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Self-diagnosis - Is It Cd? Please Help


kati

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kati Newbie

I stumbled onto this forum and was hoping someone might be able to help me self-diagnose. I have been to a couple of different holistic Docs who tested me and said I was allergic to wheat, barley, corn, etc etc. Anyway, I suffered through a 2 year long bout of gas, gurling tummy, stomach pains and loose bm's... it cleared up for a while once I went ot an allergist who told me to avoid the wheat and stuff... anyway in November my stomach problems came back with a vengence... and it has been constant since then - just terrible. I do not want a diagnosis mentioning any "disease" on my medical records as we are really close to completing an international adoption and that would look bad on our medical reports... so I picked up a magazine in Sprouts on Saturday and it described exactly what I was going through.... so I guess what I am looking for is confirmation of sorts that this could be the answer to my problems.... any advice, information etc would be great.. thanks


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angel-jd1 Community Regular

This website along with the message board has a plethora of information. You might want to try looking on the site and searching the message board for the great information.

-Jessica :rolleyes:

SadiesMomma Apprentice

What sorts of things are you allergic to?

I too am allergic to corn, wheat, dairy, soy, nuts, eggs.. you name it its probably on my forbidden list.

Were all here to help... The site is wonderful and can help you learn a LOT about Celiac. Good luck. and congrats on the new soon to be kiddo in your lives!

kati Newbie

SadiesMomma - I sound like you.... I am allergic to bananas, potatoes, corn (in any form) pectin, brocolli, cauliflower, buckwheat, wheat, soy, dairy, and the list goes on...... in reality I seriously think I have celiac disease, apparently my Mother said we were all allergic to milk when we were kids (all 6 of her kids) grrr she only told me this on Sunday.... I still eat bannana's and some of the veggies, even though the allergist told me that I am allergic to them, its just that there is a limit to not eating... lol... I am going to avoid gluten from now on, and dairy of course.. "rice milk is my friend" I will see how it goes.... I am fairly certain that I can control my "IBS" like symptoms this way....

Thanks for the congrats on the kiddies...

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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