Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidental Gluten In Diet


mandigirl1

Recommended Posts

mandigirl1 Enthusiast

:blink: Listen everyone......I have an experience to share with you....

One of my favorite foods (ever since Im a little girl) has been Corn Pop cereal...you know which one? the sugary kind in the yellow box? I forgot the brand)

Well, it just so happened that I screwed up and ate an entire box of the cereal.....and just TODAY learned that if you look at the label on the box it clearly says THIS PRODUCT CONTAINS WHEAT INGREDIENTS.

I NEVER had reason to double check the label....I just foolishly ate them without checking. Since being diagnosed with celiac disease 6 years ago, I remember enjoying the cereal...especially since the label said nothing about wheat!

It took my boyfriend to be more careful with my gluten-free diet than ME......luckily he noticed it while food shopping for me!!!! It never dawned on me to look at the label. I assumed it was okay, because, 6 years ago it was!!!

Now I dont know if this is a new label/warning they put on the box, since we've made more progress with celiac disease "politically" by raising public awareness. I have read about manufactors having to be more careful to list allergic ingredients.....I think laws have been made/enforced finally!!!!

I am beyond being upset about the fact that Ive unknowingly consumed a box of this non gluten-free cereal!!!!

Ironically, not knowing the cereal was non gluten-free, I suffered a major "attack". I was sooooo sick!!! No one including me or my doctor thought it might be celiac disease related!!!!! We thought everything else instead--a stomach flu, food poisoning, etc. I was so sick I layed in bed crying in pain!!! Plus I was so damn nausea, I felt like I had to throw up every second, but couldnt. Of course my stomach was killing me. I was shaking......cold and hot at the same time!!!!!! This was as bad of an attack as 6years ago, when I was finally diagnosed (after eating a bowl of Cream of Wheat!!!) if not worse! All I remember I kept saying while crying on and on was, "I wouldnt wish this on my own worst enemy!!!)

I didnt suspect it was celiac disease because I am so DAMN careful and watch everything I eat.....I thought "I didnt eat anything with gluten, so why think its that?" Needless to say it was the worst experience. I really needed a hospital but didnt go......what could they have done for me anyway, if it was Celiac??? There's no remedy/medicine to get rid of it......it just has to "run its course", right?????

Well, looking back, it all makes sense. I ate a box of gluten (MY WORST NIGHTMARE!!!!!!!!) because I was careless in not double checking the label.

For me, it was an episode, unrelentless, went on for hours. All I could do (besides drive my boyfriend crazy) was CRY!!!!! I never ever experienced such nausea in all my 32 years!!!!! My mom pointed out to me, in an attempt to calm my nerves regarding the pain.......

Wait....you didnt have children yet.....wait til you experience labor and childbirth!!!!

So Celiacs, my message:

Be Very Careful!!!!!

Spread the word about Corn Pop cereal!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Yes, alot of things that you think would be gluten free turn out not to be. You can have Fruity and Cocoa Pebbles by Post though :D They are a Kraft brand and will not hide anything.

Anyways, this is an example of why it is so important to read labels. At least now you know so you don't consume it anymore. I have made that mistake before as well with Rice Krispies when I first started the diet.

There are some things you can do to ease symptoms when you get a reaction but there is not much you can do but let it run its course. I find I get extreme nausea with reactions and hot peppermint, ginger, chamomile teas help soothe my stomach and then I have some comfort foods that seem to help as well. So I mean there are things you can try to help but thats it.

I hope you feel better quickly.

KAthyB Newbie

When my daughter was first diagnosed in March of 2003 I was constantly on the message boards and saw the warning that Corn Pops which were always gluten-free were changing the ingredients. I went out and bought a box from the last gluten-free batch. Genuardi's/Safeway make a corn nuggets cereal that is very much like the corn pops and is gluten-free. Sorry you found out the hard way. Hope you feel better soon.

