Eating Gluten Every Weekend Enough For Testing?

[norahsmommy]

My 2 older kids ages 3 and 6 may also have gluten problems like their baby sister. I noticed it in the baby because right after we started feeding her oatmeal, gerber puffs (made with whole wheat flour) and pasta she started behaving differently and her bm's changed from very soft almost liquid to huge and hard and very painful. No amount of juice or prunes changed it. If anyone wants to know more symptoms or reasons why I came to gluten intolerance conclusion feel free to ask. Anyway, she is totally gluten free now per instructions of the allergist. So I can't have her officially tested for celiac. My home is gluten free but we visit grandparents alot, both sets live in town and the 2 older kids spend weekends away at one or the other's house. Can I have them tested for celiac and it be accurate with only eating gluten during the weekend?

[scarlett77]

Unless the test came back positive I would be inclined to question a negative test. I can't say that eating gluten on the weekends would be enough or not enough. Maybe you should look into genetic testing first? At least you would see if the gene is there.

From the reactions you have described, I wouldn't even bother getting tested unless you need to have the medical diagnosis for something.

[RideAllWays]

I'm pretty sure for an accurate test gluten has to be eaten three times a day for a few weeks prior to testing.

[MacieMay]

My 2 older kids ages 3 and 6 may also have gluten problems like their baby sister. I noticed it in the baby because right after we started feeding her oatmeal, gerber puffs (made with whole wheat flour) and pasta she started behaving differently and her bm's changed from very soft almost liquid to huge and hard and very painful. No amount of juice or prunes changed it. If anyone wants to know more symptoms or reasons why I came to gluten intolerance conclusion feel free to ask. Anyway, she is totally gluten free now per instructions of the allergist. So I can't have her officially tested for celiac. My home is gluten free but we visit grandparents alot, both sets live in town and the 2 older kids spend weekends away at one or the other's house. Can I have them tested for celiac and it be accurate with only eating gluten during the weekend?

Why do you think your older ones are having issues? My gluten-intolerant toddler has two older sisters too. Just wondering..could I be missing something? thanks!!

[norahsmommy]

Why do you think your older ones are having issues? My gluten-intolerant toddler has two older sisters too. Just wondering..could I be missing something? thanks!!

I may just be getting paranoid and they may have nothing wrong with them, however the younger one seems to have a problem and there isnt much doubt. SHe vomits when fed any large amount of gluten (such as a half piece of bread)And has intense stomach pain and very painful foul smelling stool, its white or grey and grainy also when she has had large amounts of gluten. Small amounts (such as contaminated but otherwise gluten free foods) she has painful constipation for days and endless crying. The older 2 are always telling me their stomachs hurt. They are very thin for their ages and my oldest broke her radius and ulna clean in half (think she grew a whole new wrist) from slowly climbing down from a porch swing onto grass, a distance of about 2 ft. I watched her do it. She bent down and went hands first onto the grass and her arm just snapped. It was horrifying. My oldest is 49 inches tall and 40 lbs and my middle child is 37 inches tall and 27 lbs. My oldest is very hyperactive as well. These things may be totally unrelated and they may not have a gluten problem, but since the youngest one does I wonder about the older two.

[MacieMay]

I may just be getting paranoid and they may have nothing wrong with them, however the younger one seems to have a problem and there isnt much doubt. SHe vomits when fed any large amount of gluten (such as a half piece of bread)And has intense stomach pain and very painful foul smelling stool, its white or grey and grainy also when she has had large amounts of gluten. Small amounts (such as contaminated but otherwise gluten free foods) she has painful constipation for days and endless crying. The older 2 are always telling me their stomachs hurt. They are very thin for their ages and my oldest broke her radius and ulna clean in half (think she grew a whole new wrist) from slowly climbing down from a porch swing onto grass, a distance of about 2 ft. I watched her do it. She bent down and went hands first onto the grass and her arm just snapped. It was horrifying. My oldest is 49 inches tall and 40 lbs and my middle child is 37 inches tall and 27 lbs. My oldest is very hyperactive as well. These things may be totally unrelated and they may not have a gluten problem, but since the youngest one does I wonder about the older two.

Is it difficult to have them tested? I would just ask pedi to do the celiac panels. It sounds to me like you have a legit concern.