Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Fungal Infection


applegirl03

Recommended Posts

applegirl03 Rookie

Okay, after about 6 months of unidentified symptoms and countless trips to the Doctor, I have finally got an answer...

I have been gluten free for 7 months now, diagnosed with celiac for a year...After a bunch of tests/er visits/ CT Scans/ pain/etc....my one DOc actually did a stool test which showed I have a massive fungal infection in my digestive system...I was wondering if anyone else has had this? She told me it was fairly common with Celiac patients. So I am on 100mg of Diflucan for 1 month, then natural supplements and pre/pro biotics for life after...as of now I am one week into the medication and I feel like death. I was warned this was the "die-off" effect of the yeast infection. My Doc also told me when the infection starts to die it releases an endotoxin that hits your blood stream and actually makes your symptoms worse for around 2 weeks. I am having all the symptoms I was before (fatigue, pain, constipation, headache, anxiety, just generally like I've been hit by a train) only on a larger scale....has anyone gone through this? Anything I can do to help ease the pain? How long did this last for others? Just wanted to ask if anyone else out there was ever as miserable as I am right now? lol...plus I accidently glutened myself this afternoon, which is just adding salt to the wound...If anyone has any input or advice I would very much appreciate it! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beefree11 Newbie

Hi applegirl. Sorry you are going thru this, as if the gluten issue isn't enough to deal with, huh?

I am not sure about the fungal infection. My dd was told she tested (stool sample) positive for parasitic infection (I swear was from a cruise she was on <_< ). She was given a probiotic for parasites. The house smelled like a garlic factory for awhile there. (Summer/fall when it's hot and humid! ugh) We are not sure if she is all clear, yet. She is between insurers, so she may need to be retested. But they are difficult to get rid of.

Has any testing results been able to name the actual fungus you are dealing with? Are you off of all carbs and sugars?

I suppose all gluten sufferers will be more susceptible to ailments of all types having a compromised immune system. Is it that your body is so busy fighting off the food allergy believing THOSE proteins to be the enemy to fight while leaving the door open for all types of baddies? Do you take anything to build immunity during the treatment, or all the time, just in case?

We have been taking enzymes and probiotics for years now. Digestive problems have been the standard for me for so long.

Good luck in fighting that thing and hope you get better soon!

amtazim Newbie

My son had a similar problem....they suggested taking charcoal. It makes sense if you think about it. Charcoal is used to help absorb the die off toxins. You can find it at any drug store in capsule form. Good luck!

Wolicki Enthusiast

I had a really nasty, full GI fungal infection prior to being diagnosed with celiac. I had to take the diflucam three different times for a total of 4 months. I can't really say if I was worse on or off, because I was still so sick from undiagnosed celiac. I am on probiotics for life, and you should probably be on a no carb/sugar diet to help facilitate healing. Hang in there, it will get better!

burdee Enthusiast

Okay, after about 6 months of unidentified symptoms and countless trips to the Doctor, I have finally got an answer...

I have been gluten free for 7 months now, diagnosed with celiac for a year...After a bunch of tests/er visits/ CT Scans/ pain/etc....my one DOc actually did a stool test which showed I have a massive fungal infection in my digestive system...I was wondering if anyone else has had this? She told me it was fairly common with Celiac patients. So I am on 100mg of Diflucan for 1 month, then natural supplements and pre/pro biotics for life after...as of now I am one week into the medication and I feel like death. I was warned this was the "die-off" effect of the yeast infection. My Doc also told me when the infection starts to die it releases an endotoxin that hits your blood stream and actually makes your symptoms worse for around 2 weeks. I am having all the symptoms I was before (fatigue, pain, constipation, headache, anxiety, just generally like I've been hit by a train) only on a larger scale....has anyone gone through this? Anything I can do to help ease the pain? How long did this last for others? Just wanted to ask if anyone else out there was ever as miserable as I am right now? lol...plus I accidently glutened myself this afternoon, which is just adding salt to the wound...If anyone has any input or advice I would very much appreciate it! :)

I was diagnosed with candida (fungus infection) by a Metametrix Lab microbial profile stool test in 2009. My doc prescribed nystatin (2 capsules 3x daily with meals) for 2 months. I did NOT have any 'die off' symptoms, but I did have initial side effects of nystatin (nausea and gas) for about 3 days until my body adjusted. I've taken at least 6 more stool tests after my nystatin treatment. All subsequent stool tests were free of candida. So I know the nystatin worked.

My doc chose nystatin, because it does not affect the liver or other organs, like difulcan and other stronger antifungal meds. So I didn't get really bad side effects during my candida treatment. I also ate my normal diet free of gluten and my diagnosed allergens (dairy, soy, eggs, cane sugar, vanilla and nutmeg). I didn't follow a restricted carb, yeasts, grains or moldy foods diet recommended by many 'candida' sites. Nevertheless my nystatin only treatment eliminated my candida infection.

I got other kinds of gastro infections after that (3 more bacterial and a parasitic infection), but no more fungal or candida infections. However, my last stool test results (9/2010) showed I was free of all bad gut bugs. I continue to take high dose probiotics (100 billion live cells daily).

SUE

WheatChef Apprentice

This is a severely common thing in the celiac community. It's a result of two common factors. The first is that as a celiac you're at a huge risk of having an unbalanced gut microbe population. Without a healthy balance of the right kinds of gut bacteria it's easy for other things to take hold in there. The second factor is that many gluten-free people end up overindulging on carbs during the transition process. Many of those gluten-free specialty products are almost pure sugar and fungi live off of the sugar you ingest and the sugar in your blood. Consistently high amounts of fungal food leads to high infections of fungi.

I kept having on and off problems with fungal infections until I went ketogenic-paleo and soon after starting that had some pretty big die off symptoms. Take this time to get plenty of rest, do plenty of stretches and drink A LOT of water. This release of toxins is really taxing only our body so the more things you can do to help your body flush out the excess the better. I know my ears were somewhat bad along with a few other areas with traditionally low circulation, manually moving/bending/rubbing them really helped clear things up.

applegirl03 Rookie

Thanks everyone for the suggestions I really appreciate it!

My doc said it was just a severe fungal infection and I'm about 11 days into a 1 month treatment of Diflucan...I also did the MetaMetrix stool profile test and thats how I found out what had been making me sick for over 6 months...the "die off" seems to be a little bit better. I had a 3 day migraine that had me puking and almost in the hospital. My chief complaint with all of this is that I am still very constipated and having trouble going to the bathroom. I really hope that changes after the Diflucan is finished. My Doc also ordered some supplements and pre/pro biotics to be taken for life after the diflucan is finished.

I would say a big thing I am worried about is that since gluten is out of the picture I have been craving sweets and chocolate especially. My doc says if I want to eat a piece of chocolate I am going to have to take this one supplement before I eat it and after to inhibit the growth of yeast from the sugar...I didnt mention to her that I wouldnt just eat one piece, I would probably eat 15. SO I guess I need to cut down the sugar! lol....

I really appreciate all the responses to my post, it helps to know there are people out there who have gone through this as well. It hard to see the end when your still stuck in the middle so the suggestions are very much appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.