Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Roanoke Va Habitual Gluten Offender


Super Gluten Man

Recommended Posts

Super Gluten Man Newbie

Hi, since I was reading info on this site for the last couple hours I thought I would say hi. Any SW Virginians out there? Was Buena Vista the school in the other VA post? Ok I have been diagnosed for 2 years, the first 2-4 months total denial or action taken on my part. Then after reading this site about it being all or nothing I quit all gluten and lost 20 to 30 pounds. I was 6'4" at 190 so this wasn't a good thing. Started discovering food that I could eat and gained most of it back. Found Red Bridge beer from anheiser bush but its $9 a six-pack. Found rum to hard to control. Started cheating with my kids home made cup cakes, then some pizza, donuts at work were hard to say no to, on and on.....till...yes another flare up in my lower abdomen, a little blood and a lot of pain. Started X-Mas afternoon. So I said "I will never eat gluten again" (again). There is a lot of stuff on this web site to make you stay off it. Like cancer, sleep problems, thyroid problems, .....Basically a shorter life span. Oh yea I was suppose to take some supplements too (iron for one). I thought I was always just being lazy but now it really looks like my lack of getting nutrients is my problem (like Iron)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I'm in Roanoke.

richard

  • 4 months later...
agrabler Newbie

Hi, since I was reading info on this site for the last couple hours I thought I would say hi. Any SW Virginians out there? Was Buena Vista the school in the other VA post? Ok I have been diagnosed for 2 years, the first 2-4 months total denial or action taken on my part. Then after reading this site about it being all or nothing I quit all gluten and lost 20 to 30 pounds. I was 6'4" at 190 so this wasn't a good thing. Started discovering food that I could eat and gained most of it back. Found Red Bridge beer from anheiser bush but its $9 a six-pack. Found rum to hard to control. Started cheating with my kids home made cup cakes, then some pizza, donuts at work were hard to say no to, on and on.....till...yes another flare up in my lower abdomen, a little blood and a lot of pain. Started X-Mas afternoon. So I said "I will never eat gluten again" (again). There is a lot of stuff on this web site to make you stay off it. Like cancer, sleep problems, thyroid problems, .....Basically a shorter life span. Oh yea I was suppose to take some supplements too (iron for one). I thought I was always just being lazy but now it really looks like my lack of getting nutrients is my problem (like Iron)

lovegrov Collaborator

Hi Amanda,

I live in the southwest part of Roanoke. BTW, just found out that the Co-op on Grandin does some gluten-free baking now.

richard

agrabler Newbie

Hi Amanda,

I live in the southwest part of Roanoke. BTW, just found out that the Co-op on Grandin does some gluten-free baking now.

richard

My parents live in southwest Roanoke too, so I'm definitely familiar with the area! I love the Co-Op. I haven't sampled their baking though, because I am very sensitive to the smallest amount of gluten. Knowing that they cook regular gluteny products there as well is too risky with the way flour gets in the air. I even get sick if I drink coffee at Dunkin Donuts because of how the flour particles get all over everything like the cups. :(

Not that I have any financial resources to do so, but I would love to open up a small gluten-free coffee-shop/cafe/bookstore!

lovegrov Collaborator

I'm not as sensitive as you. I can't tell you their exact precautions, but I know that one of the long-timers there, Cherie, has celiac, so she would know an approximate danger level. She's not the baker, but I imagine she was involved in setting this up.

We're fairly near PH.

richard

agrabler Newbie

I'm not as sensitive as you. I can't tell you their exact precautions, but I know that one of the long-timers there, Cherie, has celiac, so she would know an approximate danger level. She's not the baker, but I imagine she was involved in setting this up.

We're fairly near PH.

richard

I spoke with Cherie, once, I believe. Nice lady.

I wrote to the co-op and they told me what they do. I decided I couldn't risk it. I'm finally able to eat things I couldn't eat for years (like onions, garlic, other spicy foods), and don't want to lose that again. We almost always stop by the Co-Op when we're in Roanoke though, to purchase ingredients or foods we can't get in Abingdon and/or Earth Fare over in Johnson City, TN.

I know the PH area, more or less. I have a friend that lives close enough to PH to walk to their track when the school isn't using it. It's a pretty area over there. My parents are closer to CS Middle and Bent Mountain, but not far. When I'm up there, it only takes me a few minutes to get to my friend's house.

I really wish there was a Wegman's in reasonable driving distance. We were in PA last year on vacation, and the Wegman's near Scranton was just a treasure trove of gluten-free goodness. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    2. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    3. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    5. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.