Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation/diarrhea

BamBam

Recommended Posts

BamBam Community Regular
BamBam
Posted

Do you think after a certain amount of time being gluten free, that a body can become more regular? I get tired of being "un-regular" for so long. Just wondering.

BamBam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

I think for most improvement comes after being gluten-free for a while. Although some notice immediate improvement. It took me a while to notice... How long have you been gluten-free for?

jenvan Collaborator
jenvan
Posted

Just looked at your signature :) So you've been strictly gluten-free since August of last year?

  • 2 weeks later...
BamBam Community Regular
BamBam
Posted
  • Author

Hi Jenvan

I have been, I would say a good 95% gluten free. I've had a few slip ups with a couple of things. When I have absolutely no gluten, I feel absolutely wonderful, mind, body and soul, but a little bit sneaks in and it just wreaks havoc with my mind, body and soul. I am getting better and better at it all the time.

Can you suggest some shampoos and conditioners that are gluten free. I have access to a Wal-Mart and an Albertsons Grocery Store.

Thanks

BamBam

KaitiUSA Enthusiast
KaitiUSA
Posted

Yep, that little bit can just cause your body to go all out of wack.

As far as shampoos/hairspray/conditioners/bar soaps-I use Dove. Dove has a policy like Kraft does and will not hide anything on labels. I know some people on here use some different brands though.

Softsoap has liquid soap that is gluten free

Also, make sure makeups are gluten free(especially lipstick) The whole Bare Escentuals line is gluten free

jenvan Collaborator
jenvan
Posted

I switched to Bare Escentuals lipsticks/gloss after diagnosis--they are great! Benefit says their lipsticks are gluten-free too. Pantene is gluten-free, and suave is mostly gluten-free--look at their label, they will list gluten ingredients if present. I used to use estee lotions, but switched to neutrogena. They have a lot of gluten-free products. Go here to see their gluten-free list: Open Original Shared Link Clearsil's total control and original blue line are both gluten-free. I use their face washes. Products can be hard. It took me a long time to weed through my lipstick and lotions. And I love makeup and products, so I had to part with a lot of stuff--think I threw away like 15 tubes of lipstick !! Good luck--your work will pay off!

Carriefaith Enthusiast
Carriefaith
Posted

If everything is gluten-free and uncontaminated you may notice an improvement. I didn't start to notice hudge GI improvements until 10-11 months into the diet. But this only only after I had re-evaluted my diet and found that I was eating gluten-free Humpty Dumpty corn chips produced on the same line as gluten chips. Once I quit the chips I got better. I have also reacted to suncreen, so make sure you check that as well, Banana boat is fine.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BamBam Community Regular
BamBam
Posted
  • Author

Carriefaith and GenVan and KaitiUSA

What symptoms do you get if you accidently eat gluten? I know it is different for all of us.

BamBam

Carriefaith Enthusiast
Carriefaith
Posted

I have only had gluten through contamination or accidents since going gluten-free. When I get contaminated I'll have GI trouble (gas, bloating, D), fatigue, lack of energy, brain fog, dizziness, mild-severe upper abdominal pain, and just recently dh (Dermatitis Herpetiformis).

KaitiUSA Enthusiast
KaitiUSA
Posted

When I get glutened I get nausea, anxiety, fatigue, brain fog(completely out of it/lack of concentration)and constipation

Carriefaith Enthusiast
Carriefaith
Posted
brain fog(completely out of it/lack of concentration)
:lol: I know it's not funny, but I get the exact same thing... so I can so relate, I just had to laugh. I don't even trust myself to drive!
jenvan Collaborator
jenvan
Posted

I echo Carrie and Kaiti--major fatigue, loopiness, headache, just feel really out of it, constipation or diarrhea sometimes too...

BamBam Community Regular
BamBam
Posted
  • Author

KaitiUSA - I am paying more attention to my shampoos and things, and they all have wheat. I was using a Tresemme conditioner - wheat, one of the Suave sets of shampoo and conditioner - both have wheat and my St. Ive's lotion has a wheat oil in it. I really didn't think these things made a difference. So I went to the store and bought some other items that have no wheat. I always get water and stuff in my mouth when I am showering. I never would have thought there was wheat in these things. I also called AVON and they are sending me a ingredient list for their foundations, lotions, lipsticks and hair care products.

KaitiUSA - GenVan - Carriefaith

Now for the symptoms gals. I was on a camping trip. I ate some marshmellows that had modified food starch in them. I do not remember the brand name. I also ate in a Chinese restaurant, I ate Fried Rice and Pork. Shen said there was no wheat involved in the cooking of the fried rice and pork. But I totally forgot about soy sauce, and so am not sure what I ate. ANYWAY, yesterday, horrible abdominal pain, several trips to the bathroom, bloated and burping, and I am tired, fatigued, feel like crap and just do not have a good spirit about things. So I could basically guess that I have been glutened? How long will this last do you think. I have lots of traveling to do this week, and I would like to get my energy back before I go.

It is so hard when I get glutened. I work in a customer service type job and many times I am by myself and it is hard to run to the bathroom every 20 or 30 minutes until I get it out of my system.

Hopefully I am on a better track right not, I threw away all those wheat filled shampoos conditioners and lotions and have some better stuff. Besides the words wheat, barley, rye and oats, are there some other words that I need to watch for?

Thanks for all your help you gals, I really appreciate it. Here I thought I had most everything figured out, and actually I think I am back to first or second base!

BamBam

BamBam

Carriefaith Enthusiast
Carriefaith
Posted

Yes, it does sound like you have been glutened and it was probably the soy sauce in the chinese food. It takes me about 2 weeks to feel better after a contamination.

Here is a list of things to look out for: https://www.celiac.com/st_prod.html?p_prodi...-50105590050.a4

jenvan Collaborator
jenvan
Posted

BamBam-

Go here to read a list I posted of gluten-containing ingredients in makeups/products. It makes it easier to spot things. Open Original Shared Link

As for your symptoms, it certainly sounds like you may have been glutened. I think its more likely by the chinese than the marshmallows, but you never know. Remember the brand name on the marshmallows? As for chinese--I've never heard of fried rice made w/o soy sauce, so its probably a safe bet that meal wasn't gluten-free!

I can relate on thinking you have it all figured out, and then realizing you don't! I have been gluten-free for a little while before I realized my MAC lip conditioner had two kinds of wheat ingredients in it! Good luck girl!

jknnej Collaborator
jknnej
Posted

Hi Bambam,

Another thing you can try that helped me is if you don't already, take daily fiber. I take Citrucel clear mix and it helps keep me free of diarrhea/constipation.

Of course if you're being glutened, that's a different story. But if you're not ingesting gluten and still not regular, try the fiber (if you don't already.) Hope this helps!

jennifer

Guest kmmolina
Guest kmmolina
Posted

Hi, I am just now reading all these posting...I didn't realize that I needed to be careful with hand soaps, etc. What about laundry soap? Softener? Just when I think I am understanding the scope of this thing...I see something else I didn't even think of. CarrieFaith...you said something about dizziness. Is this a sympton of celiac disease? I have spurts of dizziness all the time. Sometime it feels like I'm going to faint. I was afraid it was my heart or something...Kathleen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    2. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    3. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    4. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    5. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,852
    • Most Online (within 30 mins)
      7,748
    Maud
    Newest Member
    Maud
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.