Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Bloodtest

kris1981

Recommended Posts

kris1981 Newbie
kris1981
Posted

Hello,

Well since years i'm suffering with my bowels. And 7 years ago i had a colonscopy and a bloodtest.

But a week ago i went back to my doc to have full bloodtest for celiac also.

They found i have deficiency for :

Iron

B12

Folic Acid

Vitamin D3

My Red blood cells where also low.

Well my doc said i don't have to worry much and it's my ibs that causes everything.

I have these symptoms

Abdominal Pain

Gas

Diarrhea not daily

Mood Swings

Acne

Nail Fungal since a little while

Muscle Pain

Bad Headeaches almost daily

I did also the food intolerance test at Yorktest but all negative. Can IBS causes all this.

My B12 was very low when i saw the report of my doc. It's from the first test 7 years ago that the range is between 80 and 110pg/ml now.

Also my d3 was very low 16.

My IGA was : 0.4 U/mL

I think i have some food intolerances because i cannot tolerate beer.

For my iron deficiency i tried liquid ones and also tablets but both gave me stomach upset and severe diarrhea. I have this to with other vitamins.

But with liquid folic acid, b12 i don't have any problem at all.

Well i don't what can be the cause anymore. I personally don't think that ibs is causing anemia and vitamin deficiency.

Kind Regards

Kris

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

Normal ranges for IGA are 80-350. With .4, you are IGA deficient, which means you have to throw out all the other celiac tests, as they will not be accurate with IGA deficiency. You may want to consider having an endoscopy to check for celiac damage. But, endo's are not 100% accurate, as there is something like 50 ft or more to check and it can be missed.

IMHO, the best indicator is a trial gluten free diet to see if it relieves your symptoms. There's lots and lots of good info and support here, so keep asking questions until you have your answer. I think with your deficiencies and symptoms, gluten could very likely be your problem.

kris1981 Newbie
kris1981
Posted
  • Author

Well thanks for the answer i will try a gluten free diet because i think thats the cause of all these deficiencies.

Well my doc was not much helpfull i told him al my symptoms and what he told me was like it's in my head.

I know from my mom when i was a little child i could not tolerate gluten and i had a gluten free diet for one year.

Could celiac gives you feeling like having the flu and so tired some days. Some days i don't have much energy and i have mood swings.

What i know that triggers my symptoms alot are Pasta and Ice Cream.

GFinDC Veteran
GFinDC
Posted

Well thanks for the answer i will try a gluten free diet because i think thats the cause of all these deficiencies.

Well my doc was not much helpfull i told him al my symptoms and what he told me was like it's in my head.

I know from my mom when i was a little child i could not tolerate gluten and i had a gluten free diet for one year.

Could celiac gives you feeling like having the flu and so tired some days. Some days i don't have much energy and i have mood swings.

What i know that triggers my symptoms alot are Pasta and Ice Cream.

It does sound like you are not absorbing vitamins well. Celiac can damage the villi lining the small intestine. Those villi are very important in the absorption of nutrients. When they are damaged people often have vitamin deficiencies.

There are a ton of symptoms that celiacs can get. Being tired or feeling fluey are definitely possible symptoms.

Wolicki Enthusiast
Wolicki
Posted

Well thanks for the answer i will try a gluten free diet because i think thats the cause of all these deficiencies.

Well my doc was not much helpfull i told him al my symptoms and what he told me was like it's in my head.

I know from my mom when i was a little child i could not tolerate gluten and i had a gluten free diet for one year.

Could celiac gives you feeling like having the flu and so tired some days. Some days i don't have much energy and i have mood swings.

What i know that triggers my symptoms alot are Pasta and Ice Cream.

I felt like I had the flu on and off for 10 years. Intermitent fevers, aches and pains and a whole lot more.

kris1981 Newbie
kris1981
Posted
  • Author

Well i started today on a gluten free diet and i found a webshop with good gluten free breads and other stuff.

I will give it a try for several months because i think this is my cause.

Feeling more bad than now isn't possible and i will see if i have relief.

Is alcohol forbidden also on Gluten free ? I'm from Belgium and you know we have so many beers and when i go out with friends i see all that beer :)

sb2178 Enthusiast
sb2178
Posted

It does sound like it, but with the fevers you may want to be sure that your doc checks you out for other autoimmune things like lupus too.

Do you have the reference range for the IgA? The 0.4 is likely a different test range than we're used to seeing here.

And, most beer is forbidden, but wines are generally safe as are many liquors.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Well i started today on a gluten free diet and i found a webshop with good gluten free breads and other stuff.

I will give it a try for several months because i think this is my cause.

Feeling more bad than now isn't possible and i will see if i have relief.

