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Still Having Stomach Symptoms-Help!


applegirl03

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applegirl03 Rookie

Hi. I'm a 25 year old female I was diagnosed with celiac a year ago and have been G.F.for months now. I'm having severe constipation and fecal impactions. I have been to the ER for this more times than I care to remember. I was feeling really good, then went on vacation got food poisoning and have not been the same since. Never had constipation or impactions before. I have burning pain in my gull bladder and also in my upper left side under my ribs. I also have been feeling extremely ill before and during having a bowel movement. I am wondering if anyone else is getting this? I was told by an ER doc it is probably a vaso-vagal type of response. I have a few good days here and there, but mostly sick. I am extremely dizzy when I have stomach pain, or need to have a BM. I feel icky to the point of almost anxious when I have this pain. Went to the Doc and she is running a G.I. Effects Stool profile because she thinks it may be some sort of parasites or something...just wondered if anyone else is having these symptoms and what helps them?


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ravenwoodglass Mentor

What helps me with that type of pain is liquid Pepto Bismal. I'm glad your doctor is running the stool panels. Perhaps that will pinpoint what is going on. What are you typically eating? Are you being real careful about CC? We can become more sensitive to very, very small amounts of gluten after we have been gluten-free for a while. Also have you tried eliminating dairy and soy? It is not unusual for us to have intolerances to those in addition to gluten. For me soy causes severe pain and constipation and gluten severe pain and D.

applegirl03 Rookie

What helps me with that type of pain is liquid Pepto Bismal. I'm glad your doctor is running the stool panels. Perhaps that will pinpoint what is going on. What are you typically eating? Are you being real careful about CC? We can become more sensitive to very, very small amounts of gluten after we have been gluten-free for a while. Also have you tried eliminating dairy and soy? It is not unusual for us to have intolerances to those in addition to gluten. For me soy causes severe pain and constipation and gluten severe pain and D.

Ya I did notice that it gets worse with milk. After eating chex cereal with milk. Last night I drank milk with dinner. I think that might have done me in. I have endomertiosis as well, so I know hormones could have a lot to do with it. I am trying to be careful about CC, and not getting glutened. I'm still somewhat new to this, and still getting the hang of it. Hoping maybe the stool samples show something and we can get this thing knocked out. I have 2 small children and its hard to function with this happening!

GFinDC Veteran

It really is a learning process going gluten-free. Staying away from restaraunts, eating whole foods, and avoiding soy and dairy are good steps to take. Also check your vitamins pills and medicines for gluten and soy and dairy. Use simple spices like salt and pepper or maybe a little garlic. Watch out for flavored coffees and teas, plain is better.

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      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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