Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tired And Frustrated With Food


Guest bwacs

Recommended Posts

Guest bwacs

Are there any of you out there that get frustrated and tired of dealing with food all the time and having to think about what you can and cannot fix and eat. I've had Celiac for about 9 years six years undiagnosed with anemia and then with capsular endoscopy viola Celiac.. Simply there are time that I just hate food-and subsequently I go for the easy stuff that has sugar and I drink alot of coffee. Would appreciate some input..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shezatrip Apprentice

My heart goes out to you! I am new to this forum with Fibro/undiagnosed celiac..

however testing foods.

I get so SICK of rotating foods, trying this..not that..bending over in pain...

exhaustion...

etc...Now, I am trying to do rotation diet for my son with milk.

All i can say is..."AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAH!!!"

I am with you!!!!!!!!!!!

I SERIOUSLY could go raw food easily. Smoothies, salads/DONE! However, I have

a child and a hubby to think of and it complicates it.

I have no clue yet if mine is gluten/dairy...both....neither...or something

odd like apples! LOL...but something is KILLING me, and has been for years.

So, you are not alone! As I try to make lunches for my son with no dairy..

and then add things back in. I don't know what works, and what is not.

It is one huge pot of CONFUSION soup!

So, I feel your pain and I am exhausted from it all too.

BTW, how did the pill cam work? was it easy to swallow?

May need to do that.

Hang in there!!!!

Skylark Collaborator

Are there any of you out there that get frustrated and tired of dealing with food all the time and having to think about what you can and cannot fix and eat. I've had Celiac for about 9 years six years undiagnosed with anemia and then with capsular endoscopy viola Celiac.. Simply there are time that I just hate food-and subsequently I go for the easy stuff that has sugar and I drink alot of coffee. Would appreciate some input..

I've been at this for over five years. I know what you mean, although for me it's frustrated about eating out. I hate having to think about where there is a place with a gluten-free menu or feeling like a scene from When Harry Met Sally.

Eating at home and shopping is just habit at this point. If I'm tired/lazy I grab produce, cheese, peanut butter, potatoes, that kind of thing. I never have to bother with labels in the produce section and can shop "normally", whatever that means. Sugar is bad news for me, so I tend to avoid it.

Juliebove Rising Star

Yes, I do get frustrated. Like today when I saw a new (to me anyway) frozen food that looked safe. But a scan of the ingredients showed that it contained wheat.

Or when the other mothers tell me to send my daughter to Subway or McDonalds or the teriyaki place for dinner when she is at the dance studio. I wish! Would make it sooo much easier.

I also worry about what's going to happen when she moved out on her own. Some of the gluten-free foods are soooo expensive!

MelindaLee Contributor

I've only been gluten-free since August, and most of it is getting to be 2nd nature for me, but some days I do get frustrated. I love the Food Network cooking shows. On bad days I sit there and think, "can't eat that, or that, or that...". Or, if I smell something someone made at work that smells sooo good, but I know I can't eat. Most days are not bad days and I have found ways around most of my favorite foods and gotten used to gluten-free breads, so usually "Life is Good"....but there are days! :(:rolleyes:

Jestgar Rising Star

Or, if I smell something someone made at work that smells sooo good, but I know I can't eat.

You could always strive to be the person at work who causes envy with their lunch...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    3. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    4. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    5. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Thanks for the list too makes me realise why I still get symptoms after cutting gluten , all that reading has just made sense to why I'm still struggling , thankyou Scott Adams very insightful , I've been baking to and there is xanthum gum in the flour , I understand now why I still have issues with that too, and ive had to cut dairy also , i had a terrible flare few months ago and my throat also was very irritable and I had sinuses issues all makes sence 👍
    • nanny marley
      Thankyou yes I read up on it beforehand , because or my trapped nerve when I have a bowel flare up it's impossible to keep still  which I will have to do for the MRI ,and it's so painful , and I know if this is what I'm thinking it to be it will cause me terrible issues , sometimes I get to the point where I just want to diagnose myself and act accordingly, because I've been at this year's , and I clearly have all the symptoms , it's so frustrating when you have all this going in and still feel no further ahead 😳
    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.