Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Good Day In Glutenfreeland!

healinginprogress

Recommended Posts

healinginprogress Enthusiast
healinginprogress
Posted

So while I still had some very MINOR burpy and bloaty, I felt better than I have in a LOOOOOONG time!!! I even de-glutened my entire kitchen (well, I cleaned everything except my SO's gluten-cupboard) and managed to not get glutened! I had energy, it was crazy! I ate small portions of the "safe" foods on my elimination diet and ate frequently. I cleaned for HOURS and now feel really confident that my kitchen isn't glutening me. I was also very careful and used hand sanitizer after feeding the dogs, etc.

I HOPE this means that my gut is finally settling down and soon I'll be able to reintroduce some more foods...cuz things are pretty bland right now! But I'll take bland over tearing my insides apart any day! Finally, some hope!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


annegirl Explorer
annegirl
Posted

Congratulations! Isn't it amazing to have ENERGY!?!?!?!?! Good luck going forward. :)

cahill Collaborator
cahill
Posted
But I'll take bland over tearing my insides apart any day!

I could not agree more :D Things are pretty bland but amazingly wonderful at my house too :lol:

I am glad you are finding some relief,,, Are you working with a dietitian or doctor?? I would suggest adding back foods very slowly ,one at a time , in pure form,waiting at least 4 to7 days after interdiction before assuming they are safe,,

be well :)

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

I could not agree more :D Things are pretty bland but amazingly wonderful at my house too :lol:

I am glad you are finding some relief,,, Are you working with a dietitian or doctor?? I would suggest adding back foods very slowly ,one at a time , in pure form,waiting at least 4 to7 days after interdiction before assuming they are safe,,

be well :)

Yes, that is my plan...if my symptoms are good for a few more days here, I would like to try introducing one thing from either nightshades, soy, corn, dairy, or eggs. Any suggestion of what to introduce first? I was thinking either something from soy (tofu?), or something from nightshades (potatoe?).

My doctor told me to go gluten-free based on positive blood tests, but I don't get to see a dietitian until after I attend a celiac group on the 16th. In the meantime, because I was still getting sick, I researched about the elimination diet. I found a bit of conflicting info, though. Basically, I plan to, as you said introduce one food in it's pure form and eat it three times on the first day and then not again and go back to the elimination diet that I was asymptomatic on for a week and note any changes. Is that right?

Here's hoping for another good day! I slept okay, it's early and I'm UP and don't feel angry at the world or ridiculously groggy...my body wouldn't even let me sleep in lol I still would like to be sleeping a bit longer, but I will DEFINITELY take the energy for now and hope it lasts :D

cahill Collaborator
cahill
Posted

Yes, that is my plan...if my symptoms are good for a few more days here, I would like to try introducing one thing from either nightshades, soy, corn, dairy, or eggs. Any suggestion of what to introduce first? I was thinking either something from soy (tofu?), or something from nightshades (potatoe?).

I would reintroduce what ever one is most nutritionally advantages for you,,for example ,, if you are vegan and are low in protein I would try the soy,, if you are having trouble making your daily calories I would try the potatoes ect.....

Here is to another TERRIFIC DAY :D

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

I would reintroduce what ever one is most nutritionally advantages for you,,for example ,, if you are vegan and are low in protein I would try the soy,, if you are having trouble making your daily calories I would try the potatoes ect.....

Here is to another TERRIFIC DAY :D

Thank you so much!!!

Yeah, I was thinking almost more from a financial point of view that I would try soy first and hopefully be okay with it, because chicken and lamb are getting expensive LOL I'm having yams and brown rice as my starchy carbs, so I'm not really missing potatoes, I only thought to reintroduce nightshades first because I don't think I will have an intolerance to them. I REALLY hope I can have soy...I think I will try it first. How is your elimination diet going?

cahill Collaborator
cahill
Posted

How is your elimination diet going?

It is going well. I have had some BIG surprises along the way but over all very well.

I believe I have pinpointed most ,if not all, of my remaining intolerances, I have also found some allergys I did not realize I had :o and I have be able to develop a safe list of foods that I can depend on.

Now the important thing is to stay clear of my intolerances so my gut can heal ,,,,who knows, maybe at some point,after I heal, I can reintroduce some of them back into my diet :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,024
    • Most Online (within 30 mins)
      7,748
    Maus14
    Newest Member
    Maus14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.