Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having A Hard Time Coping


Diosa

Recommended Posts

Diosa Apprentice

Hi all.

I'm really having a hard time coping with being gluten-free. It's not so much the the actual diet as it is my lack of alternatives. It seems like most people can substitute rice flour or soy flour and have breads or pasta. Same with milk: replace with soy, rice or even almond/hazzelnut. What do you do when you're allergic to all those things. Im allergic to soy (get really bloated and feel harrible), rice reacts as bad as gluten in my body and nuts cause aphylactic (sp?) shock. I know I should think of it as a new way to eat, and just cut out the stuff, but I'm so used to breads/pastas/baked goods etc, that I don't know if I can.

Any advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Here are some suggestions:

Enchiladas

Bean Flour Tortillas

These are great and can be frozen, I would suggest doubling it

1/3 cup light bean flour

1/2 cup cornstarch

2 tablespoons tapioca flour

1/2 teaspoon salt

2 eggs or 3 egg whites

1 1/2 cups water

oil for brushing the pan or skillet

Mix everything together and let it sit in the fridge for about 20 minutes. Heat a skillet or pan at medium-high heat and cook them like pancakes, just keep turing them to avoid buring. Store in wax paper in a plastic bag in the freezer or fridge.

Sauce

2 tablespoons chili powder

1 cup chicken broth or water

1 teaspoon garlic salt or to taste

1 1/2 tablespoons cornstarch

1 can tomato sauce

Just heat this all up in the microwave or the stove

Mix the sauce with your favorite filling. I buy mexican frozen veggies and thaw them in the microwave and mix it with the sauce. This could also be frozen. Very yummy!

I got this recipe idea from Tiffany (Tarnalberry) and it is very good:

-your favorite veggies (I use a bag of green giant mixed veggies, broccoli, cauliflower, and carrotes)

-1 teaspoon of each of the following:

rosemary, thyme, summer savory, oregano, sage

-1/2 cup of Kraft Balsamic Vinaigrette if this has soy try Tiffany's recipe

Balsamic Vinaigrette

1/4 cup balsamic vinegar (get the best stuff you can afford)

1/4 cup extra virgin olive oil

1 lemon

1 tsp rosemary

1/2 tsp basil

1/2 tsp oregano

1/2 tsp thyme

1/2 tsp ground mustard

1/4 tsp ground sage

1/4 tsp salt

2 cloves garlic

Combine vinegar, oil, oregano, thyme, mustard, sage, and salt in a container for salad dressing. Zest the lemon, and add zest to vinagrette. Juice the lemon, removing the seeds, and add 2 tbsp of the juice to the vinagrette. Crush the rosemary as much as possible and add it in. Crush the garlic and add it as well. Shake well to combine, and for best results, refrigerate overnight before serving. Note: Vinagrette will separate over time, and in the refrigerater, the oil may congeal. Simply let it come to room temperature and shake to combine.

Cook it all together until the veggies are done

chili

1 pound hamburger

2 cans of Heinz beans in tomato sauce

2 cans of Heniz chili style Kidney Beans

2 cans tomato sauce (or whatever you want as a base)

1 can of tomatoes

2-3 tablespoons of Mc Cormick Curry Powder

1 cup of corn

1 red pepper in small pieces

1 onion minced

optional (mushrooms, green pepper)

Cook the hambuger, onions, red pepper, mushrooms, and green pepper, in a frying pan/ skillet until the meat is done. Then throw everything into a big pot and cook for about 20 mintues - 30 mintues

Done!

plantime Contributor

Have some {{{hugs}}}!! I'm allergic to rice and tree nuts, and soy messes with my hormone levels! I use a flour blend of one cup each of garbanzo bean flour, potato flour, corn starch, and tapioca flour. I haven't found a decent bread yet, and I am not sure I ever will, so I just do without it.

frenchiemama Collaborator

Are you ok with dairy? I say this all the time, but the best gluten-free bread and baked goods I have found are from Grandma Ferdons (www.grandmaferdons.com). She uses corn and potato for almost everything. The egg bread is my favorite, but it does have milk.

Diosa Apprentice

Thanks guys!!

Having folks like you around is really making this more bearable. No one I know has this (or has even heard of it) so it's comforting to have folks round that really understand. My fiance Paul has been wonderful, even offering to go gluten-free with me, but he's been the only support I have besides this group.

Thanks again for putting a smile of my face. ;)

Merika Contributor

Hi,

Just hopping in to say you're not the only one :) i am celiac, my ds (age 3) eats gluten-free AND he's allergic to soy. Ridiculously allergic, none of the lecithin, vitamin E, etc. Soy is I think more pervasive than wheat in our country :blink: But we do it, everyday, follow the diet. Oh, and we're vegetarian (rolleyes...)

Merika

Guest nini

Have you tried Quinoa pasta? Quinoa is a great gluten free grain for those allergic to rice and soy. As far as dairy or soy replacements, sometimes it's best to go without. Might I suggest a diet consisting of "clean' organic meats, organic fruits and vegetables, spring water, and organic spices... you can create a virtual smorgasbord of delicious allergen free meals this way. I've actually gone to this more "pure" diet in the past few weeks after several allergic reactions to processed foods. (no cross contamination and positive they were gluten free)... I haven't given up dairy, but I'm sticking with organic minimally processed cheeses and organic milk.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Zmom

My son is allergic to dairy,soy,citrus,peas,navy beans,almonds,chicken +(all poultry) and until two weeks ago rice gave him a tummyache although all allergy tests were neg. for rice. it was beef,green beans,broccoli, potatoes,gluten-free apple sauce,egg yolks for months.(+ liquid calcium/vitamins). lamb,chebe cinnamon sticks and a few other things have been added succesfully but it took time.

I was looking for an alternitive for milk for my self when I discovered that westsoy had comeout with a gluten-free rice milk. I let my son try a little. No tummyache. The next day I let him have some more. He has not had any problems with it. I then tried some delta brand jasmine rice.-overcooked it. No problems. Maybe you need time to heal. Some brands of rice may be packaged in non-gluten-free facilites.

www.chebe.com-yummy they use tapioca flour

tarnalberry Community Regular

You can get used to a new way of eating (the way you're eating now was once new to you), but it can be tough - mentally in particular. But with so many food intolerances, there isn't a big choice. Looking for some of the old favorites is fine (it looks like corn tortillas, for instance, should still be fine for you), and minor substitutions for some things (millet or quinoa for rice, for instance), and other specialty substitutions (like DariFree for milk - made from potaties, or corn pasta). But you've got to meet those substitutions half way with some new things to fill in the spaces that the things you can't replace leave behind. But that's what the cookbook section of your local library/book store is for! That, and your imagination. :-)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.