive to dairy/corn. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bellysbetter Newbie

Oh I forgot to add depression and trouble getting off to sleep and waking a lot.

cassP Contributor

yes, ive had all those symptoms and more. i got the "C" more than the "D".

i think you're right on target- self diagnosing yourself as gluten intolerant & identifying gluten, corn, and dairy (which many of us also have issues with).

i think those with ONLY an intolerance to gluten may be in the minority, and im very very very jealous of them :(

those tests are so inconclusive sometimes, and the doctors rarely investigate them- you should get a copy of your results for yourself- you may learn even more about your body.

and stick to your guns & your diet- your body knows best. and of course check up with your doc for any other tests (vitamin levels, iron, etc, thyroid)... routine endos & colonoscopies... you're going to feel A LOT better :)

wheeleezdryver Community Regular

i have every one of those symptoms, except the problem getting to sleep. i am also self- dx'd gluten (if not celiac)& dairy intolerant, and am currently trying to figure out other intolerances (including corn & fructans). Most of my symptoms only started in the last couple of years, and I'm 34. so you're not alone in this!

bellysbetter Newbie

Oh thank you both of you. Other symptoms I forgot to mention was sensitivity to noise and sensitity to perfume, air freshners, bleaches - it feels like it gets down my throat that's all. I am fine with non-aerosol ones. Since giving up the gluten all this has returned to normal levels of tolerance, my old levels.

  • 1 month later...
George Knighton Apprentice

I would like to know as well. I have some of those symptoms.

hkgir1 Newbie

Have you tried going for an IgG test yet? I do not have celiac but I do have an gluten intolerance. I went for test after test for gluten allergy but nothing showed up. Only after I went for an IgG test did I finally find my diagnoses


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
Philadelphia Newbie

I am self-diagnosed NCGS. After 10 years of stomach difficulties, it seems to be the only thing that has worked. I definitely have less IBS-D and IBS-C (almost zero), and feel noticeably less exhausted all the time. And this is just after 2 months of gluten free living.

I am lactose intolerant, and wonder if oddly I have a slight allergy to some nuts as well? I know that people with gluten problems are rarely confined to one irritant. I hope I don't have a problem with corn, as I'm a huge fan of everything corn-based.

Corn and rice seem safe for me so far.

etta694 Explorer

Yes, that could be my post (what you said there..). and I would add 'feels like I'm dieing'. I am also self diagnosed because all the tests came back normal except that I have not had blood work because there isn't enough money on this planet to make me eat gluten again for a diagnosis.

As a note here... I find that, because I am of the C variety, when I get glutened, it seems to stay in my system longer and I feel like 'death warmed over' :( until it goes through, last time 3 weeks (unless I was accidentally getting glutened elsewhere). Thankfully, it has only happened once since going gluten-free.

OasisFlyer Newbie

This will be my first post after reading over this site for a few days. I felt compelled to reply since my symptoms are very similar to those listed by bellysbetter. I am going to my allergist tomorrow to ask about getting tested, but I am already suspecting that I have some type of intolerance to gluten and am going on the gluten free diet no matter what the test results say!!! I can only hope for some minor recovery, since my main symptoms are extreme fatigue and headaches, which are both debilitating when in combination with each other! This is by no means all the symptoms I have, but this is not the place for me to launch into all that. I do not look forward to what lies ahead with all the other sensitivities that could come along with this!

sickly Newbie

I have had the following symptoms since I was 10 and they got worse over the last 3 years. I am now 39.

Bloating

Gas

Burping

Belly feels inflamed after an attack of the above

Painful constipation (never the runs)

Tiredness, sometimes debilitating

Foggy brain

Memory problems

Concentration problems

Irritability

I have been tested for celiac during tests to eliminate things. It came back clear. They diagnosed me with IBS in the end.

During self-experiments I have found I get the "IBS" on eating gluten, dairy and corn. The doctors and specialists were not very helpful so I have self-diagnosed myself as Non-celiac gluten sensitive. By cutting out all these things the IBS symptoms have gone. Can someone who has gluten sensitivity please tell me if that is what they had, these kind of symptoms and if they are also sensitive to dairy/corn. Thanks.

I guess you had to do alot of elimination on figuring this out. I have tried to avoid all things gluten and dairy. I have not heard about a corn allergy. So I am assuming corn chips, corn tortillas, etc. are out! I am try to figure things out myself. Very sick at this moment and very depressed!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,870
    • Most Online (within 30 mins)
      7,748

    KRISTENE
    Newest Member
    KRISTENE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.