Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Gluten Withdrawals


SeanxAhern

Recommended Posts

SeanxAhern Newbie

Hi there everyone. I'm new to the forum and also new to the gluten-free diet. I have been gluten and casein free for the past 3 weeks, with a few minor accidents; however, I have been having extreme withdrawal symptoms. I've always had anxiety disroders, but it has dramatically increased since going on a gluten-free diet. I have been nervous with almost no provocation and had multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes" and also have been feeling extremely fatigued. My gastrointestinal problems are essentially how they were before I started the diet and I think the fatigue is improving. I was just wondering if these symptoms are normal? And if eating a small amount of teriaki sauce last night by accident(one small sliver of meat basted with it), and accidentally ingesting soy sauce over a week ago will prolong my withdrawals? Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moggio Rookie

Hi there everyone. I'm new to the forum and also new to the gluten-free diet. I have been gluten and casein free for the past 3 weeks, with a few minor accidents; however, I have been having extreme withdrawal symptoms. I've always had anxiety disroders, but it has dramatically increased since going on a gluten-free diet. I have been nervous with almost no provocation and had multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes" and also have been feeling extremely fatigued. My gastrointestinal problems are essentially how they were before I started the diet and I think the fatigue is improving. I was just wondering if these symptoms are normal? And if eating a small amount of teriaki sauce last night by accident(one small sliver of meat basted with it), and accidentally ingesting soy sauce over a week ago will prolong my withdrawals? Thank you.

Hi!

I've been glutenfree for almost three months now and I had similar withdrawal symptoms to your symptoms the first month. I had a lot of panic attacks,freaked out on an airpane and stuff and a burning sensation in my tummy and throat. I've been having the burning sensations on and off since but not very often.I've been very hungry all the time and bloated but its getting better. My heart acted really weird also the first weeks and I even called the hospital on two occasions.

I can't believe how strong the power of gluten is!

Are you extremely hungry too?

ravenwoodglass Mentor

Part of it may be a reaction to the gluten you accidently injested. After we go gluten free our reaction to small amounts can be intensified. That is normal as it is your bodies way of telling you that you are doing the right thing and it really doesn't want gluten. If you can go with mostly unprocessed whole naturally gluten free foods that is best for now as it will bring down your chances of accidently getting gluten.

Make sure you have done the things you need to do to degluten your home, a new dedicated toaster, replacing scratched pans, new colander and cutting board and don't bake with flour for others.

It can take a couple of weeks for the withdrawl to be over, take it easy on yourself during this time. A nice hot bath right before bed may help. If you are suffering greatly from lack of sleep perhaps contact your doctor and ask for advice or a short term prescription for something to help. If you do use any OTC or script drugs or supplements do make sure that they are gluten free.

IrishHeart Veteran

Hi!

I've been glutenfree for almost three months now and I had similar withdrawal symptoms to your symptoms the first month. I had a lot of panic attacks,freaked out on an airpane and stuff and a burning sensation in my tummy and throat. I've been having the burning sensations on and off since but not very often.I've been very hungry all the time and bloated but its getting better. My heart acted really weird also the first weeks and I even called the hospital on two occasions.

I can't believe how strong the power of gluten is!

Are you extremely hungry too?

Hi guys!

I had the SAME symptoms the first few weeks---accelerated anxiety, difficulty sleeping, tummy and throat burning, feeling out of sorts, bloated, heart palps and yes! very hungry!! (which is good, I guess as I could not/did not want to eat much for a long time)....but lots of people on here told me this happens and it will pass. That made me feel a whole lot better.

It is pretty weird, but just proof that the gluten has got to go!

Hang in there. I will too!!:>)

Ginny

kwylee Apprentice

multiple panic attacks while just trying to fall asleep! I'be woken up in the middle of the night with the "shakes"

You're describing my exact symptoms during "withdrawal", and that lasted about 3 weeks for me. I know it makes you feel badly and it was definitely a little frightening at times, but it was great comfort to come to this forum and find MANY people who knew exactly what I was going through, and that it was absolutely normal for my body to be reacting that way. Not sure why, but hot showers helped me (perhaps aided in detox, unsure). Just hang on, let your body do its thing, and know that you're not alone.

SeanxAhern Newbie

Wow, thank you so much all of you for the positive and uplifting responses! I hope you're all feeling better from your individual experiences. In addition to my other symptoms, yes, I have been extremely hungry! I'm trying to stay away from processed foods as much as possible it's just very hard when constantly on the go; however, I have been pretty ardent about checking labels and doing research for hidden gluten. I've also been having headaches and weird pupil dilations which I assume is also related tot he fatigue and withdrawals. It helps a lot knowing that I'm not alone. Thanks, hopefully it'll be over soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.