Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Contamination Symptoms

AerinA

Recommended Posts

AerinA Rookie
AerinA
Posted

Hi everyone :)

I was just wondering what some of you all experience when you get glutened.

I've been gluten free a month now, and I'm not sure if that's long enough to be able to tell when I've been contaminated, but I feel so much better now that I think it's likely I'll feel different if I eat gluten. Not sure how sensitive I am, either. Is there a good way to "test" how sensitive I am and find out what symptoms I have without intentionally eating gluten? And how long do I have to be on the diet before I will be able to tell?

I've had some very strange stomach cramps in the last two weeks, almost like period cramps but in my guts, I'm not sure if it's adjusting, healing, or just confused--or whether that's a sign I've eaten wheat by accident. Would really help me know what I have to do to avoid gluten if I could tell when I'd eaten it.

Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AerinA Rookie
AerinA
Posted
  • Author

I have to update this... I'm pretty sure I got contaminated pretty hard at some point over the last few days. I've been having bouts of extreme stomach pain, it seems like my guts are clamping or something, it's extremely painful, and there is a really sharp cramp that I get to the right of the middle of my lower abdomen (if that makes sense.) Sometimes it sort of spasms and sends shocks all the way up my lower back toward my kidneys. Last night I ended up on the couch unable to move for about an hour... I feel better this morning but I can feel that it's still "there." Is this what happens when you get cc? I'm terrified there's something in my diet that has gluten that I don't know about, might have been my latte even... anybody feel like this? Know how much cc it would take to cause this? (I don't think I could possibly have gotten much,) or know how long this will take to go away? Or how long ago I would have gotten cc'd before the symptoms start?

Help please :(

SaraKat Contributor
SaraKat
Posted

My symptom happens a few days later and it is a really sharp pain under the left ribcage and sometimes it will wrap around to the side and back. The last time it happened I had been eating Hershey's mini candy bars (maybe 5 a day for a week straight). I thought they were gluten-free and they weren't. It took about a month to have that left sided pain go away again.

As far as lattes go- I do order them from Starbucks occasionally and have never had a problem.

Terri O Rookie
Terri O
Posted

I have to update this... I'm pretty sure I got contaminated pretty hard at some point over the last few days. I've been having bouts of extreme stomach pain, it seems like my guts are clamping or something, it's extremely painful, and there is a really sharp cramp that I get to the right of the middle of my lower abdomen (if that makes sense.) Sometimes it sort of spasms and sends shocks all the way up my lower back toward my kidneys. Last night I ended up on the couch unable to move for about an hour... I feel better this morning but I can feel that it's still "there." Is this what happens when you get cc? I'm terrified there's something in my diet that has gluten that I don't know about, might have been my latte even... anybody feel like this? Know how much cc it would take to cause this? (I don't think I could possibly have gotten much,) or know how long this will take to go away? Or how long ago I would have gotten cc'd before the symptoms start?

Help please :(

Hi! I too am only gluten-free for a short time and I wondered this too. Your symptoms sound exactly like what I get if I get a little bit of gluten! What I find odd is that it seems to affect me so much more now that I have been gluten free! This is a very frustrating time for us to be sure! Sometimes I dont want to eat ANYTHING at all for fear that cramping will come back! T

AerinA Rookie
AerinA
Posted
  • Author

I get lattes from Caribou all the time, their syrups are gluten free... last night I ordered a caramel high rise, which has caramel SAUCE on it (sometimes). I didn't notice whether they had put the drizzle on this time or not, but I hadn't even thought about it. I've heard a lot of people have delayed reactions and I have NO idea what could have done this if it wasn't that latte... which is pretty frightening. I have considered it might have been multiple exposures, since I had some problems the day before yesterday, but it intensified last night. I'm afraid to eat :(

AerinA Rookie
AerinA
Posted
  • Author

Hi! I too am only gluten-free for a short time and I wondered this too. Your symptoms sound exactly like what I get if I get a little bit of gluten! What I find odd is that it seems to affect me so much more now that I have been gluten free! This is a very frustrating time for us to be sure! Sometimes I dont want to eat ANYTHING at all for fear that cramping will come back! T

I'm so glad it's not just me, I really thought I was going to have to go to the hospital, except it started feeling a LITTLE better so I figured I probably wasn't dying, haha. I knew I'd get more sensitive but holy cow... did not expect that violent of a reaction. I figured that had to be it because I've never felt that kind of pain before.

One other thing I thought of though, I bought some trader joe's stuff with the G symbol on it, but one of the things says something about manufactured in a facility that processes wheat products... but that they use good manufacturing procedures... does anybody know whether this stuff is safe? I mean... I was told anything with the G was okay, but this sounds really sketchy to me. Maybe I accidentally ate something like that without noticing?

patylu Rookie
patylu
Posted

I'm so glad you guys are posting about this! I was about to post something very similar. I have also been gluten-free for about a month and have problems here and there. I think I'm eating gluten-free but maybe I ate something with gluten and didn't know? Last night I felt terrible and today I feel a little better but just sort of blah and tired. I thought it was maybe something I had eaten at lunch yesterday afternoon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,161
    • Most Online (within 30 mins)
      7,748
    DAR girl
    Newest Member
    DAR girl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By trents · Posted

      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
×
×
  • Create New...