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Hives?

Fort Mac Celiac

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Fort Mac Celiac Newbie
Fort Mac Celiac
Posted

Hi everyone! I am new to this forum.

I have been breaking out in hives about 2x/day for the past 6 months - once so severely that I ended up in the ER. After alot of online research I decided to try an elimination diet and this led me to believe that I am sensitive to gluten.

Small amounts of gluten don't cause any reaction at all, medium amounts (ie eating a sandwich, pasta side dish) cause me to bloat and break out in hives (this is easily taken care of with Benedryl) and larger amounts cause the more typical reations I have been reading about (severe abdominal pain, vomiting, etc).

I haven't seen a dr yet - but I intend to. I am a bit hesitant since I live in a small town and I am not sure the drs here have alot of experience with Celiac.

I just wanted to ask if anyone has or has had hives as their primary symptom?

Thanks!

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Lisa Mentor
Lisa
Posted

Hi and Welcome!

During your doctors appointment, I would recommend that you request a FULL Celiac Panel. You may have Celiac as well as a gluten allergy.

Happyw5 Explorer
Happyw5
Posted

I have been breaking out in hives for a while. I have had many other digestive issues and so on. My celiac panel was negative, but I was positive for a wheat allergy. My dr also suggested that breaking out with hives could be from high antibodies to your thyroid. Well mine was positive for high antibodies (different test than just thyroid)I am not taking medicine yet, we are hoping that being off gluten for a while will help with my thyoid... But I would ask to have a complete thyroid panel run..

WhenDee Rookie
WhenDee
Posted

I have one IRL Celiac friend, and hives are her primary symptom. So the short answer is YES. Definitely.

And it isn't anything to take lightly - she told me that if you have hives and you get chilled, your blood pressure can drop dangerously.

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      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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