Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-withdrawal?


Jonesy

Recommended Posts

Jonesy Apprentice

:blink:

I've been gluten free for only 2 weeks. My intestines are feeling so much more comfortable and I'm grateful to have found the answer to my weight loss and inability to gain it back. My villi were totally flat. I am 77 years old, and Dr. would not even venture a guess how long I've had this, or what triggered it.

I went gluten-free 2 days after the diagnosis, to the best of my knowledge. I had excellent help from a member of the local Celiac Support group, who spent 2 hours with me going over literature, making recommendations and teaching me the basics. Since then I purchased the CSA Gluten-Free Product Listing and the Guide through the Medicine cabinet. I also have Danna Korns book Wheat-free, Gluten-free.

My problem is that ever since avoiding gluten I have felt very very tired. I get sleepy and weary. I've had to slow my activities down, and have trouble getting my daily duties accomplished. I'm wondering if this is a common reaction.

I seem to feel full enough after the evening regular meals, which have always been free of gluten, because DH is a plain meat and potatoes man. We always add a healthy portion of veggies to that. I've had to make changes in the breakfast and lunch foods, and that's been a trial because I was eating cereals, toast and flour tortillas. refried spaghetti and other food laden with gluten.

I think I am getting enough protein and a good balance of protein, fat and carbohydrates because I've been on a heart healthy diet since a heart attack 6 years ago.

I'd like to hear what other reactions people have had to the absence of gluten. My Dr. assured me that on the gluten-free diet I would gain weight and have more energy. So I am mystified why I'm having less energy instead of more. There must be a reason - and of course, there is the chance that it's totally unrelated to the gluten-free diet.

Thanks for any comments.

Maryellen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

You can have gluten withdrawal symptoms. It is quite an adjustment for your body to go through and it takes a little time to get used to that. Also, it may take a while for symptoms to go away so definitely don't think it will be a quick fix because you don't want to set yourself up to be disappointed.

When I first went gluten free I was really tired and I was moody alot I guess because of the lack of gluten and that my body thought it needed gluten.

Guest nini

I most definitely had gluten withdrawal symptoms... it was almost like my body was addicted to it even though it was truly poison to me. I had 34 years of damage to undo, so although I am much better 2 years into it, I still have symptoms. Even with my best efforts I still manage to get glutened on occasion. You just do the best you can

ianm Apprentice

I had some withdrawal symptoms but they did go away.

steve-o Apprentice

I had some major withdrawal problems too. It put whole new meaning to the phrase "carbohydrate addict". For me, the withdrawal lasted about 3 to 4 weeks.

I was also really tired all the time, but I found that I felt much better after I started to take a good multivitamin. Getting some exercise also helped quite a bit...it's hard to get started with exercise when you feel so lousy, but you'll feel much better for it.

Also, make sure you're eating enough. It's easy to take in too few calories on a gluten-free diet.

Good luck!

ianm Apprentice

Exercise is a big help. It was real hard for me to get going with it in the beginning but I now experience fatigue if I don't exercise.

Jonesy Apprentice

Thanks to all who responded. :D

This is a great support site - everyone is so helpful.

It helps a lot to know that others have felt withdrawal from gluten in the same way and that makes me feel better already. :)

My best to all of you.

Regards

Maryellen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.