Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Eat?


Happyw5

Recommended Posts

Happyw5 Explorer

I am still waiting on some tests, but I am not getting much better going gluten free. One test came back that I am allergic to wheat and eggs and peanuts and nuts(not sure which ones yet)and raisins. I have high antibodies to my throid(I still don't really know what that means)

I haven't had gluten for almost a week, I thought I was getting a little better, but now I am not so sure! I cannot eat fresh fruit or veges because I have OAS (which was supposed to get better with allergy shots-but are not. Thinking I should stop taking these, maybe they are adding to my trouble). Dairy is a problem for me, but I used to be ok with yogurt and cheese! Everything I eat (no matter what it is) goes right through me and I feel like I have a brick in the bottom of my tummy for about and 1-2 hrs. I don't want to eat anymore--But i am so hungry! I think I am going to start eating babyfood only!!! I am whining because I just ate (hadn't eaten since yesterday) and it is just like always...Just looking for some advice on what you ate when you started?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

My son doen't have OAS but does take shots for his environmantal allergies. Allergy shots do work in our experience but it takes a good amount of time and steady committment(both financial and time LOL!) It felt like it would take us forever to get to the point where we could go in less often! I think we were at it close to a year but he finally got to the point that we could go less frequently because he was consistantly better. We started off with 3 shots each time, twice a week and really committed and didn't skip. Now he can go once every week and a half to 2 weeks, still 3 shots each time. He has a heavy environmental load.

I don't have experience with OAS but do with food intolerances and allergies. Can you try rarely eaten fruits and veg. or ones that are not common to your area? I don't have OAS but I do become allergic to things I eat often so I have to go exploring and search out and try unusual or unfamiliar veggies so that I get some variety(so long as they are not related to the ones I am allergic to). I've never eaten celery root but picked one up to try this week. These things are not all my favorites but I need something to eat and need the variety so I keep an open mind, keep my purpose in mind and just try.

Hope that helps. bring these things up with your medical team. Don't be afraid to akse for help or direction. Sometimes mine don't get some things but they mean well and if I look past the misses, I usually come out with some hits.

Happyw5 Explorer

You are right! I have to start trying new things, but sometimes I get scared that it will just be one more thing I can't eat. I have the same food allergy thing, if I eat something to often (which I usually do) my body starts fighting it and I get an allergy...I have been getting allergy shots for two years and only have to go once a month and they have helped amazingly with my outside allergies and even my OAS. I just thought maybe they were adding to my inflammation. I think I just get so tired of thinking about food, it consumes me...But I will try to be more like you, and find the adventure in trying new foods...Thanks for listening to me

Booseebean Newbie

I am still waiting on some tests, but I am not getting much better going gluten free. One test came back that I am allergic to wheat and eggs and peanuts and nuts(not sure which ones yet)and raisins. I have high antibodies to my throid(I still don't really know what that means)

I haven't had gluten for almost a week, I thought I was getting a little better, but now I am not so sure! I cannot eat fresh fruit or veges because I have OAS (which was supposed to get better with allergy shots-but are not. Thinking I should stop taking these, maybe they are adding to my trouble). Dairy is a problem for me, but I used to be ok with yogurt and cheese! Everything I eat (no matter what it is) goes right through me and I feel like I have a brick in the bottom of my tummy for about and 1-2 hrs. I don't want to eat anymore--But i am so hungry! I think I am going to start eating babyfood only!!! I am whining because I just ate (hadn't eaten since yesterday) and it is just like always...Just looking for some advice on what you ate when you started?

