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What To Eat?

Happyw5

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Happyw5 Explorer
Happyw5
Posted

I am still waiting on some tests, but I am not getting much better going gluten free. One test came back that I am allergic to wheat and eggs and peanuts and nuts(not sure which ones yet)and raisins. I have high antibodies to my throid(I still don't really know what that means)

I haven't had gluten for almost a week, I thought I was getting a little better, but now I am not so sure! I cannot eat fresh fruit or veges because I have OAS (which was supposed to get better with allergy shots-but are not. Thinking I should stop taking these, maybe they are adding to my trouble). Dairy is a problem for me, but I used to be ok with yogurt and cheese! Everything I eat (no matter what it is) goes right through me and I feel like I have a brick in the bottom of my tummy for about and 1-2 hrs. I don't want to eat anymore--But i am so hungry! I think I am going to start eating babyfood only!!! I am whining because I just ate (hadn't eaten since yesterday) and it is just like always...Just looking for some advice on what you ate when you started?

Thanks

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missy'smom Collaborator
missy'smom
Posted

My son doen't have OAS but does take shots for his environmantal allergies. Allergy shots do work in our experience but it takes a good amount of time and steady committment(both financial and time LOL!) It felt like it would take us forever to get to the point where we could go in less often! I think we were at it close to a year but he finally got to the point that we could go less frequently because he was consistantly better. We started off with 3 shots each time, twice a week and really committed and didn't skip. Now he can go once every week and a half to 2 weeks, still 3 shots each time. He has a heavy environmental load.

I don't have experience with OAS but do with food intolerances and allergies. Can you try rarely eaten fruits and veg. or ones that are not common to your area? I don't have OAS but I do become allergic to things I eat often so I have to go exploring and search out and try unusual or unfamiliar veggies so that I get some variety(so long as they are not related to the ones I am allergic to). I've never eaten celery root but picked one up to try this week. These things are not all my favorites but I need something to eat and need the variety so I keep an open mind, keep my purpose in mind and just try.

Hope that helps. bring these things up with your medical team. Don't be afraid to akse for help or direction. Sometimes mine don't get some things but they mean well and if I look past the misses, I usually come out with some hits.

Happyw5 Explorer
Happyw5
Posted
  • Author

You are right! I have to start trying new things, but sometimes I get scared that it will just be one more thing I can't eat. I have the same food allergy thing, if I eat something to often (which I usually do) my body starts fighting it and I get an allergy...I have been getting allergy shots for two years and only have to go once a month and they have helped amazingly with my outside allergies and even my OAS. I just thought maybe they were adding to my inflammation. I think I just get so tired of thinking about food, it consumes me...But I will try to be more like you, and find the adventure in trying new foods...Thanks for listening to me

Booseebean Newbie
Booseebean
Posted

I am still waiting on some tests, but I am not getting much better going gluten free. One test came back that I am allergic to wheat and eggs and peanuts and nuts(not sure which ones yet)and raisins. I have high antibodies to my throid(I still don't really know what that means)

I haven't had gluten for almost a week, I thought I was getting a little better, but now I am not so sure! I cannot eat fresh fruit or veges because I have OAS (which was supposed to get better with allergy shots-but are not. Thinking I should stop taking these, maybe they are adding to my trouble). Dairy is a problem for me, but I used to be ok with yogurt and cheese! Everything I eat (no matter what it is) goes right through me and I feel like I have a brick in the bottom of my tummy for about and 1-2 hrs. I don't want to eat anymore--But i am so hungry! I think I am going to start eating babyfood only!!! I am whining because I just ate (hadn't eaten since yesterday) and it is just like always...Just looking for some advice on what you ate when you started?

