Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toddler Just Diagnosed-please Help


scotties-mom

Recommended Posts

zachsmom Enthusiast

I wish I could just get a list of all the foods everyone has posted...

But as you will find ... many stuff in the regular grocery is gluten free... you just have to look. I have 14month old who was thought to have had it since 4 moths of age..w hen cereal was intorduced,,,, he had a horrible roto virus encounter... But I have and am there really in your shoes. but On land olakes .. they have a flour recipie and other recipies for gluten free folks.. I found it yesterday and thought I had died... But may regulare foods are gluten-free... dont get down... its like riding a bike.. hard and then easy...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kibbie Contributor

Hey I just sent you with a msg that lists everything I keep in my panrty and a typical day of meals for my daughter (she is 21 months old) My grocery bills were high at first while I was getting stocked up, and trying new things... now its about where it was before we went gluten free! (My entire family is gluten-free except DH he iis gluten light he only has gluten at lunch... I'm cheep and get him regular bread because he is the only one in the house who eats it)

So check your msgs!

sally123 Newbie

My 6 year old son was just diagnosed with celiac as well and we are trying to figure out what to eat. He is a very picky eater and likes very few fruits or vegetables. It is even more challenging to find food now. The bread we've tried is terrible. I think the cereal is too, but luckily he likes it. Also, I'm frustrated because the breads/cereal seem to have no nutritional value at all - 1 g of fiber in most of the cereal. My son is the only one in the family with celiac - we've been tested. I hate to make him feel left out and eating "special" foods alone, but I would rather have my 3 yr old eating high fiber cereal and bread. Plus, it's too expensive!

My biggest problem is that I have no idea what products are OK. I found lists from various websites listing products, but then when I read the ingrediants I see "modified food starch". Conversely, I find other products that seem to be gluten free, but I have no real way of knowing. I'm so confused. I also need to be able to tell school what is OK and what is not, but I don't know myself.

Also, we want to do holiday baking this week. Does it work to just substitute gluten-free flours into normal recipes. I haven't tried anything yet.

Any advice for a new celiac mom is welcome.

thanks

par18 Apprentice

Hi,

I think this is the toughest of all situations a family is faced in dealing with Celiac. You as a parent are most responsible for the diet choices of your son. How you go about it will be depend on not only yourself but also the other members of your family. The more the whole family can eat the same things (naturally gluten free food like meats, fruits and vegetables, dairy etc) the less "singled out" your son will feel. No one including adults wants to be singled out. It will also get everyone in the family eating healthier. If you have to buy a lot of prepared gluten free items for just one member it will become expensive. Also the more gluten is involved in the meal for the other members the more chance of accidental contamination. It also increases the time it takes to prepare meals. If all of you eat many of the same things it will be cheaper. The picky aspect of the whole family is something that will have to be overcome. If your son is to succeed then healthy eating must start now. Parents can do the most good in this area by setting a good example. The children may not think much of it now but they will thank you later when they understand how important it is. Hope this helps.

Tom

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,159
    • Most Online (within 30 mins)
      7,748

    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.