Thanks

I had "High antibodies" to my thyroid & it ending up being Hashimoto's Thyroid which was treatable with just a simple pill everyday. But I am having similar issues to yours. I am lactose intolerant but also diabetic so everything I eat now affects me so I go throughout the day always feeling hungry. My doctor told me to make a list of the top 10 foods I know I love, check to see if any of them have gluten free alternatives & to start small. Right now I've only gotten chicken caesar salad (I found a caesar dressing that is gluten free), steak with oven roasted potatos, & I made substitutions to make a favorite chicken casserole recipe gluten free. Hope that helps.

missy'smom Collaborator

You are right! I have to start trying new things, but sometimes I get scared that it will just be one more thing I can't eat. I have the same food allergy thing, if I eat something to often (which I usually do) my body starts fighting it and I get an allergy... I think I just get so tired of thinking about food, it consumes me...But I will try to be more like you, and find the adventure in trying new foods...Thanks for listening to me

We're here to listen. I too get weary of fighting the allergy/food battle. I have a couple of forums I belong to and go to to share my little triumphs to help me stay positive and motivated. We have made alot of progress but it's still often a daily battle for the meal. Find some way to share your successes with someone who gets it or is supportive. Even if it's just to say "hey, I bought celery root today! :)" which is what I did recently. The victory is in the trying;) Someone suggested to me that I reward myself for every so many new things tried. Think about it.

missy'smom Collaborator

I just want to add too, that not all these food allergies are permanent.

We get re-tested for the foods every year with skin testing to help us keep track of old ones and get confirmation for supected new ones. We have found with some, by avoiding them long enough we quit reacting and can start eating them again. I have a list on my fridge with the dates we stopped eating them and dates to try them again. That way it doesn't feel like we are without them forever and gives us a goal and potential for seeing progress. Some we do just have to live without permanently.

Happyw5 Explorer

That is what happened with my wheat allergy. I stopped for a year (2007-2008), and never felt better. After I started allergy shots my allergist suggested that I could reintroduce wheat, thinking that it was related to my etreme grass allergy. When I started eating it, I felt fine. I was careful at the time to make sure I only ate it once a week.

Then I began having many other problems, including 30 pnd wght gain in a month and could not lose it. I went to my regular physician last year because I was thinking it was hypothyroid. I was losing my hair and my body was itchy every where, and many other symptoms that sounded just like hypo thyroid. He tested me and my tsh came back normal, however, my cholesterol went up 100 points within 6 months. He tested me for wheat and it came back that I was not allergic. He told me to eat less and work out more, and get my cholesterol down. Well I started eating wheat again daily and I actually seemed ok through out the summer, except I couldn't lose the xtra weight. I am not overly over weight so I decided, oh well.

In September I went to an endocronoligist because of all the symptoms, and at this point I was not getting my period only every other month. (I have five kids, so my body always worked right in that area) She was very rude and told me my tsh was fine and if she had a "magic" pill to make me skinny she would take it. So I got no where with her. I decided to go all out and eat what I wanted, well to my surprise when they rechecked my cholesterol it went down almost 100 points again (In like 6 months)...

Now last week I went to my allergist and he is taking all my problems seriously...

Sorry about rambling, but my family is sick of listening to me!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

what's OAS ?????????????????????????????????/

Happyw5 Explorer

It means Oral Allergy Syndrome...If I eat a fruit or a vegetable, I react as if I had eaten a pollen. I have very bad outside allergies and certain fruits and veges are are related to those allergies. My birch allergy is very high so I will react to apples and many many other foods. I also have a grass allergy, weed allergy, other tree allergies, and others. If I eat a fresh fruit or vege, my mouth gets really itchy and my ears itch like crazy! If I cook the food or by it in a can I am fine...

  • 1 year later...
Owlmuse Rookie

I don't know if you are still checking this post but I just wanted to mention you may want to check into non allergy and non thyroid conditions. I have Celiac and OAS too as well as a thyroid condition. I also have a condition called PCOS (Poly cystic ovarian syndrome). It can cause I variety of symptoms including weight gain, inability to lose weight and stopping of your period. It's also linked to insulin resistance (or pre-diabetes). It's actually a fairly common condition but can have a variety of symptoms. Basically it's a hormone imbalance. I don't know for sure obviously if that's what you have (or if you've already figured out what you have) but I just wanted to mention it. I was diagnosed with it by my endocrinologist after I was diagnosed with a thyroid condition. My primary care physician hadn't even mentioned it to me and I had some of it's key symptoms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    3. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,477
    • Most Online (within 30 mins)
      7,748

    bwhntr1953
    Newest Member
    bwhntr1953
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.