Kathyb

Carriefaith Enthusiast

Gluten reactions are no fun. I'm sorry you had to go through that :(

Wait....you didnt have children yet.....wait til you experience labor and childbirth!!!!
:D That's funny, but I bet some people's gluten reactions are just as bad.
mytummyhurts Contributor

When I was diagnosed last year, my doctor gave me a list of gluten-free food and Corn Pops was on it. I looked at the label at the store and one of the first ingredients was wheat. Obviously they need a new list.

lovegrov Collaborator

Corn Pops added wheat for the first time several months ago.

richard

Merika Contributor

Hey Mandigirl,

Sorry about your troubles with the corn pops. :o If it's encouraging at all, I think you might find childbirth less troublesome and possibly shorter :)

Merika


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Diosa Apprentice

You poor dear! :( I feel so bad for you. I can just imagine how bad it was (I get the stomach pains as well, along with the nausea) I got "glutened" yesterday by cleaning up Wheetabix crumbs from the counter, and that was only a tiny bit.

I learned the hard way about Corn Flakes. You'd think Kellogg's Corn Flakes would be safe wouldn't you? Nope. Turns out they use barley in there.

I hope you feel better soon. <3

mle-ii Explorer

I made a similar mistake with the cereal I was eating. I was watching my gluten so much and even made sure the cereal was ok, it said wheat free. I noticed I was starting to get sick again, then one day I read the ingredients on the package and noticed it contained oats. Ack! Cut that back out and started feeling better again. :)

Guest nini

I've made that same mistake with something that has always been gluten free and then all of a sudden the company decides to reformulate and it's no longer safe. WHEN WILL THEY STOP DOING THIS?????

Sorry you had to go through that, and yes Corn Pops used to be safe and now they are not. It's only been several months now that they've added wheat starch to the ingredients. GRRRRRRR This is another company we all need to call, write and complain to. They need to know that adding gluten to a previously naturally gluten free product is UNACCEPTABLE and they are losing a great many customers by doing this.

And the celiac community is a vocal bunch, so we can get our message out there!!!!

Guest nini

I just called Kellogg's to complain, I suggest that you do the same! The only Kellogg's products that are gluten free are the fruit snacks and the Eggo syrup. 800-962-1413

jknnej Collaborator

You poor thing-that is awful.

You should get a prescription of anti nausea drugs for when this happens. I take Phenegran and though it does make you sleepy, sleeping is better than being up feeling like you have to throw up! Besides, it's not like you can go out or to work if you're curled up in a ball on your bed!

gigimom Rookie

We were aware of the Corn Pops being no longer gluten-free so, we switched to Malto Meal Corn Bursts by General Mills. They have been a favorite treat cereal for my kids. Now, I just heard that they can no longer be considered gluten free. I will call the company but for now has anybody else heard about this?

KaitiUSA Enthusiast

Yes, I don't use Malt-O-Meal anymore because they added wheat to their ingredients of the products that were once gluten free.

However, Cocoa and Fruity Pebbles by Post are gluten free

jenvan Collaborator

I have a friend with celiac who used to eat corn pops, and started to get sick. It took her a couple of months to figure out corn pops had changed its ingredients to contain wheat. Why do they need to that do ? Arg ;)

Guest nini

yep, Malt-O-Meal changed their ingredients and their corn pops are no longer gluten-free. Before the change I stocked up on a bunch of bags of it. We just opened the last bag of corn pops... gotta make em last <_<

  • 6 months later...
Guest nini

Update: Kroger Corn Nuggets have been a good suitable replacement for Corn Pops and Malt O Meal's version, but they have now added wheat starch to Kroger Corn Nuggets as well... I just found the new ones in the store along with the old gluten free ones, all that was left of the safe ones were 6 boxes, so I bought them up... I may drive around to other Krogers and do the same! LOL...

I get soooooo irritated that manufacturers think it's perfectly ok to ADD wheat starch to a perfectly good gluten free food... I know it makes it cheaper for them to produce, but they also need to take into consideration the customers they will lose by doing crap like this.

francelajoie Explorer

My favorite cereal si Nature's Best Panda Puffs!!! I'm a big peanut butter fan and these are great!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,463
    • Most Online (within 30 mins)
      7,748

    The Yellow Rose
    Newest Member
    The Yellow Rose
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.