Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Advice Please?


HopefulMama23

Recommended Posts

HopefulMama23 Explorer

Hi. Here's my background. I gave birth to my third child four months ago. Prett much since her birth, I have struggled with constant diarrhea, bulky stools, depression, fatigue, and hair loss. I have started the rounds of doctors tests but my paternal grandma has celiacs, her daughter (my aunt) had colon cancer, her son (my father) had late onset lactose intolerance. ALL the members of that family, and myself, have diffusely thin hair loss (not male/female pattern). We also have skin issues. My son has eczema and my daughter was severely lactose intolerant at birth. Can this all be related? It has to be!

So, I am trying a gluten elimination diet, probiotics, and vitamin supplemnetation. Any advice? Should I give up dairy and soyy too? What are the odds my hair, which thinned ten years ago, could recover?

Thanks!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curlyq Newbie

If you want to know whether you have celiac or not you MUST continue to eat gluten. The test results will be inaccurate if you have already eliminated gluten from your diet. If I were you I would eat gluten until you can get a proper diagnosis. Because it is genetic it is important that you know exactly what you are dealing with so that you can watch for symptoms in your children.

okieinalaska Apprentice

If you want to know whether you have celiac or not you MUST continue to eat gluten. The test results will be inaccurate if you have already eliminated gluten from your diet. If I were you I would eat gluten until you can get a proper diagnosis. Because it is genetic it is important that you know exactly what you are dealing with so that you can watch for symptoms in your children.

With your family history I would think your doc would be more than willing to do the blood tests for celiac. Have you talked to your doc about it yet?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

    2. - FayeBr posted a topic in Coping with Celiac Disease
      0

      Major Glutening

    3. - knitty kitty replied to MMeade's topic in Coping with Celiac Disease
      5

      Gluten Allergy

    4. - knitty kitty replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

    5. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,414
    • Most Online (within 30 mins)
      7,748

    NicoleSL
    Newest Member
    NicoleSL
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Oh cool! We have similar stories! I’m a microbiologist with an interest in metabolism. Been getting more and more fascinated by nutrition in recent years.    I will check out your blog . Thanks !
    • FayeBr
      Hi to all I am 4 years Celiac now. I have Ataxia too from gluten and it’s been a major learning curve and adjustment. But my query is about a recent set back. I was Glutened and started an OTC medicine to cope with a symptom. It stated it was free from gluten specifically. But in the following weeks I was getting more ill and couldn’t fathom what was wrong. I had gastritis which is awful and lots of other neuro and body symptoms that I get when Glutened. I always find it difficult to think straight too because of the brain fog and fatigue so this wasn’t helping me think logically. And then the lightbulb moment of the medication. I emailed the company in my gluten haze (by this time the symptoms were awful and reminded me of my pre gluten free days) and they responded saying although it states ‘this product does not contain gluten’ they could not guarantee it didn’t have gluten in it from manufacturing processes etc etc. I stopped it just over 2 weeks ago. I had been taking it for 6 weeks. So in the last few weeks I have started to improve from being bedridden with fatigue and aches/pains,  gastritis, abdominal pain and GI problems, brain fog, mental health symptoms, pins and needles, migraines and much more to just about functioning. I feel I have done so much damage to my body and it’s such a set back. But my question is has anyone else had a major episode like this and how long did it take to recover? I still have symptoms now and it’s been over 2 weeks. I’m afraid I have made my Ataxia worse and the panic attacks and anxiety are through the roof. I’d forgotten what that was like. But any thoughts or experiences would help. Thank you. 
    • knitty kitty
      @MMeade, People who get over-methylated are frequently low in Pyridoxine Vitamin B6.  Pyridoxine helps regulate the methylation process so it doesn't run amok.  P-5-P is the active form. All eight essential B vitamins work in concert together.  Just taking one or two can throw the rest out of balance.  If you have malabsorption as occurs in Celiac, then all the B vitamins will be poorly absorbed.  Taking a B Complex in addition to extra thiamine (Benfotiamine) is safe.  The B vitamins and Vitamin C are water soluble.  Any excess is urinated out.  I took a B 50 Complex twice a day to increase absorption.   Try taking Magnesium Threonate (Neuro-Mag by Life Extension).  Magnesium Threonate can get into the brain easily.  The brain needs magnesium, too, but other forms don't cross the blood-brain barrier as well.   The first time I took Magnesium Threonate, it felt like my brain relaxed.  I highly recommend it.   How's your Vitamin D level?  
    • knitty kitty
      @Rejoicephd, I took high dose Vitamin D to correct my severe  deficiency quickly.  It's safe to do this.  I felt much better once my Vitamin D level was about eighty ng/mL.   Vitamin D works as a hormone and helps calms the immune system between 80 - 100 ng/mL.    High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee Arthroplasty https://pubmed.ncbi.nlm.nih.gov/34737019/ Yes, curious science brain here, too.  I studied Nutrition but switched to Microbiology because I was curious what the vitamins in food actually do in the body.  Lots more links in my blog here: Click on my name and look for activities menu.
    • Rejoicephd
      Thanks @knitty kitty for keeping me thinking about the importance of vitamins. And I appreciate you sending those papers (gives me something for my science brain to work through! I’m a PhD in biology so I like reading these sorts of things). It’s been surprising to see how little is understood about the cause of fibromyalgia. My Vit D went low again on my last blood test so I know I’m back to being deficient there (it did go up for a while but back down again). Whomp whomp. So I’ll be both reading about and taking vitamins. Thanks again for your input. Really appreciate it.
×
×
  • Create New...