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What To Eat?

Happyw5

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Happyw5 Explorer
Happyw5
Posted

I am still waiting on some tests, but I am not getting much better going gluten free. One test came back that I am allergic to wheat and eggs and peanuts and nuts(not sure which ones yet)and raisins. I have high antibodies to my throid(I still don't really know what that means)

I haven't had gluten for almost a week, I thought I was getting a little better, but now I am not so sure! I cannot eat fresh fruit or veges because I have OAS (which was supposed to get better with allergy shots-but are not. Thinking I should stop taking these, maybe they are adding to my trouble). Dairy is a problem for me, but I used to be ok with yogurt and cheese! Everything I eat (no matter what it is) goes right through me and I feel like I have a brick in the bottom of my tummy for about and 1-2 hrs. I don't want to eat anymore--But i am so hungry! I think I am going to start eating babyfood only!!! I am whining because I just ate (hadn't eaten since yesterday) and it is just like always...Just looking for some advice on what you ate when you started?

Thanks

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missy'smom Collaborator
missy'smom
Posted

My son doen't have OAS but does take shots for his environmantal allergies. Allergy shots do work in our experience but it takes a good amount of time and steady committment(both financial and time LOL!) It felt like it would take us forever to get to the point where we could go in less often! I think we were at it close to a year but he finally got to the point that we could go less frequently because he was consistantly better. We started off with 3 shots each time, twice a week and really committed and didn't skip. Now he can go once every week and a half to 2 weeks, still 3 shots each time. He has a heavy environmental load.

I don't have experience with OAS but do with food intolerances and allergies. Can you try rarely eaten fruits and veg. or ones that are not common to your area? I don't have OAS but I do become allergic to things I eat often so I have to go exploring and search out and try unusual or unfamiliar veggies so that I get some variety(so long as they are not related to the ones I am allergic to). I've never eaten celery root but picked one up to try this week. These things are not all my favorites but I need something to eat and need the variety so I keep an open mind, keep my purpose in mind and just try.

Hope that helps. bring these things up with your medical team. Don't be afraid to akse for help or direction. Sometimes mine don't get some things but they mean well and if I look past the misses, I usually come out with some hits.

Happyw5 Explorer
Happyw5
Posted
  • Author

You are right! I have to start trying new things, but sometimes I get scared that it will just be one more thing I can't eat. I have the same food allergy thing, if I eat something to often (which I usually do) my body starts fighting it and I get an allergy...I have been getting allergy shots for two years and only have to go once a month and they have helped amazingly with my outside allergies and even my OAS. I just thought maybe they were adding to my inflammation. I think I just get so tired of thinking about food, it consumes me...But I will try to be more like you, and find the adventure in trying new foods...Thanks for listening to me

Booseebean Newbie
Booseebean
Posted

I am still waiting on some tests, but I am not getting much better going gluten free. One test came back that I am allergic to wheat and eggs and peanuts and nuts(not sure which ones yet)and raisins. I have high antibodies to my throid(I still don't really know what that means)

I haven't had gluten for almost a week, I thought I was getting a little better, but now I am not so sure! I cannot eat fresh fruit or veges because I have OAS (which was supposed to get better with allergy shots-but are not. Thinking I should stop taking these, maybe they are adding to my trouble). Dairy is a problem for me, but I used to be ok with yogurt and cheese! Everything I eat (no matter what it is) goes right through me and I feel like I have a brick in the bottom of my tummy for about and 1-2 hrs. I don't want to eat anymore--But i am so hungry! I think I am going to start eating babyfood only!!! I am whining because I just ate (hadn't eaten since yesterday) and it is just like always...Just looking for some advice on what you ate when you started?

