Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oats


icuski2

Recommended Posts

icuski2 Newbie

I was recently diagnosed with Celiac. I wasn't having the usual symptoms (no stomach issues) but it was really tough on my blood sugars (Type I diabetic).

I am doing well but confused about one area . . . Oats. Are they safe or aren't they? Obviously gluten-free oats are fine, but what about main stream oats?

For example, Nature Valley granola bars ingredients are: whole grain oats, sugar, canola oil, yellow corn flour, honey, soy flour, brown sugar syrup, salt, soy lecithin, baking soda and natural flavors.

None of those ingredients seem to be an issue - other than maybe the oats.

I also love cereal and found the only "potential" bad ingredient in Cap'n Crunch cereal to be "oat flour".

I was told this is the best resource for questions like this. So I am asking you, the experts . . .

Thanks in advance for any information you can provide.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Mainstream oats have a higher rate of cross-contaimination with gluten containing grains. They can be grown in the same fields, stored in the same silos and processed on the same equipment. Some people can not tolerate even gluten-free oats because they cause the same type of gluten reaction.

sa1937 Community Regular

I would not eat Cap'n Crunch because of oats for the reasons Dixiebell mentioned. Another ingredient to watch for in a lot of cereals is malt, which is usually made from barley and therefore is not safe.

General Mills does have some gluten-free cereals available, namely Chex, which are marked gluten-free on the box (obviously not Wheat Chex).

Lisa Mentor

Cap'N Crunch Sweetened Corn & Oat Cereal

Ingredients

Corn Flour, Sugar, Oat Flour, Brown Sugar, Coconut Oil, Salt, Niacinamide (One of the B Vitamins)Yellow 5, Reduced Iron, Zinc Oxide (a Source of Zinc)Yellow 6, Thiamin Mononitrate (One of the B Vitamins)BHT (a Preservative)Pyridoxine Hydrochloride (One of the B Vitamins)Riboflavin (One of the B Vitamins)Folic Acid (One of the B Vitamins)

As an eight year old, Capt. Crunch was one of my favs, not offered often by the step-mom :angry: . The thought of it now, is icky.

I see no ingredient that is alarming. Only alarming is the chemical mixture.

All the Chex Cereals are gluten free. Can you try to give them a go?

To answer you question.... oats are gluten free, but processing leaves them suspect to cross contamination. Many people will Celiac can handle eating it, others cannot.

sa1937 Community Regular

Some of the Post cereals have also been reformulated to eliminate malt. Specifically some, but not all, of the Pebbles cereals like Cocoa Pebbles for instance. Don't know if they have hit grocer's shelves yet or not. You'd have to read the labels to see if they have gluten-free on the box.

Too bad Kelloggs is lagging behind by not reformulating their cereals to eliminate malt. :ph34r:

T.H. Community Regular

Cap'N Crunch Sweetened Corn & Oat Cereal

Ingredients

Corn Flour, Sugar, Oat Flour, Brown Sugar, Coconut Oil, Salt, Niacinamide (One of the B Vitamins)Yellow 5, Reduced Iron, Zinc Oxide (a Source of Zinc)Yellow 6, Thiamin Mononitrate (One of the B Vitamins)BHT (a Preservative)Pyridoxine Hydrochloride (One of the B Vitamins)Riboflavin (One of the B Vitamins)Folic Acid (One of the B Vitamins)

I see no ingredient that is alarming. Only alarming is the chemical mixture.

wouldn't the oat flour be an issue?

Roda Rising Star

Main stream oats and oat flour are a no due to the high cross contamination. There are several brands of certified gluten free oats that are available. I would wait awhile before adding them in until you start to heal and then take it slow with them. I was 7 months into gluten free before I tried the gluten free oats and low and behold I reacted violently to them. It is reported that around 10-15% of celiacs cannot tolerate them and it can cause the same symptoms and damage as guten. Unfortunately I fall in that category. There are plenty of folks who do eat them without problems. If you do well with them it opens up more options for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacAndCfsCrusader Apprentice

Since you're newly diagnosed, eliminate ALL possible sources of Gluten.

Once you're on track and better equipped to know how your body is off of the gluten, you can experiment a bit.

It's been 3+ years since I've been diagnosed and I'm still taking baby steps.

But, when I tried the "certified" gluten-free oats, I reacted. Go figure.

I've resigned myself that my GI Tract is very sensitive and I take any reaction as a warning that I'm at risk for doing unseen damage. Some things are just not worth it, I can live without oats.

My latest venture is seeing whether I'm also reactive to sorghum. Doesn't make any sense that I would be, other than cc, but you'll help yourself if you figure out your own body. You know it best.

Tina B Apprentice

I was recently diagnosed with Celiac. I wasn't having the usual symptoms (no stomach issues) but it was really tough on my blood sugars (Type I diabetic).

I am doing well but confused about one area . . . Oats. Are they safe or aren't they? Obviously gluten-free oats are fine, but what about main stream oats?

For example, Nature Valley granola bars ingredients are: whole grain oats, sugar, canola oil, yellow corn flour, honey, soy flour, brown sugar syrup, salt, soy lecithin, baking soda and natural flavors.

None of those ingredients seem to be an issue - other than maybe the oats.

I also love cereal and found the only "potential" bad ingredient in Cap'n Crunch cereal to be "oat flour".

I was told this is the best resource for questions like this. So I am asking you, the experts . . .

Thanks in advance for any information you can provide.

I've eaten the granola bars for years with no problem. I was diagnosed a long time ago when there was no special "gluten free" labels and there is nothing in them that contains gluten.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.