Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free For Two Days...withdrawals!?

Taylormw

Recommended Posts

Taylormw Newbie
Taylormw
Posted

Hello,

I have found (we think) that I am gluten intolerant. I tested negative for celiacs, but with all the symptoms I've had since I was little (and the number just keeps growing) it makes complete sense now.

Skipping all of that, I'll tell you I am 17 year old girl and i've been gluten free for two days (today is day 2)...however, especially today, I have felt extremely irritable you could say/frustrated I suppose...and there is no actual reason for me to feel this way. It's strange, I feel like I want to eat but I am actually not hungry at all. I haven't had stomach pain which is good.

Could this be from my new diet??? Will it subside soon?!

I'm super new at this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RachelisFacebook Apprentice
RachelisFacebook
Posted

Hello,

I have found (we think) that I am gluten intolerant. I tested negative for celiacs, but with all the symptoms I've had since I was little (and the number just keeps growing) it makes complete sense now.

Skipping all of that, I'll tell you I am 17 year old girl and i've been gluten free for two days (today is day 2)...however, especially today, I have felt extremely irritable you could say/frustrated I suppose...and there is no actual reason for me to feel this way. It's strange, I feel like I want to eat but I am actually not hungry at all. I haven't had stomach pain which is good.

Could this be from my new diet??? Will it subside soon?!

I'm super new at this.

Hello Dear!

You can absolutely be gluten intolerant without celiac. Also, there are false negatives all the time. However, that's not your answer.

What you're facing is completely normal. Your body realizes it can eat without being sick, and is craving nutrients. You'll level out with time, trust me. :)

  • 2 weeks later...
kim:) Apprentice
kim:)
Posted

Hello,

I am also 17 and I have been on the Gluten Free diet for around 6-7 years now. It honestly is not as bad as it seems, it just take a lot of getting use to. These days its of course hard to start randomly taking wheat out of your diet yet it is completely worth it. Just make sure that if it is making you feel better that you dont cheat yourself and eat wheat once in a while thinking that it is going to be ok. After a while wheat wont even really look that appealing and you wont even be craving anything like that. Ok so I admit that sometimes it would be lovely to pop down a poptart in the toaster or eat some cheeze-its but I dont and in the end it is ok :) If you ever want great recipies or anything just let me know because I would be glad to help you out. It can be a scary thing not knowing exactly what you can eat and ya the hunger is just a mental thing for now because everything looks "tempting" but it will pass with time.

Good Luck!

lizzy951 Newbie
lizzy951
Posted

i have been with it for 3-4 weeks and my stomach has felt alot better :)

  • 1 month later...
MichaelJacksons#1Fan Newbie
MichaelJacksons#1Fan
Posted

Yes! The first week is the hardest. Basically, you don't have the nutrients you need to survive, but your body is saying you need more nutrients than usual. Bread has lots of essential nutrients and carbs for instant energy. What you need to do right now is try to eat things with the most nutrients. The things I would recommend are:

Chex Gluten-Free cereal (DELICIOUS!)

Brown Rice or Quinoa spaghetti with Ragu (Yay! gluten free :wub:)

Gluten free bread--Ener-g makes a great brown rice loaf!

Nature valley nut bars good treat

Look up recipes using Chex cereals easy to make and gluten free

Lastly, for a sweet tooth Betty Crocker gluten-free baking mixes.

I had the BIGGEST cravings for sweets at first and Betty Crocker got me through the first few weeks. I hope this helps! Congratulations on living a gluten-free life!

MichaelJacksons#1Fan =D

  • 5 months later...
jessthirtytwo Apprentice
jessthirtytwo
Posted

I had similar withdrawal symptoms as well! Your body has become dependent and almost addicted to gluten since you cannot tollerate it. This results in withdrawal-like symptoms. I was totally asymptomatic before I was diagnosed but as soon as I started eating gluten-free I had stomach pains every night and was very irritable and tired. My symptoms only lasted for a week. Hang in there, gluten-free life is so worth it :)

Jess

DanPatch Rookie
DanPatch
Posted

Hmm...Is it still possible to have this after 4-5 months? I was diagnosed in May of this year, and still I find myself eating things, while not necessarily being hungry...It's really strange for me to do this, because I have not in the past, and I kind of attributed it to stress or something.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jessthirtytwo Apprentice
jessthirtytwo
Posted

Hmm...Is it still possible to have this after 4-5 months? I was diagnosed in May of this year, and still I find myself eating things, while not necessarily being hungry...It's really strange for me to do this, because I have not in the past, and I kind of attributed it to stress or something.

yeah, i was diagnosed in may of this year as well and i have read that withdrawal can last anywhere from a couple weeks to a few months depending on the severity of your gluten intolerance. also, gluten free food does not contain as much fiber and nutrients as gluten rich food (bread, pasta). i definitely find myself really hungry even after i have just eaten. make sure you are getting enough fiber, that should help.

  • 2 months later...
MirzahT Newbie
MirzahT
Posted

Hello,

I have found (we think) that I am gluten intolerant. I tested negative for celiacs, but with all the symptoms I've had since I was little (and the number just keeps growing) it makes complete sense now.

Skipping all of that, I'll tell you I am 17 year old girl and i've been gluten free for two days (today is day 2)...however, especially today, I have felt extremely irritable you could say/frustrated I suppose...and there is no actual reason for me to feel this way. It's strange, I feel like I want to eat but I am actually not hungry at all. I haven't had stomach pain which is good.

Could this be from my new diet??? Will it subside soon?!

I'm super new at this.

Yes it is from going gluten free, it should go away soon but somtimes it can take up to six weeks to start feeling normal-ish when i went off gluten i went through major withdrawl. just spend your days in bed and dont try to do much for about a week. sleep alot, and remember THIS TOO WILL PASS

kareng Grand Master
kareng
Posted

Yes it is from going gluten free, it should go away soon but somtimes it can take up to six weeks to start feeling normal-ish when i went off gluten i went through major withdrawl. just spend your days in bed and dont try to do much for about a week. sleep alot, and remember THIS TOO WILL PASS

You are respnding to someone from over a year ago. Hopefully, they have resolved this issue by now.

MirzahT Newbie
MirzahT
Posted

You are respnding to someone from over a year ago. Hopefully, they have resolved this issue by now.

oh oops

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues. The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves...
    2. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem. Just a few other thoughts. I had debilitating anxiety prior to my diagnosis. I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice: for depression, The Depression...
    3. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations...
    4. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @knitty kitty are you kidding? I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found...
    5. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before. I think maybe the thrush made it worse, I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748
    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.