Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Washington State?


Noche22

Recommended Posts

Noche22 Rookie

I am new to the Celiac Disease journey and I am wondering how people branch out for support. Do you find local support groups, go online such as this forum, family and friends? How did you begin your new life? I must admit I am very overwhelmed and not sure what avenues to use.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac-mommy Collaborator

I'm in WA state. Where are you at? If you want to chat, pm me and I'll give you my contact info.

We started going to a support group 5 years ago, but I didn't find it overly helpful. This forum has been an invaluable resource to me!

Noche22 Rookie

I'm in WA state. Where are you at? If you want to chat, pm me and I'll give you my contact info.

We started going to a support group 5 years ago, but I didn't find it overly helpful. This forum has been an invaluable resource to me!

I am in Bellingham. Kind of up here...haha I just found this forum yesterday or the day before. I love it so far and I am thrilled to have found sooooo many answers to so many questions I have.

In weeks time, I will begin another whole ballgame. I have more chemical testing to get done at Swedish :(

burdee Enthusiast

I am in Bellingham. Kind of up here...haha I just found this forum yesterday or the day before. I love it so far and I am thrilled to have found sooooo many answers to so many questions I have.

In weeks time, I will begin another whole ballgame. I have more chemical testing to get done at Swedish :(

I'm in Seattle. However, there is a fantastic support group which meets in Bellingham. See Open Original Shared Link The leader is Kelle Rankin-Sunter. The website will give you info about support group meetings.

Also the Gluten Intolerance Group of North America is located in Auburn. Contact them at Open Original Shared Link for questions you might have about the gluten free diet or gluten intolerance.

SUE

Jestgar Rising Star

I'm in Seattle. I've gotten, and still get, most of my info and support from this forum.

Noche22 Rookie

Thank you everyone.

I will also check out the web link and the support group that was suggested. :D

celiac-mommy Collaborator

Yeah, I'm near Portland. Why doesn't anyone move down here? <stomping feet> :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

My fab friends are moving to Portland. He'll be teaching at Reed College.

celiac-mommy Collaborator

My fab friends are moving to Portland. He'll be teaching at Reed College.

Cool! Maybe we can meet for drinks or something... You should come down and visit too!! Feel free to bring a guest.... ;)

Noche22 Rookie

Cool! Maybe we can meet for drinks or something... You should come down and visit too!! Feel free to bring a guest.... ;)

awwwwwww, LOVE the Oregon Coast. Heaven to me!!!

One of my good friends lives in Vancouver, WA.

celiac-mommy Collaborator

One of my good friends lives in Vancouver, WA.

That's where I'm at!

Financialman Newbie

Just wanted to say hello to those people living in Washington. I am moving to the Seattle area in May, 2011 and will be looking for a support group to join. I am not sure where I will be living just yet so if anyone has any ideas of a couple of support groups I would appreciate it. :)

  • 2 weeks later...
Newsy Rookie

Hello all,

I am new to the world of the gluten-free, but my mom was diagnosed with Celiac disease 30 years ago (so I'm not a complete dummy :)

I just wanted to put the bug in your ear about visiting Seattle soon...I may be traveling to Seattle in the next few months. My son and his girlfriend moved there a few months ago and said I should live there because of all the "gluten-free" places they have noticed!

Once I get up there tho (I'm in the KC area), I'd like to make contact with a few people about where to eat, or possibly meeting people.

Thanks so much!

NN

Financialman Newbie

NewsyNanette,

I was just visiting my son in Seattle this past August 2010. There is absolutely no problem in finding gluten free food or restaurants. Seattle is miles ahead of most parts of the country when it comes to Celiacs disease and gluten intolerences. I spent a week their and every restaurant I ate in was knowledgeable and accomodating. I like Seattle so much that I am moving there in May 2011. I think it is a great place for someone with Celiac Disease because of the attitude and knowledge of the people there. You will love it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,234
    • Most Online (within 30 mins)
      7,748

    AjaxandLynda
    Newest Member
    AjaxandLynda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.