Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Eat?


Happyw5

Recommended Posts

Happyw5 Explorer

I am still waiting on some tests, but I am not getting much better going gluten free. One test came back that I am allergic to wheat and eggs and peanuts and nuts(not sure which ones yet)and raisins. I have high antibodies to my throid(I still don't really know what that means)

I haven't had gluten for almost a week, I thought I was getting a little better, but now I am not so sure! I cannot eat fresh fruit or veges because I have OAS (which was supposed to get better with allergy shots-but are not. Thinking I should stop taking these, maybe they are adding to my trouble). Dairy is a problem for me, but I used to be ok with yogurt and cheese! Everything I eat (no matter what it is) goes right through me and I feel like I have a brick in the bottom of my tummy for about and 1-2 hrs. I don't want to eat anymore--But i am so hungry! I think I am going to start eating babyfood only!!! I am whining because I just ate (hadn't eaten since yesterday) and it is just like always...Just looking for some advice on what you ate when you started?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

My son doen't have OAS but does take shots for his environmantal allergies. Allergy shots do work in our experience but it takes a good amount of time and steady committment(both financial and time LOL!) It felt like it would take us forever to get to the point where we could go in less often! I think we were at it close to a year but he finally got to the point that we could go less frequently because he was consistantly better. We started off with 3 shots each time, twice a week and really committed and didn't skip. Now he can go once every week and a half to 2 weeks, still 3 shots each time. He has a heavy environmental load.

I don't have experience with OAS but do with food intolerances and allergies. Can you try rarely eaten fruits and veg. or ones that are not common to your area? I don't have OAS but I do become allergic to things I eat often so I have to go exploring and search out and try unusual or unfamiliar veggies so that I get some variety(so long as they are not related to the ones I am allergic to). I've never eaten celery root but picked one up to try this week. These things are not all my favorites but I need something to eat and need the variety so I keep an open mind, keep my purpose in mind and just try.

Hope that helps. bring these things up with your medical team. Don't be afraid to akse for help or direction. Sometimes mine don't get some things but they mean well and if I look past the misses, I usually come out with some hits.

Happyw5 Explorer

You are right! I have to start trying new things, but sometimes I get scared that it will just be one more thing I can't eat. I have the same food allergy thing, if I eat something to often (which I usually do) my body starts fighting it and I get an allergy...I have been getting allergy shots for two years and only have to go once a month and they have helped amazingly with my outside allergies and even my OAS. I just thought maybe they were adding to my inflammation. I think I just get so tired of thinking about food, it consumes me...But I will try to be more like you, and find the adventure in trying new foods...Thanks for listening to me

Booseebean Newbie

I am still waiting on some tests, but I am not getting much better going gluten free. One test came back that I am allergic to wheat and eggs and peanuts and nuts(not sure which ones yet)and raisins. I have high antibodies to my throid(I still don't really know what that means)

I haven't had gluten for almost a week, I thought I was getting a little better, but now I am not so sure! I cannot eat fresh fruit or veges because I have OAS (which was supposed to get better with allergy shots-but are not. Thinking I should stop taking these, maybe they are adding to my trouble). Dairy is a problem for me, but I used to be ok with yogurt and cheese! Everything I eat (no matter what it is) goes right through me and I feel like I have a brick in the bottom of my tummy for about and 1-2 hrs. I don't want to eat anymore--But i am so hungry! I think I am going to start eating babyfood only!!! I am whining because I just ate (hadn't eaten since yesterday) and it is just like always...Just looking for some advice on what you ate when you started?

