Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice, Questions, And Coping


RahCreature

Recommended Posts

RahCreature Newbie

I have been reading about how people are leary of oats or not to eat oats like quaker etc.

Is this a popular thing? I eat Quaker oats with no problems I have never encountered an intolerance to oats My mother who also has Celiac's chasties me for eating things like fruity/ Coco Pebbles, Lucky Charms, And a few other main stream cereals that are not "Gluten free" But have no wheat products in them and are not processed in a plant that has wheat. I look on labels and I figure if I get sick that is a lesson learned and I never eat that again.

I have not been posting long but I can offer advice to the several newly Dx'ed people, read your labels yea yeah all natural, organic might be better but lets be real here we do not all have the $ to pay 4 bucks for a itty bitty box of cereal. Gluten free bread is a treat because of it's 6 bucks a loaf price same with donuts or muffins I like them but I tend to go without rather than pay the prices. Also New people beware the processed Glutne Free food also have lots of sugar and more fat to make up for the lack of wheat.

When I first went gluten-free I ate like a racehorse. Snickers and peanut butter filled me up along with milk and other thicker protiens it did go away but it was frustrating while it was happening. If you have multiple problems or allergies it can be tough as well I have ABSOLUTELY no natural metobolism becasue of my 2 other issues so it is a battle so hang in there =) it gets kinda better =)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You do know you need to avoid barley malt not just wheat right? That is in a lot of mainstream cereals. Chex makes gluten free cereals that are safe for us. I think the Fruity and Cocoa Pebbles are also gluten free.

Were you diagnosed with a blood test? If so be sure to get rechecks to make sure the antibodies are going down. It isn't just GI discomfort as far as reactions go, celiac antibodies can also effect the brain and many other organs. You want to make sure to stop that antibody action. No one says you have to eat just organic food you just have to avoid gluten, wheat, rye, barley and for some of us oats. The issue with mainstream oats is that they are usually heavily cross contaminated in the processing but certified gluten free oats are tolerated by some of us.

RahCreature Newbie

Yes I realize I was Dx With a blood test and a Biopsy I have it I've had it for a year. and nothing in any of the cereals I eat have any trigger ingredients. I've had to play the watch my food game since I was 14.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Xravith posted a topic in Introduce Yourself / Share Stuff
      0

      Do Gluten Enzymes actually work?

    2. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      25

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Adeling commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    4. - Sue7171 replied to Ginger38's topic in Related Issues & Disorders
      25

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      2

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,179
    • Most Online (within 30 mins)
      7,748

    FannyRD
    Newest Member
    FannyRD
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Xravith
      Hi everyone, I decided to post this since there's no enough online information. I'm concerned about the enzyme capsules that are said to help digest gluten.  I'm waiting to end my university exams to start the gluten challenge and do the official diagnosis for Celiac Disease. A friend of mine suggested me to buy the "Gluten Digest Now" capsules during the Gluten Challenge to manage my severe side effects. But I'm not sure if it's worth it, if it's celiac disease the intestinal damage will occur regardless.  What about the symptoms? There's someone that knows if it could help to reduce them?  I’m worried people might be using these as a "safety net" without understanding how they work. Has anyone here used them during a challenge? Did they make a difference, or did they just provide a false sense of security?
    • Flash1970
      Try heallix solution. It's at heallix.com It's a silver and fulvic acid solution.  I just put it on a cotton ball and wiped the shingles area. I also took a little internally once a day. I can't remember how many times a day I applied to the area. Probably  3-4 times a day. It was the only thing that stopped the nerve pain. I don't know if the vaseline is good.  The shingles need to dry out and heal.  Wash everything that comes in contact  with them in hot water. Don't use or wear anything twice. 
    • Sue7171
      My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral.  Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every 6 hrs. Hope this helps  The lidocaine cream is by tylenol and is available in a large tube on Amazon or at Walmart 
    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.