Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh & Celiac?


meganbunch89

Recommended Posts

meganbunch89 Newbie

EDIT***********************

Lets try this link. Hopefully it will work.

Open Original Shared Link

Open Original Shared Link

Hi, I'm a 21 year old female.....trying to figure out if this looks like DH? I broke out in this rash several different times the past couple of months....lasted for a few days each time (didn't use any sort of treatment, because my curiousity gets the best of me...I like to observe the reaction.) This rash starts out as a intense burning sensation on my arms...then these bumps appear. They do itch but not unbearably. The rash was from my elbows down on both arms. Along with that random rash, I do have blister type bumps on the back of my thighs and..well, on my bottom sometimes. These last for weeks. Seems like since I started college a little over a year ago my health has just...completely went down the drain. I've always had digestive issues...mostly constipation when I was younger..mom always said I had a strangely large stomache.

Since college....here are my symptoms that seems to be getting unbearable...going to the doctor next week because I JUST got insurance. THANK THE LORD!

Symptoms:

In order of most annoying..lol

Arm/hand & toe numbness and tingling- So bad I want to chop them right off.

Bloating- enough that people ask how far along I am.

All the digestive embarresments- If you can imagine it, I have it.

Extreme fatigue- So tired I have to nap before doing anything strenous...like washing my 4 year olds hair.

Memory Loss- This is really debilitating. My whole day consist of searching for....everything. I loose EVERY thing that touches my hands.

Morning sickness- no I am not pregnant. There would be a baby by now! lol. Had this for wayyyy too long.

Nausea- Randomly get sick throughout the day.

Lack of coordination- I bump into lots of stuff.

Itchy skin- Feel pretty itchy all over, first year my head has ever really itched insanely bad. Talk about some nasty dandruff. yuck.

Anxiety- Did go to the doctor last year once when I had some money saved over some breathing difficulties, which they concluded as anxiety before even hearing me out. I refused treatment, because I refuse to believe i am simply stressed. However, since my health has gotton so much worse since then, I am getting depressed because no one believes the way I feel....and they don't show any sympathy. It's really annoying.

HISTORY- got a family history of autoimmune disorders such as Thyroid disorders, RA, Lupus, uh...and another one, forgot what it is.

I did do a VERY STRICT trial diet...about a week 1/2. Felt completely better. Honestly....my energy levels spiked so high it was almost unreal. Bloating was gone. Didn't look 9 months. I felt fantastic. Can't wait to get this checked out by a Dr.

So any help or opinions would be greatly appreciated. THanks~!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Your link doesn't work for me. To share a photo on FB here, you have to have your privacy settings allow anyone to see your photos. You should be able to link to an image on a picture-sharing site like flikr or photobucket.

eatmeat4good Enthusiast

You have neurological, dermatological, and gastrointestinal symptoms that are all very consistent with Celiac disease.

In addition your gluten free trial went very well.

You may not test positive for Celiac by blood tests or biopsy as there is a high rate of false negatives particularly for people who have the Dermatitis Herpetiformis. But you may be able to get a biopsy of the skin next to a lesion where the IgA antibodies will be found.

If this is your problem you will need to be very stricly gluten free and avoid iodine to heal the sores. Iodine can activate the lesions. It is found in vitamins, iodized salt, shellfish, asparagus, and that sushi seaweed paper. It will prevent healing of the sores. I am 4 months gluten free and still the lesions get activated by slight cross contamination and/or iodine.

I hope you will be able to be gluten free soon and I think all your symptoms will start clearing.

I had almost everything you describe. Everything is gone except the DH sores so I just started Dapsone.

It takes a long time for the antibodies to leave the skin.

But the pain and itching go away sooner.

Hope you feel better soon.

running-girl Rookie

It looks like my rash. I'm still waiting for a diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,065
    • Most Online (within 30 mins)
      7,748

    Maria A
    Newest Member
    Maria A
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.