Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changes In Reaction?


bk-63

Recommended Posts

bk-63 Newbie

I was just wondering if anyone else has experienced changes in their reaction to gluten. I've been gluten free for a little over a year after finding out I had celiac, and while my reaction to gluten is almost always the same, it isn't always. Is this normal to have some inconsistency with reactions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Well, first of all you do have to be sure that what you are reacting to is gluten, but if you are positive you have ingested gluten and the reaction has changed, yes that it possible. I used not to ever feel nauseous, it was always diarrhea and bloating. Now my main reaction is nausea, with some change in stool also and I am sorry to admit that I pretty much always have bloating no matter what :unsure:

Roda Rising Star

I have had gluten reaction changes. Initally I presented with horrible heartburn and constipation. I was fine until Jan. 2010 and for almost 8 months last year I was having horrible bloating, heartburn and extreme diarrhea(was afraid to leave the house for fear of accidents). I tried eliminated many things, but until I eliminated all of the processed foods(gluen free mainstream products) and processed labled gluten free foods, did I see improvement. I also during that time started on creon since I was having such severe diarrhea and malabsorption issues. It helped a lot and if I didn't take it I was back to the big D. I also had a high positive Igg gliadin antibody and my doc said I was getting gluten inadvertently in my diet. He wanted to put me on steroids but I told him what I wanted to try first. After about three months of doing this I was able to stop the creon and I don't have the D anymore or heartburn. I do still have to watch the fat since I have a suboptimal functioning gallbladder and the the 8 months of symptoms didn't do it any good. I have discovered thru this that I can not tolerate Bob's Red Mill products because of the cc from their gluten free oats. I knew I couldn't tolerate gluten free oats before this but hadn't considered the cc until I did the elimination. I am hoping to get my blood work rechecked soon. During all of this I think it messed with my absorption of my thyroid meds and may have further damaged my thyroid. I've been gaining weight and I am more fatigued than usual, so I've got to get in with my endocrinologist for an eval.

cassP Contributor

oh yes! my reactions changed all the time when i was still eating gluten!!!! and towards the end when i had my "last gluten meal" - i had severe nausea & tachycardia- it was CRAZY... i had had heart palpitations or mild tachycardia plus sugar dropping & dizzyness before- but this last meal- my heart rate shot up to 160- i was mesmerized, and actually happy to see how strongly my body NEVER wanted gluten again!

and unfortunately- like stated above- there are ADDITIONAL food intolerances for some of us- that u may need to investigate for yourself.. i wish Gluten was the ONLY thing that hurt my insides, but alas it's not :(

AzizaRivers Apprentice

My reactions now do vary a little. I think for me, it depends on the amount I'm getting. With CC that is small enough I can't identify how it happened, it'll be one or two shots of D in a few hours, plus strong but dull gallbladder pain at the same time. Something bigger (say, a sneak of a fingerfull of cookie dough that I will NEVER do again) will result in half a day of can't-leave-the-house D. And a massive mistake, deliberately eating a helping of something I can't have, would result in full-blown D and vomiting for two days.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Sandofthesun
    Newest Member
    Sandofthesun
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.