Curious As To What This Was

[revenant]

I'm still trying to figure out some of my childhood symptoms because there were so many, and one has me very curious.

My knees wouldn't be able to buckle, so when I stood my knees would unbuckle and i'd have to catch myself and straighten them out again.

Also, at night I would always do this thing where I would lie on my back before bed, put my arms in the air and try to keep them straight in the air. They would fall to one side almost lifelessly, and I would catch my arm in mid fall, try and put it back straight but instead it would swing around like a pendulum in circles, every few seconds it would fall and hit me in the stomach. Try again. In this way I would also make circles in the air with my arms, but I wasn't able to activate almost any muscles. It's hard to describe the feeling now because I barley remember it... I try now on a gluten free diet and it's impossible for me to do. But it's the same kind of uncontrollable feeling I had in my knees when I stood still. It caused me to stand with my heels together, which earned me the nickname "Flinstone foot" from my father (Apparently the flintones stood like that). I also had trouble speaking and moving my mouth muscles so I would mumble constantly and speak really slowly, almost inaudibly, it drove my mother nuts. Some kind of muscle problem?

Whatever it was, seems to have completely healed without gluten.

[happybfree]

Interesting, the same thing was happening to me - thank G-d not as bad as you describe it though! But it disappeared after just one week off gluten! I would also love to know why. I remember walking and then nearly collapsing to the ground because one of my knees chose to fail and buckle down at that moment.

[GFinDC]

Hi,

It sounds like it could be a nuerological symptom. Celiac can affect the brain, and causes gluten ataxia in some people. Another possible cause would be low B-12 vitamin levels. That is also related to nerve function. And it is also a thing that happens to some celiacs. Some people take sub-lingual B-12 to help get their B-12 levels up. Anyway, it sounds like you are doing something right since your symptoms are better.

Here is a link to series of articles on celiac disease and nuerological affects:

Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease

This thread might be interesting too.

Muscle Twitching Just Diagnosed