"leisions"

[MelindaLee]

My sister finally went to be tested for celiac. I was dx in August, and I encouraged her to be tested as well. She has long avoided breads as she would get stomach pains and bloating. So, she went for the blood test and biopsy. The doctor has been less than helpful. He states she has "leisions" in her stomach and intestines. She called back 3 times (he won't see her) and finally he stated "I cannot scientifically tell you you have celiac". She doesn't have the option of another doctor due to her insurance situation. She has noted, despite this, a positive results from the gluten-free diet, and has had issues if she attempts to reintroduce gluten into her diet. She is staying gluten-free at this point, but we are concerned if the leision could indicate something else as well or if it could be part of this disease. Any ideas?

[Wolicki]

Maybe this article will help:

Open Original Shared Link

Seems like Celiac to me...

[Takala]

Only in my brain !

What she can do is go to the doctor's office. Be really nice. Tell the medical office people that according to law, they have to give her copies of all the test results. And they need to do this before she leaves the office. If they balk, she tells them she already contacted the insurance company and they don't like it when doctors run tests and then don't give out the results. Smile. How long will it take to make copies ? Smile.

If they ask why, tell them they need to do this before you are forced to contact the State's Attorney General's office. Smile. Because your new doc needs a copy. For his/her files.

Yes, you own your test results. You paid for it, thru your premiums. So they need to turn them loose.

I can't tell you anything, but at least then somebody else might be able to have a look - see at this. I could say, hmm, first degree relative, and having symptoms, gets relief if avoids the gluten, and now some sort of lesions, sounds like it's getting more and more likely, but I'm not a pro, just playing the really annoyed consumer on the internet with some experience at this.

[ravenwoodglass]

She should do as Takla suggested and I would report this to the insurance company as he should not be refusing to go over her test results with her.

[kareng]

Actually, from the office staff side, this is what I would suggest.

Call and tell them you need to get copies. If they ask why, say your other doctor wants you to bring them with you or your moving out of town and don't have one yet. You can come by and get them tomorrow if that works. Most doctors offices will just give them to you. Be specific about what you need a copy of. Sometimes stuff isn't always filed in your paper chart. Give dates and say blood tests, op/ procedure report, pathology report.

If they want to send them to another doctor, do you have a GYN or other doc to send them to? Anyway, they will give you copies but they might charge you for them. You could have them sent to Dr. Ann Smith in another town. Assuming Ann is your aunt or sis with a different last name than you. Unlikely they will check if there really is such a doc.

You probably won't have to go to all this trouble if it's just a doctors office. Hospitals are stricter.

[eatmeat4good]

Takala?

Will you please go to the Dr. with me?

[George Knighton]

Ugh, this is what I hate about the state of our healthcare (in the United States at least). All they want is money.

[ravenwoodglass]

Ugh, this is what I hate about the state of our healthcare (in the United States at least). All they want is money.

Yea sometimes it seems that way although there are a few good ones out there. They just seem to be hard to find.

I think one of my biggest annoyances is the ones who make a point to do stuff like 'doctors or dentists' without borders but if you ask if they take Medicaid they say no. How about they help the folks where they live first? I did a project for college contacting doctors to find if they take Medicaid patients and found few who would.

[twe0708]

My sister finally went to be tested for celiac. I was dx in August, and I encouraged her to be tested as well. She has long avoided breads as she would get stomach pains and bloating. So, she went for the blood test and biopsy. The doctor has been less than helpful. He states she has "leisions" in her stomach and intestines. She called back 3 times (he won't see her) and finally he stated "I cannot scientifically tell you you have celiac". She doesn't have the option of another doctor due to her insurance situation. She has noted, despite this, a positive results from the gluten-free diet, and has had issues if she attempts to reintroduce gluten into her diet. She is staying gluten-free at this point, but we are concerned if the leision could indicate something else as well or if it could be part of this disease. Any ideas?

I had a ct scan done and was told I have a lesion or cyst on my liver. I have been almost gluten-free for over a year but still have occasional stomach pains. I had a MRI done today and ultra sound too, so I will not have my results back until the middle of next week. My lipase blood work is high and my ANA (I think that's what it's called) is high, so we are trying to figure out what's going on.