Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab

captaincrab55

Recommended Posts

captaincrab55 Collaborator
captaincrab55
Posted

Hi All, I was diagnosed June of 09, and did Good for about 9 months except a few gluten attacks here or there... The next 6 months were very trying with issues like I was eating gluten... The last 3 months I've been very careful not to ingest gluten... My issues are almost as bad as before I was diagnosed except my DH isn't the big problem it was... Keep in mind that I'm taking 25 mg of Dapsone, but still having a few pimples and a little of the itch...

Two weeks ago I decided to get tested with the Enterolab package, but wanted my Health Ins to pay if possible.. It took almost two weeks back and forth with Enterolab and my Ins co with me as the middle man... Late Friday my Ins co gave me a written OK that they would pay 80% of the Enterolab cost.. Great news with False hopes is all I got... Spoke with Enterolab today and started ordering $568 of tests.. Gave them my name and address until I said Maryland... Stop is what I got, they can't do business by mail or UPS in Maryland or NY... Has anyone here had that happen??? I can get the test mailed to another State and mail it back from that State... They can't mail results, but can email them...

Is Enterolab the only Lab that does this type of testing??

On another note, after the first of the year Enterolab will be add corn and other foods to their testing Menu...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Can they use FedEX? Another alternative might be to see if you can find an allergist who will guide you through an elimination diet. Or you could drop the suspect items for a couple of weeks to a month and then challenge them one at a time for a week or so to see if you react.

Lisa Mentor
Lisa
Posted

Interesting? I wonder if complaints were filed in those states or perhaps a commerce violation? Was there an explanation?

I must say $568.00 is an astounding amount of money. :huh:

captaincrab55 Collaborator
captaincrab55
Posted
  • Author

Interesting? I wonder if complaints were filed in those states or perhaps a commerce violation? Was there an explanation?

I must say $568.00 is an astounding amount of money. :huh:

It was my understanding (by phone) that they don't have some type of Business License to do Business with people in MD & NY... They were notified by both States to cease business until they get the license and they don't plan on getting it at this time.. They did tell me how to beat the issue, but I needed to cross State lines.. That being said, now I wonder if my Ins could refuse payment.. That would hurt since I need to pay up-front.. I do have a hearing problem, so don't hold me to that word for word...

Lisa Mentor
Lisa
Posted

It was my understanding (by phone) that they don't have some type of Business License to do Business with people in MD & NY... They were notified by both States to cease business until they get the license and they don't plan on getting it at this time.. They did tell me how to beat the issue, but I needed to cross State lines.. That being said, now I wonder if my Ins could refuse payment.. That would hurt since I need to pay up-front.. I do have a hearing problem, so don't hold me to that word for word...

There are other companies who will do allergen testing, which may be a bit more consistent with an insurance claim. Will check it out.

Lisa Mentor
Lisa
Posted

There are other companies who will do allergen testing, which may be a bit more consistent with an insurance claim. Will check it out.

Found this and it's worth the read:

Open Original Shared Link

captaincrab55 Collaborator
captaincrab55
Posted
  • Author

Can they use FedEX? Another alternative might be to see if you can find an allergist who will guide you through an elimination diet. Or you could drop the suspect items for a couple of weeks to a month and then challenge them one at a time for a week or so to see if you react.

As far as FedEX, Enterolab won't cross State Line in Md with any paper trail, but they will email (go figure)...

As far as an Allergist, I saw one @ Johns Hopkins last February... For the $$$ I spent there and losing a days wage, I could of paid Enterolab full out of pocket.. It took 4 months to get the appointment, I showed up and he didn't want to see me after I filled out why I was there... I had to raise heck to be seen and I was PO-ed @ that point after taking off work.... My wife thought that they were going to get me locked up, but I did get seen... The Doc only considered food to be an allergy issue if it caused a breathing problem and wanted me to see a GI.. All my life Doctors would look at my eyes and say I had allergy and couldn't have a house pet... I was tested for dust, pollen, pets, etc, but no foods... Most issues with what I was tested for had stopped with a gluten-free diet... I got a house dog 1 month after start the gluten-free diet and didn't have any issues.. I've tried the elimination, without any luck... If I found another lab that could do the same testing as Enterlab and in the same network as my Health Plan, my out of pocket would most likely be under $50....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted
  • Author

Found this and it's worth the read:

Open Original Shared Link

Lisa, Some read with blurry eyes.. I'll re-read it in the morning with clear eyes..

Thanks

ravenwoodglass Mentor
ravenwoodglass
Posted

As far as FedEX, Enterolab won't cross State Line in Md with any paper trail, but they will email (go figure)...

As far as an Allergist, I saw one @ Johns Hopkins last February... For the $$$ I spent there and losing a days wage, I could of paid Enterolab full out of pocket.. It took 4 months to get the appointment, I showed up and he didn't want to see me after I filled out why I was there... I had to raise heck to be seen and I was PO-ed @ that point after taking off work.... My wife thought that they were going to get me locked up, but I did get seen... The Doc only considered food to be an allergy issue if it caused a breathing problem and wanted me to see a GI.. All my life Doctors would look at my eyes and say I had allergy and couldn't have a house pet... I was tested for dust, pollen, pets, etc, but no foods... Most issues with what I was tested for had stopped with a gluten-free diet... I got a house dog 1 month after start the gluten-free diet and didn't have any issues.. I've tried the elimination, without any luck... If I found another lab that could do the same testing as Enterlab and in the same network as my Health Plan, my out of pocket would most likely be under $50....

When we are trying to see an allergist we really need to ask over the phone if they deal with just allergies, like the doctor you saw, or if they will deal with intolerances which are different. If you try the allergist route again ask before making the appointment if they will guide people through an elimination diet. I had to call at least 10 before I found one.

Do be sure to keep in mind that most allergy tests are just that, allergy tests, and they will not pinpoint an intolerance. A wheat, rye or barley allergy is quite different from what we deal with and blood testing for allergies won't pick up the intolerance reaction.

captaincrab55 Collaborator
captaincrab55
Posted
  • Author

When we are trying to see an allergist we really need to ask over the phone if they deal with just allergies, like the doctor you saw, or if they will deal with intolerances which are different.

My Doctor sent me there telling me that this Allergist was one of the best in his field.. There wasn't any chance to ask a question... It took several days of calling just to leave a message.. They called back when I wasn't available, and my wife was able to make the first available appointment for me (4 months away).. It was almost another month before the next available one... I only got my appointment when I did because of a cancellation... Yes or No, do you want this appointment, if yes forms will be sent out... If forms weren't returned in a short window, the appointment was canceled.. Opportunity to ask questions wasn't an option @ that Allergist... That won't happen again...

I'm now wondering why Enterolab was stopped from doing business in Md & NY ?? Anybody here ever run into this before?? Anybody in Md or NY ever get tested before Enterolab was ordered to cease business in those States??

ravenwoodglass Mentor
ravenwoodglass
Posted

Anybody in Md or NY ever get tested before Enterolab was ordered to cease business in those States??

I did. I live in NY. NY is one of the most expensive states to live in the Union.

You pay taxes and fees for everything but breathing and I am sure soon they will figure out a way to charge for that. And those taxes and fees are very, very high.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    3. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,823
    • Most Online (within 30 mins)
      7,748
    Kayaker
    Newest Member
    Kayaker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.