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Find A Doctor In Grand Rapids Mi. Area


pattyk

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pattyk Newbie

After 3 years of going to a Metabolic Clinic in Kalamazoo Mi. the clinic closed, and I am frustrated!! I am left with Doctors that don't believe my problems are from gluten, I do quite well most of the time, if I don't slip up! I am not diagnosed celiac, therefore "I don't have gluten problems" according to all the gastro Doc's I have seen. I have what I call 'Flares' 2 putting me in the hospital. Low potassium, and de-hydration I would love to be able to find a Doctor in the Grand Rapids Michigan area that is sympathetic and willing to treat me without saying I have IBS and wanting to put me on high powered drugs, when I prove time after time I do great without gluten, and whole milk products. Would appreciate some Doctor names and experiences.


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    • cristiana
      Thank you @knitty kitty x
    • trents
      Most recent gluten challenge guidelines call for the consumption of at least 10g of gluten (about the amount in about 4-6 slices of wheat-based bread) for at least 2 weeks.  When celiacs have been on gluten free diets for long periods of time, they often find that when they consume a good amount of gluten, they react much more strongly than they did before going gluten free. They have lost all tolerance to the poison they had when consuming wheat products regularly. That is certainly the case with me. A couple of years ago I accidentally consumed a wheat biscuit my wife had made thinking it was a gluten free one and it made me violently ill. So, I mention that as I don't know if your son has started the gluten challenge yet.
    • melthebell
      Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say.    But I welcome advice from members here who have done successful gluten challenges. I know they are not always successful.    I have also read I should monitor his growth. Is that really a concern for 10 weeks of gluten consumption? He is growing and has always followed his curve but he’s no basketball player at 20-25th centile. 
    • trents
    • trents
      @melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once realized.
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