Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Gluten Withdrawals


SeanxAhern

Recommended Posts

SeanxAhern Newbie

Hi there everyone. I'm new to the forum and also new to the gluten-free diet. I have been gluten and casein free for the past 3 weeks, with a few minor accidents; however, I have been having extreme withdrawal symptoms. I've always had anxiety disroders, but it has dramatically increased since going on a gluten-free diet. I have been nervous with almost no provocation and had multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes" and also have been feeling extremely fatigued. My gastrointestinal problems are essentially how they were before I started the diet and I think the fatigue is improving. I was just wondering if these symptoms are normal? And if eating a small amount of teriaki sauce last night by accident(one small sliver of meat basted with it), and accidentally ingesting soy sauce over a week ago will prolong my withdrawals? Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moggio Rookie

Hi there everyone. I'm new to the forum and also new to the gluten-free diet. I have been gluten and casein free for the past 3 weeks, with a few minor accidents; however, I have been having extreme withdrawal symptoms. I've always had anxiety disroders, but it has dramatically increased since going on a gluten-free diet. I have been nervous with almost no provocation and had multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes" and also have been feeling extremely fatigued. My gastrointestinal problems are essentially how they were before I started the diet and I think the fatigue is improving. I was just wondering if these symptoms are normal? And if eating a small amount of teriaki sauce last night by accident(one small sliver of meat basted with it), and accidentally ingesting soy sauce over a week ago will prolong my withdrawals? Thank you.

Hi!

I've been glutenfree for almost three months now and I had similar withdrawal symptoms to your symptoms the first month. I had a lot of panic attacks,freaked out on an airpane and stuff and a burning sensation in my tummy and throat. I've been having the burning sensations on and off since but not very often.I've been very hungry all the time and bloated but its getting better. My heart acted really weird also the first weeks and I even called the hospital on two occasions.

I can't believe how strong the power of gluten is!

Are you extremely hungry too?

ravenwoodglass Mentor

Part of it may be a reaction to the gluten you accidently injested. After we go gluten free our reaction to small amounts can be intensified. That is normal as it is your bodies way of telling you that you are doing the right thing and it really doesn't want gluten. If you can go with mostly unprocessed whole naturally gluten free foods that is best for now as it will bring down your chances of accidently getting gluten.

Make sure you have done the things you need to do to degluten your home, a new dedicated toaster, replacing scratched pans, new colander and cutting board and don't bake with flour for others.

It can take a couple of weeks for the withdrawl to be over, take it easy on yourself during this time. A nice hot bath right before bed may help. If you are suffering greatly from lack of sleep perhaps contact your doctor and ask for advice or a short term prescription for something to help. If you do use any OTC or script drugs or supplements do make sure that they are gluten free.

IrishHeart Veteran

Hi!

I've been glutenfree for almost three months now and I had similar withdrawal symptoms to your symptoms the first month. I had a lot of panic attacks,freaked out on an airpane and stuff and a burning sensation in my tummy and throat. I've been having the burning sensations on and off since but not very often.I've been very hungry all the time and bloated but its getting better. My heart acted really weird also the first weeks and I even called the hospital on two occasions.

I can't believe how strong the power of gluten is!

Are you extremely hungry too?

Hi guys!

I had the SAME symptoms the first few weeks---accelerated anxiety, difficulty sleeping, tummy and throat burning, feeling out of sorts, bloated, heart palps and yes! very hungry!! (which is good, I guess as I could not/did not want to eat much for a long time)....but lots of people on here told me this happens and it will pass. That made me feel a whole lot better.

It is pretty weird, but just proof that the gluten has got to go!

Hang in there. I will too!!:>)

Ginny

kwylee Apprentice

multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes"

You're describing my exact symptoms during "withdrawal", and that lasted about 3 weeks for me. I know it makes you feel badly and it was definitely a little frightening at times, but it was great comfort to come to this forum and find MANY people who knew exactly what I was going through, and that it was absolutely normal for my body to be reacting that way. Not sure why, but hot showers helped me (perhaps aided in detox, unsure). Just hang on, let your body do its thing, and know that you're not alone.

SeanxAhern Newbie

Wow, thank you so much all of you for the positive and uplifting responses! I hope you're all feeling better from your individual experiences. In addition to my other symptoms, yes, I have been extremely hungry! I'm trying to stay away from processed foods as much as possible it's just very hard when constantly on the go; however, I have been pretty ardent about checking labels and doing research for hidden gluten. I've also been having headaches and weird pupil dilations which I assume is also related tot he fatigue and withdrawals. It helps a lot knowing that I'm not alone. Thanks, hopefully it'll be over soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.