Thanks

I had "High antibodies" to my thyroid & it ending up being Hashimoto's Thyroid which was treatable with just a simple pill everyday. But I am having similar issues to yours. I am lactose intolerant but also diabetic so everything I eat now affects me so I go throughout the day always feeling hungry. My doctor told me to make a list of the top 10 foods I know I love, check to see if any of them have gluten free alternatives & to start small. Right now I've only gotten chicken caesar salad (I found a caesar dressing that is gluten free), steak with oven roasted potatos, & I made substitutions to make a favorite chicken casserole recipe gluten free. Hope that helps.

missy'smom Collaborator
missy'smom
Posted

You are right! I have to start trying new things, but sometimes I get scared that it will just be one more thing I can't eat. I have the same food allergy thing, if I eat something to often (which I usually do) my body starts fighting it and I get an allergy... I think I just get so tired of thinking about food, it consumes me...But I will try to be more like you, and find the adventure in trying new foods...Thanks for listening to me

We're here to listen. I too get weary of fighting the allergy/food battle. I have a couple of forums I belong to and go to to share my little triumphs to help me stay positive and motivated. We have made alot of progress but it's still often a daily battle for the meal. Find some way to share your successes with someone who gets it or is supportive. Even if it's just to say "hey, I bought celery root today! :)" which is what I did recently. The victory is in the trying;) Someone suggested to me that I reward myself for every so many new things tried. Think about it.

missy'smom Collaborator
missy'smom
Posted

I just want to add too, that not all these food allergies are permanent.

We get re-tested for the foods every year with skin testing to help us keep track of old ones and get confirmation for supected new ones. We have found with some, by avoiding them long enough we quit reacting and can start eating them again. I have a list on my fridge with the dates we stopped eating them and dates to try them again. That way it doesn't feel like we are without them forever and gives us a goal and potential for seeing progress. Some we do just have to live without permanently.

Happyw5 Explorer
Happyw5
Posted
  • Author

That is what happened with my wheat allergy. I stopped for a year (2007-2008), and never felt better. After I started allergy shots my allergist suggested that I could reintroduce wheat, thinking that it was related to my etreme grass allergy. When I started eating it, I felt fine. I was careful at the time to make sure I only ate it once a week.

Then I began having many other problems, including 30 pnd wght gain in a month and could not lose it. I went to my regular physician last year because I was thinking it was hypothyroid. I was losing my hair and my body was itchy every where, and many other symptoms that sounded just like hypo thyroid. He tested me and my tsh came back normal, however, my cholesterol went up 100 points within 6 months. He tested me for wheat and it came back that I was not allergic. He told me to eat less and work out more, and get my cholesterol down. Well I started eating wheat again daily and I actually seemed ok through out the summer, except I couldn't lose the xtra weight. I am not overly over weight so I decided, oh well.

In September I went to an endocronoligist because of all the symptoms, and at this point I was not getting my period only every other month. (I have five kids, so my body always worked right in that area) She was very rude and told me my tsh was fine and if she had a "magic" pill to make me skinny she would take it. So I got no where with her. I decided to go all out and eat what I wanted, well to my surprise when they rechecked my cholesterol it went down almost 100 points again (In like 6 months)...

Now last week I went to my allergist and he is taking all my problems seriously...

Sorry about rambling, but my family is sick of listening to me!!!!

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cassP Contributor
cassP
Posted

what's OAS ?????????????????????????????????/

Happyw5 Explorer
Happyw5
Posted
  • Author

It means Oral Allergy Syndrome...If I eat a fruit or a vegetable, I react as if I had eaten a pollen. I have very bad outside allergies and certain fruits and veges are are related to those allergies. My birch allergy is very high so I will react to apples and many many other foods. I also have a grass allergy, weed allergy, other tree allergies, and others. If I eat a fresh fruit or vege, my mouth gets really itchy and my ears itch like crazy! If I cook the food or by it in a can I am fine...

  • 1 year later...
Owlmuse Rookie
Owlmuse
Posted

I don't know if you are still checking this post but I just wanted to mention you may want to check into non allergy and non thyroid conditions. I have Celiac and OAS too as well as a thyroid condition. I also have a condition called PCOS (Poly cystic ovarian syndrome). It can cause I variety of symptoms including weight gain, inability to lose weight and stopping of your period. It's also linked to insulin resistance (or pre-diabetes). It's actually a fairly common condition but can have a variety of symptoms. Basically it's a hormone imbalance. I don't know for sure obviously if that's what you have (or if you've already figured out what you have) but I just wanted to mention it. I was diagnosed with it by my endocrinologist after I was diagnosed with a thyroid condition. My primary care physician hadn't even mentioned it to me and I had some of it's key symptoms.

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    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
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      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
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      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
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