Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone React To Levothyroxin

coffeetime

Recommended Posts

coffeetime Explorer
coffeetime
Posted

About a week and a half ago my doctor put me back on thyroid medication after looking at all my numbers and not just the "normal" TSH. As I had used thyroid meds for many years in the past I'm excited about having some energy again and hopefully my weight will either stabilize or drop instead of this constant creeping up. My question is has anyone had any problems with this med, the manufacture is Lannett, the pharmacy assures me there is no gluten in this product but I have had migraines almost every day for a week and a half and that is the only new product in my life and migraines are my only "symptom" of being glutened. Thanks everyone.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Here is a response I recieved from them. Keep in mind this was from March 2010. I took it and had no issues, but now I take mylan.

All Lannett products are gluten free.

-----Original Message-----

Sent: Tuesday, March 02, 2010 9:35 PM

To: CustomerService

Subject: Website - Info Request

Comments: My mail order pharmacy just recently outsourced to your

company for a prescription I take. I take levothyroxine 112 mcg. I

need to know if this product is produced with gluten containing

ingredients. I have celiac disease and do not want to consume any medication with gluten inadvertantly. Thanks.

coffeetime Explorer
coffeetime
Posted
  • Author

Here is a response I recieved from them. Keep in mind this was from March 2010. I took it and had no issues, but now I take mylan.

Thank you, I will recheck everything else I'm using but as I mentioned before that is the only thing new. If I can't identify anything else I may ask that the pharmacy use another manufacture to fill my prescription to see if that helps. Thanks again

burdee Enthusiast
burdee
Posted

Thank you, I will recheck everything else I'm using but as I mentioned before that is the only thing new. If I can't identify anything else I may ask that the pharmacy use another manufacture to fill my prescription to see if that helps. Thanks again

What kind of reaction did you have? None of the levothyroxine ingredients contain any kind of foods to which people normally have allergies. Were you given generic levothyroxine? Or were you given Synthroid? Synthroid contains both lactose and acacia, to which many people react.

If you were actually given levothyroxine, could your reaction have been an overdose (hyperthyroid) symptom? I easily get overdose (hyperthyroid) symptoms from Levoxyl (another T4 supplement). I do better with a T3 supplement like Liothyronine.

coffeetime Explorer
coffeetime
Posted
  • Author

What kind of reaction did you have? None of the levothyroxine ingredients contain any kind of foods to which people normally have allergies. Were you given generic levothyroxine? Or were you given Synthroid? Synthroid contains both lactose and acacia, to which many people react.

If you were actually given levothyroxine, could your reaction have been an overdose (hyperthyroid) symptom? I easily get overdose (hyperthyroid) symptoms from Levoxyl (another T4 supplement). I do better with a T3 supplement like Liothyronine.

I was given generic levothyroxine by Lannett. I checked their website and their inactive ingredients, along with lots of color additves are Inactive Ingredients

Colloidal silicon dioxide, lactose, magnesium stearate, microcrystalline cellulose, corn starch, acacia and sodium starch glycolate. I don't have issues with lactose but I don't know what acacia is. I don't have any hyperthyroid symptoms and my T3 number was normal it was the T4 that was low

Tigercat17 Enthusiast
Tigercat17
Posted

Hi,

I've been taking Levoxly 100 from King Pharmaceuticals & it is gluten free the last time I checked -last year. My doctor writes on my prescription "Brand name" so the pharmacy can't give me any generic brands. I'm very sensitive & I've never had any problems with it.

I did take synthyriod for my first three months of being gluten free. I wasn't getting any better on the diet & I know I getting gluten from them for sure. So, my Endo doctor changed me to Levoxly & I finally was able to get better on the gluten free diet.

Open Original Shared Link

coffeetime Explorer
coffeetime
Posted
  • Author

Hi,

I've been taking Levoxly 100 from King Pharmaceuticals & it is gluten free the last time I checked -last year. My doctor writes on my prescription "Brand name" so the pharmacy can't give me any generic brands. I'm very sensitive & I've never had any problems with it.

I did take synthyriod for my first three months of being gluten free. I wasn't getting any better on the diet & I know I getting gluten from them for sure. So, my Endo doctor changed me to Levoxly & I finally was able to get better on the gluten free diet.

Open Original Shared Link

Thanks for the info, I am going to speak to the pharmacy again tomorrow to see if they will perhaps try this brand. Hope it helps :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    2. MichaelDG
      - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.