Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Got Thyroid Results


CarolinaKip

Recommended Posts

CarolinaKip Community Regular

I finally was able to have my thyroid checked! My level came back at 1.6. It said I was in "normal" range, but on the low end. My hair continues to break off. I'm using hair products for damaged hair that to my best knowledge are gluten-free. I'm in my 9th month gluten-free and wonder if it is still vitamin loss. I take vitamins plus something for hair, skin and nails. Any input is welcomed!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I finally was able to have my thyroid checked! My level came back at 1.6. It said I was in "normal" range, but on the low end. My hair continues to break off. I'm using hair products for damaged hair that to my best knowledge are gluten-free. I'm in my 9th month gluten-free and wonder if it is still vitamin loss. I take vitamins plus something for hair, skin and nails. Any input is welcomed!

As I understand it, a 1.6 is a perfect level! Not low.

I have been "hypo" at 5.3, took meds and zoomed to 0.8 (going hyper)and I felt "racy ", trembling . The doctor took me off it! Right now, I am at 2.6 and that seems to be okay for me. He felt the illness was "jerking" my numbers around and I had been skirting hypo for a long time.

Since losing a drastic amount of weight to celiac disease, I have lost a lot of hair as well. It got very thin and breaks off too. I am newly gluten-free and wonder the same as you...when will it come back in & "thicken up"?? I also take essential fatty acids, as I was told those are important for hair, skin, nails.

I am interested to see what good news/suggestions others can tell us! :)

Roda Rising Star

What tests were done? If I was to guess your number you posted was your TSH. You really need a full thyroid pannel done to include a TSH, FreeT3, Free T4 and thyroid antibody tests. This will give a much larger picture of what is going on. My first visit with my current endocrinologist noted that I had a very good "normal" TSH, but was low on Free T3. I was having hypo symptoms and she told me that I didn't convert T4 to T3 well. She added cytomel to the mix which raised my Free T3 level and suppressed my TSH more. It worked well for many years. I think I am having thyroid issues again so I'm going back next month to inquire about reverse T3 testing. Also, how is your iron and ferritin? Those being low can cause hair to fall out too I think.

CarolinaKip Community Regular

Thanks, I'm not sure if it was a full panel or not. I'll have to ask about it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.