Is alcohol forbidden also on Gluten free ? I'm from Belgium and you know we have so many beers and when i go out with friends i see all that beer :)

Most wine is safe, tequila, potato vodka, corn bourbon, gluten-free beer also. There is a dark beer from Belgium called Greens and a light beer from America called Redbridge, and several others also. Greens is kinda expensive here in America but might be affordable there. Lucky you! :D

Keeping your diet simple is a good way to figure out what is going on. Not eating processed foods with lots of preservative and food colorings and additives is helpful. Of course they also add gluten to a lot of processed foods too. Dang it! :D

kris1981 Newbie
kris1981
Posted
  • Author

Well the 0.4 is U/mL => Anti-transglutaminase

Thats all i have from the test for the IGA.

I think you are using in the us another value for IGA than u/ml but i don't know to convert it.

Thanks GFINDC for the tips. I will give it a try :)

kris1981 Newbie
kris1981
Posted
  • Author

i have one more question can IBS causes vitamin deficiency because thats what my doc is telling me ?

TooManyHats Rookie
TooManyHats
Posted

This can be missed with an endoscopy? I was told it was the gold standard. Oh, please don't tell me that! My doc said there was a 10% false negative with the blood work so she wanted to do the endo.

Darn210 Enthusiast
Darn210
Posted

I'm glad to hear you are going to give it a several months . . . some people see a big difference within days . . . some people take longer. Any input from your mom on how you did when you were gluten free? Why did you go back on it? (It was common to think that you could outgrow it.)

Is alcohol forbidden also on Gluten free ? I'm from Belgium and you know we have so many beers and when i go out with friends i see all that beer :)

I've switched to hard cider. I was not a big beer drinker. I have tried the Redbridge and it was OK . . . but I just tried hard cider and I have found my new preference whether I stay gluten free or not (I'm doing a trial diet myself).

kris1981 Newbie
kris1981
Posted
  • Author

Darn yes this was the reason why my mom puts me back on gluten because the doc told her it will get better when getting older. Well i was better for many years but last years were difficult.

Toomanyhats i had an endo 7 years ago but i will ask if they checked for celiac. They did it because i had that time alot of stomach upset and my doc was thinking it was gastritis.

Now i get always the same stories from my doc and internist that it's ibs and thats the cause of all the vitamin deficiencies.

My doc gaved me already in the past effexor and xanax because my diarrhea is making me anxious many times. But xanax helped a bit and effexor did nothing for me. Also i don't like that kind of medicines because they don't treat the cause.

GFinDC Veteran
GFinDC
Posted

This can be missed with an endoscopy? I was told it was the gold standard. Oh, please don't tell me that! My doc said there was a 10% false negative with the blood work so she wanted to do the endo.

Yes, there can be false negatives on endoscopy. There is a lot of small intestine in there but they can only reach a small portion of it with an endoscopy. So if a damaged portion is out of reach then there is no way to biopsy it. Or see that it exists even. Except with a pill cam, those can see the whole length of the intestines. But,as far as I know, pill cams can't do biopsy, so it is a visual record only.

GFinDC Veteran
GFinDC
Posted

i have one more question can IBS causes vitamin deficiency because thats what my doc is telling me ?

IBS (I Be Stumped) means the doc doesn't know what's causing the problem. Since the doc doesn't know what the cause is, he is basically saying "something unknown" can cause vitamin deficiencies.

Well, there is also something known that can cause malabsorption and vitamin deficiencies. It's called celiac disease. It seems more reasonable IMHO to assume a known cause of malabsorption is the culprit (celiac) than a nebulous undefined syndrome that nobody can tell you much of anything definite about. This is assuming you respond well to the diet. If the gluten-free diet helps your digestion then really they can call the cause man of cheese disease for all it matters. :D The treatment is still to stay gluten-free regardless of the name.

I know it is nice to have a doctor say it definitely is this or that. But the reality is that some celiacs never test positive on any tests, but still are damaged by gluten. The testing for celiac is not 100% perfect yet and may never be.

Sometimes people use the term gluten intolerance to denote the case where there is no evidence of villi destruction but there are symptoms that resolve on the gluten-free diet. For instance some people don't get GI symptoms at all but get brain/nuero affects or joint pain or other symptoms. Since their symptoms are improved by going gluten-free it is obvious gluten is causing the problem, even though their gut doesn't show villi damage. So they could be called gluten intolerant in that case. It could be that medical science just hasn't gotten to the point of seeing the gut damage in these people.

kris1981 Newbie
kris1981
Posted
  • Author

Thanks for your nice response Gfindc :) Well you are right it's always nice if a doc tells you what you have.

But i will stay on a Gluten Free Diet because i believe this is the cause of all my problems.

I'm now a few days gluten free and i see that the acne on my face is going away. I had this little acne for several years and nothing was helping.

Happy Xmas everyone and thanks for all the good support :) I finally found the answers i needed.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.