Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice, Questions, And Coping


RahCreature

Recommended Posts

RahCreature Newbie

I have been reading about how people are leary of oats or not to eat oats like quaker etc.

Is this a popular thing? I eat Quaker oats with no problems I have never encountered an intolerance to oats My mother who also has Celiac's chasties me for eating things like fruity/ Coco Pebbles, Lucky Charms, And a few other main stream cereals that are not "Gluten free" But have no wheat products in them and are not processed in a plant that has wheat. I look on labels and I figure if I get sick that is a lesson learned and I never eat that again.

I have not been posting long but I can offer advice to the several newly Dx'ed people, read your labels yea yeah all natural, organic might be better but lets be real here we do not all have the $ to pay 4 bucks for a itty bitty box of cereal. Gluten free bread is a treat because of it's 6 bucks a loaf price same with donuts or muffins I like them but I tend to go without rather than pay the prices. Also New people beware the processed Glutne Free food also have lots of sugar and more fat to make up for the lack of wheat.

When I first went gluten-free I ate like a racehorse. Snickers and peanut butter filled me up along with milk and other thicker protiens it did go away but it was frustrating while it was happening. If you have multiple problems or allergies it can be tough as well I have ABSOLUTELY no natural metobolism becasue of my 2 other issues so it is a battle so hang in there =) it gets kinda better =)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You do know you need to avoid barley malt not just wheat right? That is in a lot of mainstream cereals. Chex makes gluten free cereals that are safe for us. I think the Fruity and Cocoa Pebbles are also gluten free.

Were you diagnosed with a blood test? If so be sure to get rechecks to make sure the antibodies are going down. It isn't just GI discomfort as far as reactions go, celiac antibodies can also effect the brain and many other organs. You want to make sure to stop that antibody action. No one says you have to eat just organic food you just have to avoid gluten, wheat, rye, barley and for some of us oats. The issue with mainstream oats is that they are usually heavily cross contaminated in the processing but certified gluten free oats are tolerated by some of us.

RahCreature Newbie

Yes I realize I was Dx With a blood test and a Biopsy I have it I've had it for a year. and nothing in any of the cereals I eat have any trigger ingredients. I've had to play the watch my food game since I was 14.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

    2. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

    4. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,745
    • Most Online (within 30 mins)
      7,748

    NannySandy2006
    Newest Member
    NannySandy2006
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
    • knitty kitty
      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.