Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Skin Rash


divamomma

Recommended Posts

divamomma Enthusiast

For the last few months (prior to blood tests) my daughter has complained about an itchy back. She complained more often as the weeks progressed. Before I could not see any rash or bumps, now I do. It is mostly along the sides of her back. We have now been gluten-free for about 6 days. I see a HUGE improvement in many of her symtoms but not this. I would actually say it has gotten worse....more rashy/bumpy looking. Some bumps are looking sore. The picture here is not great. I had to take it with my cell phone.

Is this DH?

When will it get better?

What will make it feel better/take away the itch. If I put anything on it she says it stings. Thanks :)

sspx0202_picnik.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Try removing all iodine from your daughter's diet--with DH, many of us need to do that. It takes BOTH gluten and iodine to cause DH is many cases (if not all), so eventually you can add the iodine back in. However, for me, I still break out in an odd rash that is chronic on my back from my thyroid medication, which contains iodine. Although this chronic rash is not at all like DH, it is intensely itchy. So...remove the iodine--she might just be sensitive to it.

eatmeat4good Enthusiast

There is an ointment that I use for the itch and pain. It is Walgreens brand of Pain Relieving Ointment which contains only Benzocaine but helps a great deal.

Also, the literature says the rash will take 6 months to 2 years to heal on a strict gluten free diet. I have read that others improve more rapidly. I am on the fourth month and still have sores. It takes very little to activate the lesions. Any tiny CC or iodine (including fish) activate the sores for me.

Children seem to improve more rapidly and to heal faster than adults. But there is very little literature on DH in children other than to say that DH is extremely rare in children. My son's DH cleared up rapidly in about 2 months.

I hope this helps.

Also, the sunburn sprays may help her if it is on her back. I can't use them as my sores are on my face, so I use the ointment.

itchy Rookie

Hopefully it will clear up quickly if you have a very strict gluten free diet. Aside from the iodine suggestions (and you can't really eliminate iodine long term without affecting your health) nothing else is likely to make it better, in my experience at least.

I experience the stinging most intensely during the evening and early morning. Those are the times she may be most willing to accept some help to ease the annoyance. In my experience anything that softens the skin is helpful.

Also, the periods of intense stinging/itching seem to be associated with periods of healing, so I've come to see them as harbingers of better times ahead.

Finally, (and others may wish to comment on this) I haven't noticed that the lesions become infected. Perhaps the immune system is very active at this point and fights off microbes? Is there something to this, or have I just been lucky?

cassP Contributor

Try removing all iodine from your daughter's diet--with DH, many of us need to do that. It takes BOTH gluten and iodine to cause DH is many cases (if not all), so eventually you can add the iodine back in. However, for me, I still break out in an odd rash that is chronic on my back from my thyroid medication, which contains iodine. Although this chronic rash is not at all like DH, it is intensely itchy. So...remove the iodine--she might just be sensitive to it.

my forearms have been having horrible allergic type reactions since ive been on Synthroid. but i dont have an iodine allergy- altho, i had DH on my stomach, and what i thought were DH bumps on my forearm. but this time- my forearms are not itchy at all.... but they're horribly bumpy & so RED it looks like ive got chemical burns..... and they burn too... is it possible to have DH and not have it itch??? so strange

eatmeat4good Enthusiast

My sores never seemed to itch. I have read they are intensely itchy for others but mine are more like seecond degree burns. The burning sensation is intense and maddening. So I don't think all DH has to itch.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.