Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How To Handle Family


GFreeMO

Recommended Posts

GFreeMO Proficient

I just got off of the phone with my Mom. She is really mad at me b/c I told her that my husband and I don't feel comfortable going to her house for Thanksgiving if she is going to be making everything. (I said this in a very nice way) I have offered to make the stuffing with Udi bread and offered to make Gluten-Free pumpkin pies and bring Gluten-Free rolls. I don't expect them to cater to my celiac at all thats why I offered to either not go or to make Gluten-Free things that everyone can enjoy. She said that no one is going to want "my gluten free crap" because it tastes horrible.

I don't know what to do. I am not trying to be a pain or trying to cause friction but I am a very very sensitive celiac and if I eat any, I am sick for over a month. Starts with the d for a week then migraines, that joint pain so bad that I have to crawl and drag myself around then I get horrible DH on my knees.

I offered to bring all my own food. She got mad at that too. I don't know what to do! She said she would keep the store bought rolls away from my food and make the stuffing ahead of time but she would be baking it together in separate pans. I am worried about the butter and worried about CC from the flour on the counters even if the stuffing is made the day before. I have gotten sick over there before from a dish rag that wiped up flour and then was used to wipe off the table. They don't understand CC.

Help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Anyone else in your family that will be there that you can explain cc to and will have your back? Not your Hub (he is an interloper) but someone related to your mom.

I would just bring all your own food in your own containers and keep an eye on it the whole time. You don't want someone to be "helpful" and plate it for you if they don't understand cc. If hub can eat the regular food, let him.

If this is still going to cause a huge fuss or fight, say home and have a nice quite day. You or Hub could also get really sick with the flu on Wed. ;)

T.H. Community Regular

So sorry this is an issue. I've run into this with my mother in law and my son's allergy to milk (which is, thank god, very mild and not anaphylactic). I offered make/bring some dairy free dishes for him, she's mad. I offered to just bring his food, she's mad. for the first visit after we discovered the allergy, when she was adamant that she wanted to make his food and it would be dairy free, I made the mistake of believing her, and my son got sick.

We never did that again. When everybody was diagnosed with celiac, I didn't even bother to ask. I just brought our own food.

The thing to remember, in my honest opinion, is that it's not our job to make our mothers (or *cough* in-law) act like reasonable people. They got to take on that job by being an adult. It's also not our job to help our mothers keep their temper because they're finding a way to feel offended that we want to stay healthy.

It is our job to do what's right for us and our families and our bodies. Your bringing your own food harms no one, in fact it actually makes less work for your mom! Your mom's plan to make food food prepared there, on the other hand, will hurt you - you sound pretty certain of that, and it sounds like you have reason. So honestly, it's a no brainer. Bring your own food.

And yeah, the fall out of that will suck. I know it did with my mother in law. But the fact that your mother is ignorant about this, or doesn't believe you, or whatever her issue is - that doesn't mean you should have to sacrifice your health and safety for her. I wish there was a way that you could get through to her, but she doesn't sound too receptive to more talking...she already knows all about celiac disease, right? Or, well...I'm assuming that's what she thinks, anyway. ;)

Hopefully, someone will have some good ideas here. I'm kind of out of anything to say. :(

bonnie blue Explorer

I agree with Shauna, you have to do what is best for you. Don't risk your health for anyone, I know I won't. Bring your own food, and enjoy the day, no one wants to be sick during the holidays, I hope everthing works out for you. ;)

GFreeMO Proficient

Thank you all so much. I am going to bring my own food. I love this forum. Everyone is so supportive. It's so nice to talk with others that get it!

YoloGx Rookie

just be careful that she won't be making last minute pies that day....the dust in the air can be killing.

The turkey too needs to be vetted. Baked in an oven that has had pies etc.? Bought with natural flavors shot into it?? avoid avoid I am afraid.

If it were me I would just have my own non gluten turkey day at home with friends who are supportive rather than just not trying like her. This is supposed to be a relaxed day in Thanksgiving... Eventually your extended family will get it if they want to have you over for events like this. Or not. But at least you will be a lot happier and healthier.

Bea

Takala Enthusiast

Your health trumps their feelings.

Bring all the food you intend to consume yourself. It would be easier to make yourself a plate of it up and pack it in a large cooler, along with your desert serving and some snacks. If you are feeling magnanimous, you can also bring some gluten free things for the glutenoids to eat, like a gluten pie, rolls, etc, but don't leave them out without taking your serving first - I guarantee people will cross contaminate them almost instantly. You will also want to bring a roll of those adjustable sized paper towels that you can tear off a piece and lay it down anywhere as a buffer, then toss in the trash, if you will be having to use their kitchen for anything.

Don't let them bully you into getting sick and ruining your holidays. They can either cope and adapt to your bringing your own food, or they can spend the time by themselves. It is one thing to just not understand the whole cross contamination issue, and I can give most people a pass on that, but if they are actively not wanting to learn and are acting out right hostile to the idea that you will eat safe food that you provide yourself, they need to be guided that this sort of behavior is not acceptable.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

You have to tell your mom how much you love her and want to spend the holiday with her (assuming this is indeed the case), and that you will be bringing your own food. You can be very kind and compassionate while still refusing to take "no" for an answer. Setting boundaries never goes over well, but the only way to establish them is to stick to your guns though all her expert attempts to push your buttons. (And she's a-pushing. I can tell from your post.) Your health has to come first if you get that sick from traces of gluten. Skip Thanksgiving with her entirely if that's what it takes to make her realize that you are serious about bringing your food on holidays and hope Christmas goes better.

TPT Explorer

I haven't been diagnosed yet, so I haven't come across this yet. Though I think my family will be supportive. Not to excuse it, but I wonder if it's a generational thing? Meaning, allergies and food intolerances weren't as prevalent or at least as recognized years ago? I wonder if the older generation thinks it's all bunk?

It's still hard to believe your own mom won't be supportive of your health. I hope you don't ever get sick, but if you do, make sure she's around to clean up after you. :unsure:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.