Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone React To Levothyroxin

coffeetime

Recommended Posts

coffeetime Explorer
coffeetime
Posted

About a week and a half ago my doctor put me back on thyroid medication after looking at all my numbers and not just the "normal" TSH. As I had used thyroid meds for many years in the past I'm excited about having some energy again and hopefully my weight will either stabilize or drop instead of this constant creeping up. My question is has anyone had any problems with this med, the manufacture is Lannett, the pharmacy assures me there is no gluten in this product but I have had migraines almost every day for a week and a half and that is the only new product in my life and migraines are my only "symptom" of being glutened. Thanks everyone.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Here is a response I recieved from them. Keep in mind this was from March 2010. I took it and had no issues, but now I take mylan.

All Lannett products are gluten free.

-----Original Message-----

Sent: Tuesday, March 02, 2010 9:35 PM

To: CustomerService

Subject: Website - Info Request

Comments: My mail order pharmacy just recently outsourced to your

company for a prescription I take. I take levothyroxine 112 mcg. I

need to know if this product is produced with gluten containing

ingredients. I have celiac disease and do not want to consume any medication with gluten inadvertantly. Thanks.

coffeetime Explorer
coffeetime
Posted
  • Author

Here is a response I recieved from them. Keep in mind this was from March 2010. I took it and had no issues, but now I take mylan.

Thank you, I will recheck everything else I'm using but as I mentioned before that is the only thing new. If I can't identify anything else I may ask that the pharmacy use another manufacture to fill my prescription to see if that helps. Thanks again

burdee Enthusiast
burdee
Posted

Thank you, I will recheck everything else I'm using but as I mentioned before that is the only thing new. If I can't identify anything else I may ask that the pharmacy use another manufacture to fill my prescription to see if that helps. Thanks again

What kind of reaction did you have? None of the levothyroxine ingredients contain any kind of foods to which people normally have allergies. Were you given generic levothyroxine? Or were you given Synthroid? Synthroid contains both lactose and acacia, to which many people react.

If you were actually given levothyroxine, could your reaction have been an overdose (hyperthyroid) symptom? I easily get overdose (hyperthyroid) symptoms from Levoxyl (another T4 supplement). I do better with a T3 supplement like Liothyronine.

coffeetime Explorer
coffeetime
Posted
  • Author

What kind of reaction did you have? None of the levothyroxine ingredients contain any kind of foods to which people normally have allergies. Were you given generic levothyroxine? Or were you given Synthroid? Synthroid contains both lactose and acacia, to which many people react.

If you were actually given levothyroxine, could your reaction have been an overdose (hyperthyroid) symptom? I easily get overdose (hyperthyroid) symptoms from Levoxyl (another T4 supplement). I do better with a T3 supplement like Liothyronine.

I was given generic levothyroxine by Lannett. I checked their website and their inactive ingredients, along with lots of color additves are Inactive Ingredients

Colloidal silicon dioxide, lactose, magnesium stearate, microcrystalline cellulose, corn starch, acacia and sodium starch glycolate. I don't have issues with lactose but I don't know what acacia is. I don't have any hyperthyroid symptoms and my T3 number was normal it was the T4 that was low

Tigercat17 Enthusiast
Tigercat17
Posted

Hi,

I've been taking Levoxly 100 from King Pharmaceuticals & it is gluten free the last time I checked -last year. My doctor writes on my prescription "Brand name" so the pharmacy can't give me any generic brands. I'm very sensitive & I've never had any problems with it.

I did take synthyriod for my first three months of being gluten free. I wasn't getting any better on the diet & I know I getting gluten from them for sure. So, my Endo doctor changed me to Levoxly & I finally was able to get better on the gluten free diet.

Open Original Shared Link

coffeetime Explorer
coffeetime
Posted
  • Author

Hi,

I've been taking Levoxly 100 from King Pharmaceuticals & it is gluten free the last time I checked -last year. My doctor writes on my prescription "Brand name" so the pharmacy can't give me any generic brands. I'm very sensitive & I've never had any problems with it.

I did take synthyriod for my first three months of being gluten free. I wasn't getting any better on the diet & I know I getting gluten from them for sure. So, my Endo doctor changed me to Levoxly & I finally was able to get better on the gluten free diet.

Open Original Shared Link

Thanks for the info, I am going to speak to the pharmacy again tomorrow to see if they will perhaps try this brand. Hope it helps :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

      during the gluten challenge I did not consume any wheat germ the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least. no anemia however the endo who ordered...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, I'm sorry you're having such a rough time. How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them. Do you pressure cook your beans? Were you pressure cooking your wheat germ? What drugs are you taking? Some immunosuppressive drugs affect IgA production. Do...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st worst 12 days of my life Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    4. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks. Even at 8000 I felt no noticeable difference. Then after...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

      I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,369
    • Most Online (within 30 mins)
      7,748
    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.