Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toddler Just Diagnosed-please Help


scotties-mom

Recommended Posts

zachsmom Enthusiast

I wish I could just get a list of all the foods everyone has posted...

But as you will find ... many stuff in the regular grocery is gluten free... you just have to look. I have 14month old who was thought to have had it since 4 moths of age..w hen cereal was intorduced,,,, he had a horrible roto virus encounter... But I have and am there really in your shoes. but On land olakes .. they have a flour recipie and other recipies for gluten free folks.. I found it yesterday and thought I had died... But may regulare foods are gluten-free... dont get down... its like riding a bike.. hard and then easy...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kibbie Contributor

Hey I just sent you with a msg that lists everything I keep in my panrty and a typical day of meals for my daughter (she is 21 months old) My grocery bills were high at first while I was getting stocked up, and trying new things... now its about where it was before we went gluten free! (My entire family is gluten-free except DH he iis gluten light he only has gluten at lunch... I'm cheep and get him regular bread because he is the only one in the house who eats it)

So check your msgs!

sally123 Newbie

My 6 year old son was just diagnosed with celiac as well and we are trying to figure out what to eat. He is a very picky eater and likes very few fruits or vegetables. It is even more challenging to find food now. The bread we've tried is terrible. I think the cereal is too, but luckily he likes it. Also, I'm frustrated because the breads/cereal seem to have no nutritional value at all - 1 g of fiber in most of the cereal. My son is the only one in the family with celiac - we've been tested. I hate to make him feel left out and eating "special" foods alone, but I would rather have my 3 yr old eating high fiber cereal and bread. Plus, it's too expensive!

My biggest problem is that I have no idea what products are OK. I found lists from various websites listing products, but then when I read the ingrediants I see "modified food starch". Conversely, I find other products that seem to be gluten free, but I have no real way of knowing. I'm so confused. I also need to be able to tell school what is OK and what is not, but I don't know myself.

Also, we want to do holiday baking this week. Does it work to just substitute gluten-free flours into normal recipes. I haven't tried anything yet.

Any advice for a new celiac mom is welcome.

thanks

par18 Apprentice

Hi,

I think this is the toughest of all situations a family is faced in dealing with Celiac. You as a parent are most responsible for the diet choices of your son. How you go about it will be depend on not only yourself but also the other members of your family. The more the whole family can eat the same things (naturally gluten free food like meats, fruits and vegetables, dairy etc) the less "singled out" your son will feel. No one including adults wants to be singled out. It will also get everyone in the family eating healthier. If you have to buy a lot of prepared gluten free items for just one member it will become expensive. Also the more gluten is involved in the meal for the other members the more chance of accidental contamination. It also increases the time it takes to prepare meals. If all of you eat many of the same things it will be cheaper. The picky aspect of the whole family is something that will have to be overcome. If your son is to succeed then healthy eating must start now. Parents can do the most good in this area by setting a good example. The children may not think much of it now but they will thank you later when they understand how important it is. Hope this helps.

Tom

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd posted a topic in Related Issues & Disorders
      0

      Basic metabolic panel results - more flags

    2. - xxnonamexx posted a topic in Related Issues & Disorders
      0

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,318
    • Most Online (within 30 mins)
      7,748

    acurn18
    Newest Member
    acurn18
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
    • xxnonamexx
      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang of it and more aware you realize how many places are gluten-free and contamination free practices etc. One thing I have read is how soy is like gluten. How would one know if soy affects you? I have eaten gluten free hershey reeses that say gluten free etc some other snacks say gluten free but contain soy and I dont get sick or soy yogurt no issues. Is there adifference in soys?
    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.