Thanks

I had "High antibodies" to my thyroid & it ending up being Hashimoto's Thyroid which was treatable with just a simple pill everyday. But I am having similar issues to yours. I am lactose intolerant but also diabetic so everything I eat now affects me so I go throughout the day always feeling hungry. My doctor told me to make a list of the top 10 foods I know I love, check to see if any of them have gluten free alternatives & to start small. Right now I've only gotten chicken caesar salad (I found a caesar dressing that is gluten free), steak with oven roasted potatos, & I made substitutions to make a favorite chicken casserole recipe gluten free. Hope that helps.

missy'smom Collaborator

You are right! I have to start trying new things, but sometimes I get scared that it will just be one more thing I can't eat. I have the same food allergy thing, if I eat something to often (which I usually do) my body starts fighting it and I get an allergy... I think I just get so tired of thinking about food, it consumes me...But I will try to be more like you, and find the adventure in trying new foods...Thanks for listening to me

We're here to listen. I too get weary of fighting the allergy/food battle. I have a couple of forums I belong to and go to to share my little triumphs to help me stay positive and motivated. We have made alot of progress but it's still often a daily battle for the meal. Find some way to share your successes with someone who gets it or is supportive. Even if it's just to say "hey, I bought celery root today! :)" which is what I did recently. The victory is in the trying;) Someone suggested to me that I reward myself for every so many new things tried. Think about it.

missy'smom Collaborator

I just want to add too, that not all these food allergies are permanent.

We get re-tested for the foods every year with skin testing to help us keep track of old ones and get confirmation for supected new ones. We have found with some, by avoiding them long enough we quit reacting and can start eating them again. I have a list on my fridge with the dates we stopped eating them and dates to try them again. That way it doesn't feel like we are without them forever and gives us a goal and potential for seeing progress. Some we do just have to live without permanently.

Happyw5 Explorer

That is what happened with my wheat allergy. I stopped for a year (2007-2008), and never felt better. After I started allergy shots my allergist suggested that I could reintroduce wheat, thinking that it was related to my etreme grass allergy. When I started eating it, I felt fine. I was careful at the time to make sure I only ate it once a week.

Then I began having many other problems, including 30 pnd wght gain in a month and could not lose it. I went to my regular physician last year because I was thinking it was hypothyroid. I was losing my hair and my body was itchy every where, and many other symptoms that sounded just like hypo thyroid. He tested me and my tsh came back normal, however, my cholesterol went up 100 points within 6 months. He tested me for wheat and it came back that I was not allergic. He told me to eat less and work out more, and get my cholesterol down. Well I started eating wheat again daily and I actually seemed ok through out the summer, except I couldn't lose the xtra weight. I am not overly over weight so I decided, oh well.

In September I went to an endocronoligist because of all the symptoms, and at this point I was not getting my period only every other month. (I have five kids, so my body always worked right in that area) She was very rude and told me my tsh was fine and if she had a "magic" pill to make me skinny she would take it. So I got no where with her. I decided to go all out and eat what I wanted, well to my surprise when they rechecked my cholesterol it went down almost 100 points again (In like 6 months)...

Now last week I went to my allergist and he is taking all my problems seriously...

Sorry about rambling, but my family is sick of listening to me!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

what's OAS ?????????????????????????????????/

Happyw5 Explorer

It means Oral Allergy Syndrome...If I eat a fruit or a vegetable, I react as if I had eaten a pollen. I have very bad outside allergies and certain fruits and veges are are related to those allergies. My birch allergy is very high so I will react to apples and many many other foods. I also have a grass allergy, weed allergy, other tree allergies, and others. If I eat a fresh fruit or vege, my mouth gets really itchy and my ears itch like crazy! If I cook the food or by it in a can I am fine...

  • 1 year later...
Owlmuse Rookie

I don't know if you are still checking this post but I just wanted to mention you may want to check into non allergy and non thyroid conditions. I have Celiac and OAS too as well as a thyroid condition. I also have a condition called PCOS (Poly cystic ovarian syndrome). It can cause I variety of symptoms including weight gain, inability to lose weight and stopping of your period. It's also linked to insulin resistance (or pre-diabetes). It's actually a fairly common condition but can have a variety of symptoms. Basically it's a hormone imbalance. I don't know for sure obviously if that's what you have (or if you've already figured out what you have) but I just wanted to mention it. I was diagnosed with it by my endocrinologist after I was diagnosed with a thyroid condition. My primary care physician hadn't even mentioned it to me and I had some of it's key symptoms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748

    PatientOne
    Newest Member
    PatientOne
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.