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Biopsy Today


Shashi

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Shashi Apprentice

I had an upper endoscopy and biopsy today to check for Celiac, along with a sigmoidoscopy to check for any other causes of my recent GI problems. My doctor talked to me afterwards and said that he doesn't think it's Celiac, but he'd let me know when the biopsy results come back. He also said that he thinks I have IBS.

While I hope it's NOT Celiac, I WAS hoping for answers to the neurological problems I've had for five years and thought maybe I had found the reason, as Celiac seemed to fit both the neurological and the GI problems. If it's not, I'm back to square one again.

Would my doctor be able to tell just from the scope procedure that it's not Celiac?


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mamaw Community Regular

You could be gluten sensitive & not have celiac, damage to your intestinal villi. Many of us have been dx'd with IBS before a celiac dx's or gluten sensitive ... One usually needs at least three biopsies to get a good check. Also have you had bloodwork done yet? Any genetic testing?

Being celiac or gluten sensitive has the same outcome,,,, follow a gluten-free diet to restore health.

kareng Grand Master

They can't tell for sure, just by looking. Sometimes if it's really bad & they have the best viewing equipment, I have heard they can see the damage. Usually, you wait for the biopsy to tell you as the damage is tiny & hard to see. Tiny doesn't mean it's not bad. It's a surface damage. The pieces that are damaged are hard to see with our magnification.

Shashi Apprentice

I had the blood test back in December, but my IgA was deficient, so they couldn't tell if it was Celiac from the test. I guess I'll wait and see what the biopsy says. Thanks. :)

SaraKat Contributor

My Dr told me right after the endo that I had celiac and he showed me the pictures of the scalloping. Mine was pretty bad though.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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