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Finally Getting Somewhere!

Ox on the Roof

By Ox on the Roof
in Coping with Celiac Disease

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Ox on the Roof Apprentice
Ox on the Roof
Posted

So, I don't have an official diagnosis, and my IgG and IgA blood work was negative. But why else would I be doing so well when I am cooking gluten-free at home - for a month now - and then get sick every time I eat out and make "educated guesses"?

After reading a bunch of stuff about McDonald's fries, I decided to give them a go. Within an hour, I started with the upper GI symptoms. I sound like Buddy the Elf after he drank the soda! Pepto Bismol is my friend. (A big THANKS to whoever gave me that suggestion!) Of course, I also had the Bacon Ranch salad with no chicken. So I am not sure exactly what the culprit was, but it was definitely something I ate.

Official diagnosis or no, gluten intolerance or Celiac, WHATEVER...I cannot eat gluten! It's a good feeling to finally get a clue as to what's been wrong with me for almost two years. Now, if I can just learn how to eat out without getting sick!

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mushroom Proficient
mushroom
Posted

Well, can you try not eating out for a while, until you master the diet and learn all the hidden sources of gluten first? Then you can start figuring out how the restaurants can cross-contaminate you :P

GFinDC Veteran
GFinDC
Posted

Sounds like you are getting somewhere with your diet changes at home. It doesn't matter a whole lot what it's called, celiac or gluten intolerance, if it makes you sick then staying away from it is the right thing to do. Congrats on getting some food traps figured out! :)

Skylark Collaborator
Skylark
Posted

I've given up on making educated guesses eating out. Either the restaurant has a gluten-free menu or I don't go there.

Ox on the Roof Apprentice
Ox on the Roof
Posted
  • Author

mushroom, I am starting to think that's the best way to go. My family usually eats out once a week with my in-laws. It's like Russian roulette! My family is very supportive, but I've been sick for so long that I hate imposing on them. But my new thought is that it isn't imposing on ANYONE to just have something to drink and maybe a plain baked potato, then eat when I get home.

gluten-free - thanks! It's WONDERFUL to feel better! Today marks one month gluten-free, and after tomorrow I will have survived the two biggest holidays (Thanksgiving was day one).

Skylark - I hear ya! With McD's, well...I don't even like that place, but they have an indoor playground, which is nice for my kids when it's freezing outside. I checked their website before I left and thought I was doing good, but my first bite of French Fry tasted weird to me. After about six fries, I realized that they tasted like McNuggets! I think they were fried together. At least it only lasted that night.

tea-and-crumpets Explorer
tea-and-crumpets
Posted

I've given up on making educated guesses eating out. Either the restaurant has a gluten-free menu or I don't go there.

I'm pretty much the same way. I have found that I trust chains (PF Changs, Biaggi's) more than I do local places, though -- I ate off the gluten free menu at a local place and got really sick. I feel like chains are more afraid of legal action so they really train their staff. I might be crazy, but it has worked for me so far.

Juliebove Rising Star
Juliebove
Posted

We do eat out a lot, but... We eat at the same places. We have food allergies, not celiac. We try to find places that cook the food from scratch (for the most part anyway). We tell them of our food allergies and they cook special meals for us. Often we order side dishes that we know are safe (except perhaps for cross contamination) such as canned or fresh fruit, bacon, cottage cheese, Hormel chili (not scratch, but safe) or in the case of a place like McDonalds, only the prepackaged items like the apple slices.

We do also eat at places with gluten-free menus.

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    • knitty kitty
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    • trents
      Accuracy of testing concerns

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      Accuracy of testing concerns

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      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
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