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Looking For A Doctor Who Cares In Ab Or Sk Canada


jlee2

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jlee2 Rookie

Hi all!

I am looking for a doctor who takes time to listen and has experience with Celiac patients. I am at a loss of how to start feeling better after 10+ yrs of suffering. Here is a bit of my story;

I am 22 and at the age of 12 I developed severe stomach problems -- after much testing and frustration they decided it was lactose intolerance. I stopped all dairy. After not feeling better they diagnosed me with IBS and I was told there is nothing they could do for me basically go home and try to figure out my trigger foods. I never did start feeling better so I started getting passed around different physicians and Gastro's none really caring to help all that much. Started getting depressed. Took myself off gluten. Finally found a doc who cared enough to order a scope but it came back neg for celiac as I was not eating gluten. I got a parasite from swimming in a river, then got C Diff from antibiotics. (what a great summer that was). Started eating gluten again and was formally diagnosed with celiac. Since then I have been extremely strict and growing up my family was great with it (2 aunts have celiac so we all knew what it was about). I go through extremely bad phases still where somedays I will get so sick I have to be hospitalized for a week due to severe dehydration. I never know if it is from the celiac or IBS. I have had 4 gastroscopy's, 2 colonoscopy's, 1 endoscopy, 2 CT scans, an MRI, a radio active white blood cell scan, 2 ultrasounds, barium x-rays, and thousands of blood tests. I have seen the best doctor at the U of A Dr. Fedorak and he called me his mystery patient and left it at that. I have seen holistic healers nutritionists etc. If anyone can help please please do so! I am sick and tired of being sick. Thankfully my boyfriend of 5 years has supported me through everything and almost gone gluten-free himself lol!

I am SO sorry for the long post!!


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    • cristiana
      It's strange because I'm pretty sure not too long ago I picked up a loaf of bread with B vitamins, but I can't find a single one now.  Probably cutbacks, everyone's trying to save money now!
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    • Rogol72
      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
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