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Gluten Free 15 Days

glutenmik

By glutenmik
in Coping with Celiac Disease

Recommended Posts

glutenmik Newbie
glutenmik
Posted

Hi, I am completely new to being gluten free and new to this board. I have been gluten free for 15 days now and although my constipation went away and I don't have to take heartburn medicine as often. I am wondering a few things. Why is my face still red around my chin. (I am using a gluten free face wash) Also the energy I felt the first few days has dissappeared and now I am wondering if it is more than gluten. I have a lot of back pain issues and I also get pain in my hips, legs, neck and shoulders. I thought these would start to go away after removing gluten. I am having these unusual (for me) craving for milk. My anxiety levels have also gone up a little. I am feeling a bit frustrated. I know this is good for me but wondering how long does it take to feel better?

Thank you for any help

Mikki

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Takala Enthusiast
Takala
Posted

Welcome to your 3rd week of gluten free.

Try ditching soy and dairy and see what happens. You may be able to add some dairy back in, later.

Also, try taking a gluten free B complex vitamin, a multivitamin, and some calcium and magnesium with vit D. Cravings can be caused by the malnutrition caused by gut damage. As you become more in tune with your body, you will initially notice things that were being obscured before, by the overall auto immune reaction.

It will take a while for a consistent joint flare up reaction to go away, in my experience. I still have the arthritis but it is so much lessened now that it is really different - now I know that if I'm eating carefully a minor flare up due to exercise will go away on its own, with rest, within 12 to 23 hours, without medicating it. Gluten flares might take a bit longer. Regular exercise helps this.

Fire Fairy Enthusiast
Fire Fairy
Posted

Hello Mikki,

"Don't Panic" (old catch phrase). It takes time to heal. Takala is right you probably need some supplements and staying off dairy for a little while is probably very wise. My Dr told me to take Twin Labs Daily Two with Iron, Bluebonnet Ubiquinol 100mg, Bluebonnet Cal/Mag/D and Bluebonnet D. Be sure any vitamins/supplements are gluten free. A lot of people recommend a pro-biotic as well.

I'm sure you will get some more responses from some far more knowledgeable than I. I have only been gluten free since November. I feel much better than I did before going gluten free but I am now more sensitive to things that aren't right with my body.

PS forum search, it's a great way to get info, just check the dates because some information is outdated.

possiblyglutensensitive Explorer
possiblyglutensensitive
Posted

I've been gluten free for about 3 weeks and I started to feel better by day 12 or so. The headache (had them for a few months) and nausea (which had become chronic since at least a year), went away. poof, the nausea was gone. The pains in neck and shoulder (had them for years), diminished by about 50%.

My digestion got better immediatelly.

When I got my period 2 days ago, things went downhill, the headaches and nausea and neck kinks were back. As usual the extreme fatigue, depression...

several people have said that the hormones need to regulate themselves the first 3 months or so (maybe longer?). Also, people who have been gluten free for years have said that there are ups and downs, generally speaking.

so let's hang in there.

shopgirl Contributor
shopgirl
Posted

so let's hang in there.

Good for you. :) You seem much more positive already.

glutenmik Newbie
glutenmik
Posted
  • Author

Thank you all for replying. I am going to start taking some supplements. I guess I will work on cutting the dairy and soy also...ugh. I am a chocolate person so that will be hard. :( I just realized today that my hair gel has wheat in it, so maybe that is why my chin has redness. I noticed that my hair rubs against my chin a lot. Thank you for all of the support. :)

Mikki

Takala Enthusiast
Takala
Posted

Enjoy life chocolate chips don't have any bad things in them and can be used for things besides cookies. :rolleyes:

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Financialman Newbie
Financialman
Posted

I was diagnosed with Celiac Disease in November 2009 so I am getting to be an ole pro at this. Unfortunately when you feel better will depend on how long you have been a celiac and if you follow the "correct" lifestyle. I said lifestyle because this is not a diet. Be patient with yourself and learn as much as you can about what you can and cannot eat and you will be just fine.

mushroom Proficient
mushroom
Posted

Well, we will have to respectfully disagree about lifestyle/diet. This is not a lifestyle, because it is not a choice which "style" implies. This is actually a diet, because it is what we have to eat and not eat, thereby indicating lack of choice in non-gluten consumption. It is only not a "diet" if you are looking at the meaning of "diet" to lose weight or combat cellulite or some other reason that is entirely voluntary.

eatmeat4good Enthusiast
eatmeat4good
Posted

Well, the diet effects your whole lifestyle.

I think you are both right.

To the OP-

The chin redness could also be antibodies that have built up in your skin.

If you have had a rash there it could be DH.

Dermatitis Herpetiformis.

That isn't very fast to heal even if you are strictly gluten free and iodine free.

It takes the antibodies a long time to leave the skin.

It could be your hair products too, but I just wanted you to know that it might take a while to get better.

It becomes no man to nurse despair

But in the teeth of clenched antagonisms

To follow up the worthiest until he dies.

:)

Hang in there

It gets better

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      High DGP-A with normal IGA

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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