Thanks

I had "High antibodies" to my thyroid & it ending up being Hashimoto's Thyroid which was treatable with just a simple pill everyday. But I am having similar issues to yours. I am lactose intolerant but also diabetic so everything I eat now affects me so I go throughout the day always feeling hungry. My doctor told me to make a list of the top 10 foods I know I love, check to see if any of them have gluten free alternatives & to start small. Right now I've only gotten chicken caesar salad (I found a caesar dressing that is gluten free), steak with oven roasted potatos, & I made substitutions to make a favorite chicken casserole recipe gluten free. Hope that helps.

missy'smom Collaborator
missy'smom
Posted

You are right! I have to start trying new things, but sometimes I get scared that it will just be one more thing I can't eat. I have the same food allergy thing, if I eat something to often (which I usually do) my body starts fighting it and I get an allergy... I think I just get so tired of thinking about food, it consumes me...But I will try to be more like you, and find the adventure in trying new foods...Thanks for listening to me

We're here to listen. I too get weary of fighting the allergy/food battle. I have a couple of forums I belong to and go to to share my little triumphs to help me stay positive and motivated. We have made alot of progress but it's still often a daily battle for the meal. Find some way to share your successes with someone who gets it or is supportive. Even if it's just to say "hey, I bought celery root today! :)" which is what I did recently. The victory is in the trying;) Someone suggested to me that I reward myself for every so many new things tried. Think about it.

missy'smom Collaborator
missy'smom
Posted

I just want to add too, that not all these food allergies are permanent.

We get re-tested for the foods every year with skin testing to help us keep track of old ones and get confirmation for supected new ones. We have found with some, by avoiding them long enough we quit reacting and can start eating them again. I have a list on my fridge with the dates we stopped eating them and dates to try them again. That way it doesn't feel like we are without them forever and gives us a goal and potential for seeing progress. Some we do just have to live without permanently.

Happyw5 Explorer
Happyw5
Posted
  • Author

That is what happened with my wheat allergy. I stopped for a year (2007-2008), and never felt better. After I started allergy shots my allergist suggested that I could reintroduce wheat, thinking that it was related to my etreme grass allergy. When I started eating it, I felt fine. I was careful at the time to make sure I only ate it once a week.

Then I began having many other problems, including 30 pnd wght gain in a month and could not lose it. I went to my regular physician last year because I was thinking it was hypothyroid. I was losing my hair and my body was itchy every where, and many other symptoms that sounded just like hypo thyroid. He tested me and my tsh came back normal, however, my cholesterol went up 100 points within 6 months. He tested me for wheat and it came back that I was not allergic. He told me to eat less and work out more, and get my cholesterol down. Well I started eating wheat again daily and I actually seemed ok through out the summer, except I couldn't lose the xtra weight. I am not overly over weight so I decided, oh well.

In September I went to an endocronoligist because of all the symptoms, and at this point I was not getting my period only every other month. (I have five kids, so my body always worked right in that area) She was very rude and told me my tsh was fine and if she had a "magic" pill to make me skinny she would take it. So I got no where with her. I decided to go all out and eat what I wanted, well to my surprise when they rechecked my cholesterol it went down almost 100 points again (In like 6 months)...

Now last week I went to my allergist and he is taking all my problems seriously...

Sorry about rambling, but my family is sick of listening to me!!!!

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cassP Contributor
cassP
Posted

what's OAS ?????????????????????????????????/

Happyw5 Explorer
Happyw5
Posted
  • Author

It means Oral Allergy Syndrome...If I eat a fruit or a vegetable, I react as if I had eaten a pollen. I have very bad outside allergies and certain fruits and veges are are related to those allergies. My birch allergy is very high so I will react to apples and many many other foods. I also have a grass allergy, weed allergy, other tree allergies, and others. If I eat a fresh fruit or vege, my mouth gets really itchy and my ears itch like crazy! If I cook the food or by it in a can I am fine...

  • 1 year later...
Owlmuse Rookie
Owlmuse
Posted

I don't know if you are still checking this post but I just wanted to mention you may want to check into non allergy and non thyroid conditions. I have Celiac and OAS too as well as a thyroid condition. I also have a condition called PCOS (Poly cystic ovarian syndrome). It can cause I variety of symptoms including weight gain, inability to lose weight and stopping of your period. It's also linked to insulin resistance (or pre-diabetes). It's actually a fairly common condition but can have a variety of symptoms. Basically it's a hormone imbalance. I don't know for sure obviously if that's what you have (or if you've already figured out what you have) but I just wanted to mention it. I was diagnosed with it by my endocrinologist after I was diagnosed with a thyroid condition. My primary care physician hadn't even mentioned it to me and I had some of it's key symptoms.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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